Discussion in 'General ME/CFS news' started by Tom Kindlon, Jul 6, 2018.
Colin Barton goes round on social media slagging people off for banging on about PACE hence Alistair Miller being involved in this organisation not surprising
just makes me sad that the Green MP supports them
As probably many are aware, at one time Professor Findley was set to run his own pilot on the Lightning Process, and had developed a LP analogue with co-workers, called neurobehavioural training, for which a dedicated website was developed but apparently no longer exists. There was also anecdote on the Bad Science forum dating back to 2011 re a Queen's Hospital in patient stay at the CFS Unit and Professor Findley's involvement with LP at that time. Interesting to note that both he and Esther Crawley are medical advisors to the Sussex & Kent ME/CFS Society.
Archived NeBeT site:
Eta quote and for clarity.
Professor Leslie J Findley
Prof Findley is consultant neurologist and clinical lead at the Essex Neurosciences Unit at Queen’s Hospital. He is also clinical lead for the Clinical Network Coordinating Centre overseeing the NHS Kent & Medway CFS/ME Service.
Prof Findley received his undergraduate medical training at the University of Sheffield, graduating MB, ChB in 1968. Between 1973 and 1981 he undertook postgraduate training in neurology at the Institute of Neurology, London and St Mary’s Hospital Medical School. He was appointed consultant neurologist at the Essex Neurosciences Unit in 1981. He was visiting consultant neurologist to Queen Elizabeth Military Hospital until its closure in 1991 and was appointed Professor of Health Sciences (Neurology) at University of London, South Bank in 1996. Prof Findley is the Clinical Director of a referral centre for patients with complex fatigue syndromes of all types. He has contributed to WHO and national guidelines on the subject of diagnosis and management of fatigue syndromes.
Dr Alan Stewart
Dr Alan Stewart qualified in medicine from Guy’s Hospital in 1976 and underwent training in a variety of medical specialities, becoming a member of the Royal College of Physicians in 1979. He has worked in the independent medical sector since the early 1980s and wrote a variety of popular books on nutrition and women’s health. His interest in CFS/ME developed in the early 1990s and was appointed to the post of medical practitioner to the NHS Sussex CFS/ME service at the end of 2012. He maintains a broad awareness of medical problems and undertakes regular training through the Royal College of Physicians as well as through the various CFS/ME medical groups and societies. Whilst the cause(s) of CFS/ME remain uncertain Dr Stewart considers that there is now a clear and common-sense pathway to help many people with this diagnosis as well as other types of fatigue using a multidisciplinary approach. He considers that the success of the service is very much due to the presence of an experienced team of physiotherapists, occupational therapists and psychologists aided by the activities of patient support groups.
Professor Esther Crawley
Dr Esther Crawley, is a Reader in Child Health at the University of Bristol and a Consultant Paediatrician with a special interest in CFS/ME. She is the clinical lead for Bath specialist CFS/ME service for children based at the Royal National Hospital for Rheumatic Diseases in Bath which currently provides assessment and treatment for over 200 children and young people per annum.
Dr Crawley completed her medical training in Oxford, and then worked in Birmingham and Liverpool before doing her PhD at University College London and Great Ormond Street Hospital. Esther then moved to Bristol and Bath and set up the paediatric CFS/ME service.
Dr Crawley is a medical advisor to the Association of young people with ME, was Chair of the British Association for CFS/ME (BACME, 2007-2010). She set up the Royal College of Paediatrics and Child Health special interest group for CFS/ME, was on the guideline development group for the NICE guidelines published in August 2007 and the MRC CFS/ME expert working group (2009-2010).
Dr Neil Harrison
Dr Harrison is Reader in Neuropsychiatry and Head of the Immunopsychiatry Group at Brighton & Sussex Medical School. He completed a PhD in Neuroscience at the Welcome Trust Centre for Neuroimaging (UCL), and Psychiatry training at the Institute for Psychiatry and National Hospital for Neurology. His research investigates how inflammation in the body acts on the brain to impair mood, motivation and cognition and how it contributes to illnesses like ME/CFS.
Dr Gabrielle Murphy
Gabrielle Murphy is a specialist physician working in the Department of Immunity and Inflammation at the Royal Free Hospital in London. She is Clinical Lead of the Fatigue Service at The Royal Free Hampstead NHS Trust, and also works part-time in HIV medicine. Gabrielle began working in fatigue with Professor Tony Pinching at St Bartholomew’s Hospital in 2000 and then moved to the Free to re-open the service there. She has been an executive member of the CFS/ME network since 2002 (now BACME), hosted the 2003 and 2005 Conferences, and was Chair of the organisation for 2004-2005.
Dr Alastair Miller
Alastair Miller was a Consultant Physician in the Tropical & Infectious Disease Unit at the Royal Liverpool University Hospital and an Honorary Fellow at the Liverpool School of Tropical Medicine 2005 until May 2014. He remains an Honorary Senior Lecturer at The Institute of Infection and Global Health at Liverpool University. Prior to Liverpool he was a Consultant in the West Midlands and Honorary Senior Lecturer in Infectious Disease at Birmingham University. His main clinical interests are blood borne viruses, bone and joint infection and chronic fatigue syndrome/ME.
He has been involved clinically with ME/CFS since his time as a registrar in the mid 1980s. In the Navy he was the lead clinician and in Worcestershire he established a multidisciplinary team for CFS management. Since arriving in Merseyside he became the clinical lead for CFS and ran a diagnostic clinic and a therapy service in collaboration with therapy and psychology colleagues. He is Chair of the British Association for Chronic Fatigue Syndrome and ME (BACME) and Principal Medical Advisor for Action for ME (AfME).
I know we've discussed Neil Harrison before - have to say he seems to be among a gang of BPS folk here
I was about to say the same thing. Looking at that list made me rather nauseous.
The NeBeT link doesn't work for me, but this one does: http://web.archive.org/web/20110729072406/http://www.nebet.co.uk:80/
Thanks @adambeyoncelowe, I've pasted it over the defunct link.
Separate names with a comma.