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"The problem may well be that some of our [CBT] treatments are too evidence based." :rofl: Of course, that's obviously it. In part, this article seems to be some sob story about how CBT practitioners are misunderstood and maligned by ungrateful patients. "It would seem that for some sufferers...

A very sympathetic piece towards living with a disability, featuring amongst other a patient with ME and calling it myalgic encephalomyelitis. http://www.washingtonpost.com/sf/local/2018/01/10/for-some-receiving-disability-benefits-the-desire-to-work-will-never-cease/?utm_term=.3c33bec6f9ab

Well-written and accurate awareness articles keep coming -- this one from the January 11, 2018 edition of the Arizona Jewish Post: https://azjewishpost.com/2018/disease-nearly-keeps-winner-from-jewish-women-who-dared-awards/ A few excerpts: "On this day, in the spring of 2003, I pushed past...

Article by Caroline Christian " Yesterday I woke to a blue rose. I should have known something was wrong when there was very little activity in my favorite ME/CFS groups on Facebook. Blue rose days are like that. The community retreats in silence and grief on these days. We are afraid to admit...

" The best thing for patients and their care is to admit you don’t know everything. As a doctor, it is unnerving to confront an ailment that you don’t immediately know how to conquer. All those years of training, all those hours of study — and yet at some point, every doctor is confronted by...

Hi there, This is my first post so I wasn't sure which section exactly to post in - feel free to move this if it's not appropriate. I hadn't seen this piece before, it's from 2015. I was posting it here because: - It contains some really good viewpoints and information (but also some stuff...

@_NathalieWright's withering @Independent piece lays bear the gaps in how #mecfs is viewed on either side of the pond and the vested interests that have contributed to the disability and death of millions...

Here's an excellent article published at independent.co.uk, plus on a number of other news sites: "Time for Unrest: Why patients with ME are demanding justice A new film sheds light on a condition that is largely ignored. Nathalie Wright reports on the struggles patients face to be taken...

https://www.nytimes.com/2018/01/05/nyregion/how-howard-bloom-writer-and-former-publicist-spends-his-sundays.html

A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience Article by Buzzfeed journalist Tom Chivers about the SMILE trial and the surrounding controversy The author talked to Parker, Crawley, Tuller, Edwards, an unnamed PACE author, and people who have...

. . . although the boy's mother does state that he "will probably always have ME". Make of it what you will: http://www.dailymail.co.uk/health/article-5193885/Suicidal-teenager-15-recovers-taking-cannabis-oil.html

Relying on a Google translate for the English translation. I haven't been able to find the paper this is based on, assuming there is one...

Not terrible, I suppose. http://www.mirror.co.uk/news/real-life-stories/my-body-shut-down-woman-11620598

Author has ME/CFS. http://www.smh.com.au/lifestyle/health-and-wellbeing/not-everyone-with-a-disability-wants-a-cure--nor-should-we-expect-them-to-20171201-gzx8ys.html

In Times this morning. Posted for information. It is a sympathetic article by Broadbent. https://www.thetimes.co.uk/article/muslim-fighter-with-me-who-left-an-arranged-marriage-to-win-world-title-svxhhzt57

Great article today in NYT on ME. The content is updated and informative (so I've decided to ignore that the headline is Chronic Fatigue instead of Chronic Fatigue Syndrome) :) New Recognition for Chronic Fatigue by Jane E. Brody - Having recently endured more than a month of post-concussion...

Edit: this article reviews a very interesting survey sent to Zurich GPs. https://arstechnica.com/science/2017/11/whats-worse-doctors-who-believe-homeopathy-or-just-use-it-for-placebo-effect/

By Melanie Schickedanz "In October, another study was published in the international online journal Plos One , which confirms that the cellular bioenergetics of patients with myalgic encephalomyelitis is impaired. Myalgic encephalomyelitis, ME for short, is often titled with the trivializing...

https://www.thesociologicalreview.com/blog/being-a-housebound-digital-academic.html Edit: @Anna Wood is a member!

What it's like to travel again after 14 years of being housebound: http://www.telegraph.co.uk/travel/destinations/europe/united-kingdom/scotland/articles/my-first-adventures-after-four-years-of-being-housebound/ This article is written by someone who was diagnosed with CFS (acute onset...