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Will The UK Establishment Finally Stop Denying The Reality Of ME? Huff Post

Discussion in 'General ME/CFS News' started by Cheshire, Nov 2, 2017.

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  1. Cheshire

    Cheshire Senior Member (Voting Rights)

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    By Dr Simon Duffy

    http://www.huffingtonpost.co.uk/dr-simon-duffy/uk-establishment-me_b_18375968.html

    ETA/ Info on Dr Duffy: http://me-pedia.org/wiki/Simon_Duffy
     
  2. Jan

    Jan Senior Member (Voting Rights)

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    MEMarge, Moosie, Solstice and 19 others like this.
  3. Esther12

    Esther12 Senior Member (Voting Rights)

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    Thanks. Great to see more attention being brought to this stuff. There's a lot of stuff packed in that Huffington piece. PACE, the Science Media Centre, insurance COIs, the DWP... in a five minute read.

    Some of it was a little loose, and could be seen as being unfair on PACE,but it can be hard to get all of the details into a short article like this.
     
    MEMarge, Moosie, Solstice and 12 others like this.
  4. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Good to have someone like Simon Duffy weighing in of course without the SMC influence this sort of article would have been in the Guardian......... Sorry but that really irks me
     
    Solstice, MEMarge, MeSci and 9 others like this.
  5. Esther12

    Esther12 Senior Member (Voting Rights)

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    I just searched for this piece on facebook to see what sort of response it was getting (not much so far) and saw Duffy saying "I've never had so much trouble getting my Huffington Post published."

    Seems we've got a lot against us.
     
  6. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    Perhaps we can give the article lots of traffic.
     
  7. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Hopefully that will only strengthen his support for ME community.
     
  8. Barry

    Barry Senior Member (Voting Rights)

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    The SMC is simply setting itself up for an ever harder fall. More and more of the media is starting to get the bit between its teeth now.
     
  9. Barry

    Barry Senior Member (Voting Rights)

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    Bl**dy good article!
     
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  10. Esther12

    Esther12 Senior Member (Voting Rights)

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    Actually, I just searched again and got different posts turn up. I don't think I understand facebook well enough to say what sort of response there is.
     
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  11. Esther12

    Esther12 Senior Member (Voting Rights)

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    I used to be really pleased about how bad the SMC was (what a great story it will make)... but they keep not falling! It has been so many long, long years.
     
    Last edited: Nov 2, 2017
    Solstice, Trish, MeSci and 9 others like this.
  12. TigerLilea

    TigerLilea Senior Member (Voting Rights)

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    FB is notorious for posts not showing up for days on some people's newsfeed or pages, or going missing and then showing up again later on.
     
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  13. Esther12

    Esther12 Senior Member (Voting Rights)

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    I keep reading about how important FB is for spreading news stories, but I spend very little time on there. Maybe we should think a bit about how to use FB more effectively for campaigning, or spreading awareness of S4ME? If Putin can do it, so can we!
     
  14. Adrian

    Adrian Administrator

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    We have a facebook page but I don't think we have planned a strategy yet.

    Also a twitter account https://twitter.com/s4me_info
     
  15. Helen

    Helen Senior Member (Voting Rights)

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    Great :thumbsup:. Shouldn´t this be announced in a separate thread as it´s a bit OT here? Too good to be missed by interested people.
     
  16. adreno

    adreno Senior Member (Voting Rights)

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    Perhaps a "Spread the Word!" thread is in order, as @Helen suggests? If we are ready, that is...
     
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  17. Trish

    Trish Moderator Staff Member

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  18. Wolfiness

    Wolfiness Established Member

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    Yes! It's a shift if it's PDW et al. who are now scowling at news articles.
     
    Last edited: Nov 5, 2017
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  19. Esther12

    Esther12 Senior Member (Voting Rights)

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    I find it hard to be consistently outraged when something manages to make them sound even worse than they really are. Still, in the long-run perfect accuracy about everything will serve us best. This article gets the key things right, and most of the details too.
     
    Last edited: Nov 6, 2017
    Barry, Jan and Trish like this.
  20. Little Bluestem

    Little Bluestem Senior Member (Voting Rights)

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    Even if you don't have time to read the whole article, opening the link will register your interest in the subject.
     
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