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'Love Means Never Having to Say... Anything' - moving NYT article by PWME Jamison Hill (25 May 2018)

Discussion in 'General ME/CFS News' started by Sasha, May 26, 2018.

  1. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,497
    Location:
    UK
    Wow...

    "After dating Shannon for several months, I needed to say something to her, but I couldn’t. It’s not that I was nervous or unsure of the phrasing. It’s that I couldn’t speak. My lungs and larynx couldn’t create the air pressure and vibrations needed to say the words floating around my mind.

    This is our reality. I can’t talk to Shannon about anything — not the weather or her day or how beautiful she is. Worst of all, I can’t tell her I love her."​

    Read the rest: https://www.nytimes.com/2018/05/25/style/modern-love-means-never-having-to-say-anything.html

    I think Jamison was one of the patients featured in Unrest (he was formerly a body-builder and is now confined to bed).

    Very moving piece and a superb piece of advocacy. Hats off to Jamison. :thumbup:
     
    Sasha, May 26, 2018
    #1
    TiredSam, Lidia, Wonko and 21 others like this.
  2. Trish

    Trish Moderator Staff Member

    Messages:
    35,800
    Location:
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    Oh, I'm in floods of tears. That is so moving.
    And amazing that Jamison was able to write it and get in published in the NYT. Wow.
     
    Trish, May 26, 2018
    #2
    Wonko, adambeyoncelowe, MEMarge and 13 others like this.
  3. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    875
    Location:
    Germany
    He was featured in Forgotten Plague.
     
    Joh, May 26, 2018
    #3
    Wonko, ahimsa, MEMarge and 8 others like this.
  4. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,497
    Location:
    UK
    Doh! You're right. Thanks!
     
    Sasha, May 26, 2018
    #4
    Wonko, MEMarge, Luther Blissett and 3 others like this.
  5. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

    Messages:
    825
    It would be nice to get this translated into Chinese, Hindi/Urdu, Spanish, Arabic, French, Malay, Russian, Bengali, Portuguese, Punjabi, German, Japanese, etc., etc., to distribute.....(if allowed by copyright)......
     
    Jaybee00, May 26, 2018
    #5
    Luther Blissett, Woolie, alktipping and 2 others like this.
  6. alktipping

    alktipping Senior Member (Voting Rights)

    Messages:
    942
    so very heart warming. wonderfully brave writing . and of course heart breaking too. thanks sasha for bringing this to our attention.
     
    alktipping, May 26, 2018
    #6
    Luther Blissett, Woolie and Sasha like this.
  7. Trish

    Trish Moderator Staff Member

    Messages:
    35,800
    Location:
    UK
    ''My New York Times Essay is on a Podcast''
    https://jamisonwrites.com/2019/05/02/my-new-york-times-essay-is-on-a-podcast/

    more at link.
     
    Trish, May 3, 2019
    #7
    ahimsa, MEMarge, rvallee and 3 others like this.
  8. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    14,111
    Location:
    Hampshire, UK
    https://jamisonwrites.com/2019/05/02/my-new-york-times-essay-is-on-a-podcast/

    ETA: Cross-posted with Trish :)
     
    Andy, May 3, 2019
    #8
    MEMarge, JaneL, adambeyoncelowe and 1 other person like this.

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