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'Love Means Never Having to Say... Anything' - moving NYT article by PWME Jamison Hill (25 May 2018)

Discussion in 'General ME/CFS News' started by Sasha, May 26, 2018.

  1. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,497
    Location:
    UK
    Wow...

    "After dating Shannon for several months, I needed to say something to her, but I couldn’t. It’s not that I was nervous or unsure of the phrasing. It’s that I couldn’t speak. My lungs and larynx couldn’t create the air pressure and vibrations needed to say the words floating around my mind.

    This is our reality. I can’t talk to Shannon about anything — not the weather or her day or how beautiful she is. Worst of all, I can’t tell her I love her."​

    Read the rest: https://www.nytimes.com/2018/05/25/style/modern-love-means-never-having-to-say-anything.html

    I think Jamison was one of the patients featured in Unrest (he was formerly a body-builder and is now confined to bed).

    Very moving piece and a superb piece of advocacy. Hats off to Jamison. :thumbup:
     
    TiredSam, Lidia, Wonko and 21 others like this.
  2. Trish

    Trish Moderator Staff Member

    Messages:
    35,800
    Location:
    UK
    Oh, I'm in floods of tears. That is so moving.
    And amazing that Jamison was able to write it and get in published in the NYT. Wow.
     
  3. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    875
    Location:
    Germany
    He was featured in Forgotten Plague.
     
    Wonko, ahimsa, MEMarge and 8 others like this.
  4. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,497
    Location:
    UK
    Doh! You're right. Thanks!
     
  5. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

    Messages:
    825
    It would be nice to get this translated into Chinese, Hindi/Urdu, Spanish, Arabic, French, Malay, Russian, Bengali, Portuguese, Punjabi, German, Japanese, etc., etc., to distribute.....(if allowed by copyright)......
     
  6. alktipping

    alktipping Senior Member (Voting Rights)

    Messages:
    942
    so very heart warming. wonderfully brave writing . and of course heart breaking too. thanks sasha for bringing this to our attention.
     
    Luther Blissett, Woolie and Sasha like this.
  7. Trish

    Trish Moderator Staff Member

    Messages:
    35,800
    Location:
    UK
    ''My New York Times Essay is on a Podcast''
    https://jamisonwrites.com/2019/05/02/my-new-york-times-essay-is-on-a-podcast/

    more at link.
     
    ahimsa, MEMarge, rvallee and 3 others like this.
  8. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    14,111
    Location:
    Hampshire, UK
    https://jamisonwrites.com/2019/05/02/my-new-york-times-essay-is-on-a-podcast/

    ETA: Cross-posted with Trish :)
     

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