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advocacy

Page 5 of 6

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A masterlist of ME facts & the citations that support them

We have a bunch of facts we use both for advocacy and for scientific research that we cite often. I spend a good amount of time at #MEAction...

Thread by: JaimeS, Aug 9, 2018, 25 replies, in forum: MEpedia
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Who was it that said being in support groups leads to poor outcome?

Halp. Looking for a resource on this? I'll start the hunt through Phoenix Rising, but if someone has it handy, I'd really appreciate it.

Thread by: JaimeS, Jul 24, 2018, 274 replies, in forum: General Advocacy Discussions
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ME advocates you can endorse (=vote for) in the WegoHealth awards 2018

I thought I would open a thread on this as I'm aware of a number of people who have been nominated. Also votes numbered in the hundreds seem to...

Thread by: Tom Kindlon, Jul 9, 2018, 26 replies, in forum: General ME/CFS news
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Great interview: "From Fit Nurse To ME Warrior"

Great video interview "From Fit Nurse To ME Warrior With Ashanti Daniel" by Valentine Ewudo:...

Thread by: Joh, Jun 16, 2018, 6 replies, in forum: General ME/CFS news
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The Biopolitics of CFS/ME

https://www.sciencedirect.com/science/article/pii/S1369848617300705 The Biopolitics of CFS/ME Author Nikos Karfakis Highlights •The diagnosis...

Thread by: Daisymay, Jun 12, 2018, 26 replies, in forum: ME/CFS research
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Strategic framework for activism with practical advice

/Movement Action Plan/, by Bill Moyer. http://www.indybay.org/uploads/movement_action_plan.pdf excerpt: === STAGE TWO: PROVE THE FAILURE OF...

Thread by: Samuel, Jun 7, 2018, 17 replies, in forum: Advocacy Projects and Campaigns
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Opinion piece: If only Brexit had been run like Ireland’s referendum [not posted for the politics]

Finally, the old feminist slogan that the personal is political holds true, but it also works the other way around. The political has to be...

Thread by: Andy, May 30, 2018, 8 replies, in forum: Other health news and research
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#MEAction - UK Organiser

#ME Action Network have just announced a fundraiser for a U.K. organiser. “to support another year of mass awareness, medical and scientific...

Thread by: RuthT, May 23, 2018, 100 replies, in forum: General Advocacy Discussions
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Advocacy Alert: What’s Up TV Wants Your Voice for ME - Deadline is Friday 1st June

Invest in ME Research has been contacted by a researcher on a Sky One programme called What’s Up TV – an arts and culture magazine show with a...

Thread by: Andy, May 18, 2018, 6 replies, in forum: Advocacy Action Alerts
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#MEAction: Four things you can do to advance the fight for health equality

Sign the MEAction letter to Francis Collins to increase investment in ME research (Global) Ask Congress to support people with ME. Using our...

Thread by: Andy, May 16, 2018, 12 replies, in forum: Advocacy Action Alerts
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UK: Labour Party are asking "What would you like to ask Theresa May?"

Note: This isn't intended as a partisan post, vote for who you want, I just see potential for ME advocacy in it. Send us your questions for...

Thread by: Andy, May 13, 2018, 16 replies, in forum: Advocacy Action Alerts
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Advocacy alert: Australians with ME/CFS continue to be harmed by GET.

Australians with ME/CFS continue to be harmed by GET. If you’ve been harmed by GET, write a letter to one of our campaign targets (RACGP...

Thread by: Andy, May 9, 2018, 0 replies, in forum: Advocacy Action Alerts
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AFME provide new self advocacy support material

[MEDIA]

Thread by: Cinders66, May 2, 2018, 33 replies, in forum: General Advocacy Discussions
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#GratefulME: Idea for Twitter meme

I'm a big believer in the cliche that gets beaten into every writing workshop student: show, don't tell. I'd rather someone show me that he or she...

Thread by: Michelle, Apr 29, 2018, 2 replies, in forum: Advocacy Projects and Campaigns
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May 12th #MillionsMissing events - register a private event

Hi folks, I just got off a planning call with ME Action volunteers about how to coordinate #MillionsMissing events planned for May 12th. I was...

Thread by: ahimsa, Apr 25, 2018, 1 replies, in forum: Advocacy Projects and Campaigns
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Facebook question: How can I create an ad targeted at people interested in myalgic encephalomyelitis or Chronic fatigue syndrome?

Facebook question: How can I create an ad targeted at people interested in myalgic encephalomyelitis or Chronic fatigue syndrome? I was previously...

Thread by: Tom Kindlon, Apr 7, 2018, 9 replies, in forum: General ME/CFS news
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Share your (USA) Home Health Access Story Here

Here is a place collecting stories about access (or not) to Medicare home health services in the USA. You can choose who they will anonymously...

Thread by: WillowJ, Mar 29, 2018, 0 replies, in forum: Advocacy Projects and Campaigns
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Participate in the 2018 #MillionsMissing with #MEACTION

The MEAction website has info on how to set up or participate in #MillionsMissing protests on May 12, 2018....

Thread by: ahimsa, Mar 27, 2018, 0 replies, in forum: Advocacy Projects and Campaigns
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Help Fuel SMCI's Fight in Washington DC!

Help Fuel SMCI's Fight in Washington DC! Last year, 52 ME/CFS patients and advocates met with more than 80 members of Congress and their...

Thread by: Emily Taylor, Mar 25, 2018, 0 replies, in forum: Fundraising
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ProHealth is Proud to Announce its 2017 ME/CFS Patient Advocate of the Year: Jennifer Brea

" In 2017, Jen Brea did the impossible. She catapulted ME/CFS onto the public stage, and into the international spotlight, all in one fell swoop...

Thread by: Sly Saint, Mar 8, 2018, 9 replies, in forum: General ME/CFS news

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