advocacy

https://www.westerntelegraph.co.uk/news/17284361.walk-a-mile-in-my-shoes-trying-on-cwtchs-chronic-illness-symptom-suit/

https://www.meaction.net/2018/12/05/all-i-want-for-christmas-is-sciencenotstigma/

Read more, and see the comic, at https://superpooped.blogspot.com/2018/12/cause-and-effect-piece.html

I'm posting this in case there are Cdn advocates here who are not aware of this group and who might find connecting with this group of possible use for ME advocacy: https://www.cma.ca/En/Pages/patient-voice.aspx The CMA Patient Voice is our patient liaison group and is made up of 14...

A few things have begun to aggregate, so I figured I would start a new thread and post them here. First, #MEAction's general article on how to donate on #GivingTuesday: https://www.meaction.net/2018/11/16/givingtuesday/ Right now, Facebook is matching donations, so consider clicking on the...

just wondering if we could do something to show our support?

#MEAction: Fall advocacy round-up - a season of protest and petition An extensive summary of this autumn's advocacy work around the world. Quite impressive list! :) Includes petitions, introduction of new staff members, news from different parts of the world, protests, and updates on among...

Here's a relatively easy advocacy action for patients in the USA: Ask your health care professional to watch Unrest online and get continuing education credit. What I did was print out some flyers (found here https://www.meaction.net/wp-content/uploads/2018/10/Doctor-flyer.pdf ) and then gave...

http://voicesfromtheshadowsfilm.co.uk/2018/dialogues-for-a-neglected-illness-a-new-mecfs-project-awarded-wellcome-funding/

Hi, I apologise if this is the wrong area to post this but this is our last formal statement as a family. I’m unsure how to get it to come up on here so I have included a link to the Facebook post we have written. I’m a bit useless with technology so I do apologise! Many thanks and sending...

We have a bunch of facts we use both for advocacy and for scientific research that we cite often. I spend a good amount of time at #MEAction providing citations to other advocates, and I know that advocates spend hours... and hours... and hours searching for the right citation to support a fact...

Halp. Looking for a resource on this? I'll start the hunt through Phoenix Rising, but if someone has it handy, I'd really appreciate it.

I thought I would open a thread on this as I'm aware of a number of people who have been nominated. Also votes numbered in the hundreds seem to have been enough to get into the final so it's not unachievable for people to become a finalist. For example, some people I recall who were finalists...

Great video interview "From Fit Nurse To ME Warrior With Ashanti Daniel" by Valentine Ewudo: https://thinkalpha.net/fit-nurse-to-me-warrior-ashanti-daniel/

https://www.sciencedirect.com/science/article/pii/S1369848617300705 The Biopolitics of CFS/ME Author Nikos Karfakis Highlights •The diagnosis of CFS/ME is not only a scientific issue nor only contested within the confines of the clinic, but a much broader, biopolitical problem. •Attempts...

/Movement Action Plan/, by Bill Moyer. http://www.indybay.org/uploads/movement_action_plan.pdf excerpt: === STAGE TWO: PROVE THE FAILURE OF INSTITUTIONS The intensity of public feeling, opinion, and upset required for social movements to occur can happen only when the public realizes that...

https://www.theguardian.com/commentisfree/2018/may/29/brexit-ireland-referendum-experiment-trusting-people Not posted for the Brexit or abortion topics but for the last section of the article that I have included in the quote above. I believe that this is something really important that we can...

#ME Action Network have just announced a fundraiser for a U.K. organiser. “to support another year of mass awareness, medical and scientific outreach, advocacy, and community for impact like #MillionsMissing and our parliamentary actions” Edit: Link will be added when can work out how to do...

http://ldifme.org/2018/05/18/whats-up-tv-wants-your-voice-for-me/

https://www.meaction.net/take-action/