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US Petition: Funding dedicated to the research of Chronic Fatigue Syndrome 'ME/CFS' to develop a diagnostic test, treatment, and Cure

Discussion in 'Petitions' started by Andy, Jan 17, 2019.

  1. Andy

    Andy Committee Member & Outreach

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    Spotted this on social media.
    https://petitions.whitehouse.gov/pe...fs-develop-diagnostic-test-treatment-and-cure
     
    Perrier, shak8, andypants and 3 others like this.
  2. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    I'm finding this a bit odd.

    How are people to know the petition is there beyond as you did @Andy 'spot it'? Maybe it's out there on social media somewhere.

    The statistical facts don't seem at all up to date either. The 4:1 ratio for female/male. The peek incidence age could be right but I think we don't really know for sure do we? I think there are more certain/different things they could have said with more impact.

    Would be good to know more about the person(s) behind petition and more specifics of what they want and why. I mean, it can be a very good idea or would it be more useful to invest money in doing collaborative research where infrastructure is already present? (I don't know the answer to this)
     
    Perrier, shak8, Andy and 1 other person like this.

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