In November last year Action for ME invited people with ME to complete a questionnaire describing their experience of ME. The responses were...
A popular YouTuber (149k subscribers), Lex Play, has made a video about an ME island created by Lisa, The Unlikely Gamer. It can be watched here:...
Bit of a mouthful thread title, but I have seen many references in the last few years that explicitly blame the biopsychosocial model of ME/CFS as...
[MEDIA] Great video - one of the best I've seen. Winston has real skill. Maybe we can use it to our advantage. I'd like to see a UK version.
Someone calling themselves Long Covid Patient Action Group UK on Twitter has announced protests calling for more research into long covid outside...
He Was Given 6 Months to Live. Then He Changed D.C. Brian Wallach was diagnosed with ALS the day his daughter came home from the hospital. In the...
As you can see, this is not a new article but I thought it was worth sharing. Written by a family physician. Not really about ME/CFS but this...
I've been seeing many lately and thought a thread could be useful. Either coming from Long Covid advocates or professionals interested in learning...
What is the Conference on the Future of Europe? The Conference on the Future of Europe is a unique and timely opportunity for European citizens...
Rivka on Twitter: "Tonight, the @PBS @NewsHour w/ @JudyWoodruff airs a piece on #MEcfs. Thx to an amazing @MassMECFS volunteer for this graphic....
This is a 6 minute film created by Inga Topolnicki. I thought it was moving and impressively well made! From the description: An Existence...
Following the success of our recent advocacy workshops for people in Bath and North East Somerset, we’re pleased to announce that we will repeat...
For people who have no idea what ME is like, (for example most doctors and healthcare workers) how would you express it briefly? You could use:...
I found the following announcement at the bottom of this page -...
This thread is intended to get an overview of ME/CFS news in France.
Evelien and I recently made an overview of ongoing or planned clinical trials for ME/CFS. We concluded that there are few decent treatment trials...
A brave & thoughtful story my daughter Nadine wrote about her recent diagnosis with ME, my family's history with the disease, COVID long-haulers...
Recently I watched two Derren Brown shows, 'Miracle' and 'Miracles for Sale'. They're mostly focused on exposing how "faith healing" is performed,...
Someone posted a link on twitter about a planned documentary called Relevium. https://glematiroad.com/relevium-documentary I don't know...
I donate a monthly sum to the national ME Association and/or their research fund. Every now and then I additionally support other fundraising...
Separate names with a comma.
