I created a petition to demand the renaming of Chronic Fatigue Syndrome, since it's associated with so much neglect and gaslighting. I will be...
Note: This action is for folks living in the USA. #MEAction is urging folks to contact their elected officials to ask that Medicare coverage for...
Maybe campaign isn't the right word, it's more of a theme, very close to #MillionsMissing. It's gaining some steam, I've been seeing more of it...
Not really sure where else to put this, but this video is really great. We have produced a short film about #MECFS patients' prejudices. The film...
I posted a link to this MEAction article in the News from Organizations section but I thought I should crosspost it here. This year's Millions...
Hi, I couldn’t find a general thread to post this so I’m making a new thread. A small but in my opinion cool way to increase advoacy, an...
Solve ME has created an automated tool (meant for folks in the USA) that will contact your Member of Congress (email/phone/twitter) and ask them...
Today, March 15, is Long Covid Awareness Day. I thought there should be a thread for news articles, social media posts (hashtag...
This committee hearing is a pretty big deal and I was kind of waiting for someone to start a thread when it was announced so here we go. Today...
The Ed Yong piece has been going round my head for a while now as it gave me a new perspective on my disease too. I think it's safe to say that...
There have been quite a lot of improvements in the ME/CFS situation in Germany. There are now investment in research, the IQWiG report, political...
From Solve M.E. - a call to action for Advocacy Week: "Ask your Members of Congress to support the CARE for Long COVID Act!"...
I saw this post by @MEFoggyDog on Mastodon so I thought I'd share. This same hashtag - #MPDoYourJobForME - is also being used on twitter so you...
The Solve Newsletter thread has been merged with this thread. Spring 2018 Contents: Page 2 - SMCI This Quarter: A Summary of Our Work Page 5 -...
The ME/CFS patient community has long worked on debunking graded exercise and CBT as treatments for the disease but I am not aware of similar...
Threads about different articles have been merged Article about today's protest at the White House from MedPage Today: "Long COVID, ME/CFS...
Reminder for anyone who wants to help out with the 2022 Millions Missing protest scheduled for Monday, September 19. There's an online training...
In November last year Action for ME invited people with ME to complete a questionnaire describing their experience of ME. The responses were...
A popular YouTuber (149k subscribers), Lex Play, has made a video about an ME island created by Lisa, The Unlikely Gamer. It can be watched here:...
Bit of a mouthful thread title, but I have seen many references in the last few years that explicitly blame the biopsychosocial model of ME/CFS as...
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