2017

  1. MeSci

    Science, Politics and the Internet: Challenges for Research into Contested Illness - Michael Sharpe

    I found some other pieces about 'Special Ethics' in relation to Michael Sharpe but they were earlier than this one. St Cross Special Ethics Seminar with Michael Sharpe Thursday, June 1, 2017 Event type: Academic Date: Thursday 1 June, 17:30 – 19:00 Venue: The Lecture Theatre, St Cross...
  2. MeSci

    An exploratory study into chronic fatigue syndrome/myalgic encephalomyelitis and fibromyalgia

    Can anyone get hold of this, i.e. does anyone here have the necessary log-in permissions? Or isn't it worth bothering with? Source: University of the West of Scotland Date: November 16, 2017 URL: http://ethos.bl.uk/OrderDetails.do?did=1&uin=uk.bl.ethos.738487 An exploratory study into the...
  3. Aroa

    Dan Peterson at the discovery Forum 2017

    I don´t think this was posted elsewhere.
    • Aroa
    • Thread
    • 2017 dan peterson discovery forum solve mecfs initiative video
    • Replies: 3
    • Forum: General ME/CFS news
  4. Andy

    Current treatment approaches for paediatric CFS/ME, 2017, Loades, Bridgen and Crawley

    If you really want to, the rest can be read at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5939995/
  5. Andy

    NPR: For People With Chronic Fatigue Syndrome, More Exercise Isn't Better

    Old, 2nd Oct 2017, article. https://www.npr.org/sections/health-shots/2017/10/02/554369327/for-people-with-chronic-fatigue-syndrome-more-exercise-isnt-better Linked to from a recently found Reader's Digest article on 'Fitness Myths' -...
  6. Andy

    Chronic fatigue syndrome and idiopathic intracranial hypertension: Different manifestations of the same disorder of intracranial, 2017, Higgins et al

    Full text available at https://www.medical-hypotheses.com/article/S0306-9877(17)30418-8/fulltext Has inspired this letter Full letter paywalled at https://www.clinicalkey.com/#!/content/playContent/1-s2.0-S0306987718302895?returnurl=null&referrer=null
    • Andy
    • Thread
    • 2017 higgins intracranial hypertension me/cfs paper
    • Replies: 5
    • Forum: ME/CFS research
  7. J

    Review paper about CD39s from 2017 Zhao et al.

    I found this review very interesting with the ATP, ADP and AMP recycling plus immunology background. Zhao H, Bo C, Kang Y and Li H (2017) What Else Can CD39 Tell Us? Front. Immunol. 8:727. doi: 10.3389/fimmu.2017.00727 Abstract: As the rate-limiting enzyme in ATP/ADP–AMP–adenosine pathway...
  8. adambeyoncelowe

    Task related cerebral blood flow changes of patients with chronic fatigue syndrome, 2018, Staud et al

    Task related cerebral blood flow changes of patients with chronic fatigue syndrome: an arterial spin labeling study Roland Staud,Jeff Boissoneault,Jason G. Craggs,Song Lai &Michael E. Robinson Received 05 Dec 2017, Accepted 13 Mar 2018, Published online: 20 Mar 2018 ABSTRACT Purpose: One...
  9. Esther12

    Monica Greco (draft for 2017 paper) Pragmatics of explanation : creative accountability and ‘medically unexplained symptoms’

    Monica Greco seems to do lots of uninteresting thoughtless work with long words on MUS. It's possibly worth reading her work to see how some people think about these things? I don't know how I ended up being linked to this piece, but I thought that this paragraph was of interest, especially the...
  10. Sly Saint

    Neural consequences of post-exertion malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Cook, Light +

    May 2017 Neural consequences of post-exertion malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Dane B.CookabAlan R.LightcKathleen C.LightcGordonBroderickdMorgan R.ShieldsbRyan J.DoughertybJacob D.MeyerbStephanieVanRiperbAaron J.StegnerbLaura D.EllingsoneSuzanne D.Vernonf...
    • Sly Saint
    • Thread
    • 2017 brain dane cook exercise test me/cfs neurology paper pem
    • Replies: 4
    • Forum: ME/CFS research
  11. Dolphin

    The economic burden of CFS/ME: an initial summary of the existing evidence and recommendations for further research (Brenna & Gitto, 2017)

    Free full text at: https://www.researchgate.net/publication/320111650_The_economic_burden_of_chronic_fatigue_myalgic
  12. Dolphin

    Sex differences in amino acids lost via sweating could lead to differential susceptibilities to disturbances in nitrogen balance and collagen turnover

    Free full text: https://link.springer.com/article/10.1007%2Fs00726-017-2431-4 Amino Acids. 2017 Aug;49(8):1337-1345. doi: 10.1007/s00726-017-2431-4. Epub 2017 May 4. Sex differences in amino acids lost via sweating could lead to differential susceptibilities to disturbances in nitrogen...
  13. Esther12

    RCT of online continuing education for health professionals to improve the management of chronic fatigue syndrome: protocol (2017) Lloyd, Barry

    This looks annoying and worthless: http://bmjopen.bmj.com/content/7/5/e014133 Wow, they've really taken the time to understand this straw-man of why patients are concerned about the promotion of CBT/GET: I'm mainly posting this because it says: I'm not sure that this organisation would...
  14. F

    Analysis of five hallmark studies from the Netherlands, 2018, Twisk and Corsius

    An in-depth analysis of five hallmark studies of the Dutch Expertise Center for Chronic Fatigue (NKCV) confirms that cognitive behavorial therapy combined with a graded activity protocol (CBT+) has no objective positive effect on the (health) status of patients diganosed with chronic fatigue...
  15. Sly Saint

    Guidance for commissioners of services for people with medically unexplained symptoms - 2017

    Joint Commissioning Panel for Mental Health Guidance for commissioners of services for people with medically unexplained symptoms pge 6 Functional somatic syndromes by specialty Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis https://www.jcpmh.info/wp-content/uploads/jcpmh-mus-guide.pdf
  16. Sly Saint

    Biopsychosocial risk factors of persistent fatigue after acute infection: A systematic review to inform interventions, 2017, Moss-Morris

    Abstract OBJECTIVES: Fatigue is a prevalent and debilitating symptom, preceded by an acute infectious episode in some patients. This systematic review aimed to identify risk factors for the development of persistent fatigue after an acute infection, to develop an evidence-based working model of...
  17. Sly Saint

    Paid Research Study for CFS/ME patients who have been in therapy (NYC)

    I've posted this here in members only as I am not sure if it's allowed (I will report it myself to check). If it is, it might get moved, if not then I'm happy for it to be deleted. " Do you have a diagnosis of Chronic Fatigue Syndrome (CFS)/ myalgic encephalomyelitis (ME) and have you been in...
  18. T

    Guided graded exercise self-help plus specialist medical care versus specialist medical care alone for CFS (GETSET), 2017, Clark et al.

    http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(16)32589-2/fulltext Lancet. 2017 Jul 22;390(10092):363-373. doi: 10.1016/S0140-6736(16)32589-2. Epub 2017 Jun 22. Guided graded exercise self-help plus specialist medical care versus specialist medical care alone for chronic...
  19. Simone

    CFIDS, cellular metabolism, and ionizing radiation: A review of contemporary scientific literature and suggested directions for future research.

    Chronic Fatigue and Immune Deficiency Syndrome (CFIDS), cellular metabolism, and ionizing radiation: A review of contemporary scientific literature and suggested directions for future research. Authors: Rusin, Seymour & Mothersill. Abstract PURPOSE: To investigate biochemical pathways known...
    • Simone
    • Thread
    • 2017 me/cfs mitochondria paper radiation review rusin
    • Replies: 0
    • Forum: ME/CFS research
  20. Andy

    Prevalence of and risk factors for severe cognitive and sleep symptoms in ME/CFS and MS, 2017, Nacul et al

    From Jun 2017 Full text at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5477754/
    • Andy
    • Thread
    • 2017 cognition me/cfs multiple sclerosis nacul paper sleep
    • Replies: 27
    • Forum: ME/CFS research
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