1. The latest crowdfunder to support David Tuller's work has opened. To donate click here.
    Dismiss Notice
  2. Guest, the two part 'News in Brief' for the week beginning 11th October 2021 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

The economic burden of CFS/ME: an initial summary of the existing evidence and recommendations for further research (Brenna & Gitto, 2017)

Discussion in 'PsychoSocial ME/CFS Research' started by Dolphin, Feb 18, 2018.

Tags:
  1. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    3,116
    Free full text at: https://www.researchgate.net/publication/320111650_The_economic_burden_of_chronic_fatigue_myalgic

     
    Dolphin, Feb 18, 2018
    #1
    arewenearlythereyet, JohnM, Barry and 3 others like this.
  2. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    3,116
    Although the authors themselves may not have strong views, this mentions a lot of nonpharmacological interventions studies (e.g. on CBT) and claims they showed benefit in terms of QALYs. These are self-report measures and there is no mention that there could be problems with them.
     
    Dolphin, Feb 18, 2018
    #2
    arewenearlythereyet, Grigor, Barry and 3 others like this.
  3. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    3,116
    I have no idea whether "person-centred healthcare" is interesting or not or what it might mean in practice. They don't give any other information on it I think.
     
    Dolphin, Feb 18, 2018
    #3
    arewenearlythereyet, Barry, Trish and 2 others like this.
  4. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    3,116
    I don't think this is a good fit for "PsychoSocial ME/CFS Research" but then I didn't seem to fit in "BioMedical ME/CFS Research" either. I think there needs to be another category for research or else they are all collapsed into one, which would be my preference.
     
    Dolphin, Feb 18, 2018
    #4
    Esther12 likes this.
  5. TiredSam

    TiredSam Moderator Staff Member

    Messages:
    9,723
    Location:
    Germany
    I'd like to see the evidence for this. We are often accused of wasting doctors' time, when the reality may well be that many of us are in hiding from the health service and engage as little as possible.

    When I read the thread title I actually thought it might be a sympathetic paper on the economic burden to sufferers and their families, but no, it's about the cost to society, productivity, and the cost of our assumed higher healthcare utilization.

    How unpleasant.
     
    TiredSam, Feb 18, 2018
    #5
    Trish, arewenearlythereyet, Nancy Blackett and 1 other person like this.
  6. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    3,116
    It talks about all sorts of economic burdens.

    If we are to get public health systems to pay for treatments such as expensive drugs, it is useful to be able to argue there is an economic case for it.
     
    Dolphin, Feb 18, 2018
    #6
    Indigophoton, Trish, arewenearlythereyet and 5 others like this.
  7. TiredSam

    TiredSam Moderator Staff Member

    Messages:
    9,723
    Location:
    Germany
    I appreciate that. I was just a little crestfallen and needed to talk about it.
     
    TiredSam, Feb 18, 2018
    #7
    Indigophoton, Nancy Blackett, Trish and 4 others like this.
  8. Effi

    Effi Established Member (Voting Rights)

    Messages:
    62
    The "economic burden" argument is something that pops up in BPS research a lot. That is how they love to describe us, a huge burden on society, and the solution is, of course, "getting them active again". Problem solved. (Not saying these researchers are BPS, but this theme makes me suspect that there might be a link there.)

    I think this could be an interesting point of view when making a case for funding.
     
    Effi, Feb 18, 2018
    #8
    Nancy Blackett, Trish, TiredSam and 2 others like this.
  9. Luther Blissett

    Luther Blissett Senior Member (Voting Rights)

    Messages:
    1,678
    Defective economic unit 36436/2353 (aka Luther Blissett) is no longer working 'efficiently'. The unit would require excessive 'costs' to be repaired by 'society'. Would you like to delete Y/N?

    Yuck.
     
    Luther Blissett, Feb 19, 2018
    #9
    Indigophoton, Trish, TiredSam and 2 others like this.
  10. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

    Messages:
    2,092
    There there ?
     
    arewenearlythereyet, Feb 19, 2018
    #10
    Indigophoton, Luther Blissett, Trish and 1 other person like this.

Share This Page