2017

https://www.tandfonline.com/doi/abs/10.1080/21641846.2017.1299358 Free full text: https://www.researchgate.net/publication/315482747_PACE_trial_claims_of_recovery_are_not_justified_by_the_data_A_Rejoinder_to_Sharpe_Chalder_Johnson_Goldsmith_and_White_2017

One of the complications of making first contact with EBV at an older age appears to be ME/CFS. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5393566/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5301046/ Reads rather well

I haven't read past the abstract, but it looks interesting. Mind the Hype: A Critical Evaluation and Prescriptive Agenda for Research on Mindfulness and Meditation Abstract (my bolding); https://journals.sagepub.com/doi/full/10.1177/1745691617709589

CNS findings in chronic fatigue syndrome and a neuropathological case report https://jim.bmj.com/content/65/6/974?fbclid=IwAR24-bGrHrFEtFdrY5LCP4u9lC_R289wqTP3BN6vAh5T0FpCNTMc5EZUYOg Abstract Chronic fatigue syndrome (CFS) is characterized as a persistent, debilitating complex disorder of...

Healthwatch Lancashire have published and update on the Trafford ME National Survey ( 2015 and 'ongoing') which was issued during 2017. This should be useful for NICE..... As Healthwatch are NICE stakeholders for the ME review. It would be good to get the survey replicated across all...

https://blogs.plos.org/absolutely-maybe/2017/07/03/5-tips-for-understanding-data-in-meta-analyses/

Multi-Site Clinical Assessment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (MCAM): Design and Implementation of a Prospective/Retrospective Rolling Cohort Study *** Looks like, unless I missed it & this isn't new, the CDC has published something significant on the multisite study...

Leonard Jason’s 2017 presentation to the Ethical Humanist Society of Chicago regarding myths regarding ME and CFS. https://www.leonardjason.com/myths-about-me-and-cfs/ @Cheshire (to add to your thread)

It's the 2-year anniversary of this open access paper of mine, so I'm giving it a plug in a few places. It could be useful if there is any suggestion that somebody should be coerced into doing graded activity or exercise programmes; also to counter claims that the PACE Trial showed graded...

Originally published 2017. https://politicsandinsights.org/2017/03/07/iapt-is-value-laden-non-prefigurative-non-dialogic-and-antidemocratic/

https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-017-1161-4 Background Investigations of activin family proteins as serum biomarkers for chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). CFS/ME is a disease with complex, wide-ranging symptoms, featuring...

Saw Keith Geraghty share this on Twitter. Paywalled at https://www.bmj.com/content/356/bmj.j396

https://www.sid.ir/en/journal/ViewPaper.aspx?ID=611210 Journal: MEDICAL JOURNAL OF MASHHAD UNIVERSITY OF MEDICAL SCIENCES DECEMBER 2017-JANUARY 2018 , Volume 60 , Number 5 #G00431; Page(s) 709 To 713. Paper: VIRAL INFECTION AND CHRONIC FATIGUE SYNDROME (CFS) Author(s): DERAKHSHAN...

Open access at https://onlinelibrary.wiley.com/doi/full/10.1002/capr.12141 Posting this as it has been highlighted in the comments of Spoonseeker's latest blog that the concept expressed in this review is to be used to 'lower the bar' that NICE uses to assess treatments by, and therefore "to...

Don't think that this has been posted before - I just found it while looking for something else: https://www.kingshealthpartners.org/assets/000/001/145/KHPJ5100_Psych_Med_Booklet_280317_WEB_Complete_original.pdf?1491471608 There are bits and pieces in the intro, eg: Oh dear... you've got two...

https://onlinelibrary.wiley.com/doi/abs/10.1111/ijcp.12967

" Applications for all levels of Round 11 of the Fellowships Programme have now closed. Five levels of NIHR Fellowship awards were available: Doctoral, Post Doctoral, Transitional Research, Career Development and Senior Research...

Article from 2017 but very interesting. " Much more than a movement disorder PD is now recognized to affect just about every system in the body, causing dermatologic, urologic, musculoskeletal, gastrointestinal and psychiatric symptoms. Early signs and symptoms of PD — including hyposmia...

https://www.nature.com/articles/ncomms15801 As this describes some (a minor but very frustrating part) of my experience: difficulty with auditory multi-tasking, screening out background noise while doing things etc. I wondered if some of these processes might be relevant to ME/CFS. I am...