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Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

Discussion in 'PsychoSocial ME/CFS News' started by Andy, Oct 25, 2017.

  1. Andy

    Andy Administrator Staff Member

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    Esther Crawley is a Professor of Child Health at the University of Bristol with a Senior Research Fellowship from the National Institute of Health Research.

    She dedicates her waking hours to finding and delivering treatments for children whose lives have been devastated by Chronic Fatigue and ME, an illness that affects 1-2% of teenagers – that’s 10-20 children in a normal secondary school.

    Esther is the clinical lead for the Bath specialist Chronic Fatigue Syndrome/ME service for children based at the Royal United Hospital in Bath, the largest service of its type in the world - providing assessment and treatment for over 450 children and young people with CFS/ME each year. Chronic Fatigue Syndrome is a debilitating illness that causes chaos to peoples lives.

    Esther is passionate about trying to develop more effective treatments, and her research is world leading. But because of it, she has experienced harassment, threats and cyber stalking from a small group of activists who have dedicated their lives to try and stop her research. Esther and her colleagues who continue to practice in this area face an up-hill climb: research is slowed down as they deal with investigations and threats. Their patients suffer because clinicians and researchers wont work in this area.

    Esther's hard-hitting talk for TEDxBristol: Dare to Disrupt will explore why she has decided to continue with the research, despite the immense pressure she has been put under to stop. Her talks examines the difficult choices that many pioneers of medical research make - and the personal pressures, turmoil, threats and attacks that clinicians, scientists and researchers face when they choose to take a stand and do what is right, not what is easy.

    I dare to disrupt because ...
    We need to disrupt views of this illness.Those who are ill with CFS/ME do not have a voice - they are too unwell. We need to provide their voice and we need to speak up about this illness. Because we, as a community, as a society, as friends, as neighbours and as parents should look after children who suffer.​

    https://tedxbristol.com/speakers - Click on her face to get access to the above text on the site.

    Yet more pity seeking from St Esther, sadly the vomit emoticon hasn't been enabled yet.
     
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  2. Allele

    Allele Senior Member (Voting Rights)

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    Screen Shot 2017-10-25 at 4.14.01 PM.png
     
  3. Joel

    Joel Senior Member (Voting Rights)

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    Yuk. It reads like a spoof. No one takes this crap seriously do they?
     
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  4. Snowdrop

    Snowdrop Established Member (Voting Rights)

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    We need to find parents of children who've been seen by Crawley who are willing to speak up and counter the Sainthood narrative.
     
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  5. Trish

    Trish Senior Member (Voting Rights)

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    Sadly her audiences do seem to be completely taken in by her lies.

    How dare she presume to speak on behalf of patients.

    How dare she equate herself with genuine pioneers of medical research, when it is she who is gobbling up all the research funding with her unscientific trials.

    What can we do to stop her? How can we make medical science see through her?
     
    Last edited by a moderator: Nov 1, 2017
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  6. Woolie

    Woolie Senior Member (Voting Rights)

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    I think the answer is, keep mentioning her involvement with the Lightning Process. Nothing else, just the patented Lightning Process, offered by charismatic guru Phil Parker, which promises to cure whatever ails you.

    Oh, and maybe testimonies from parents whose kids have suffered in her programmes.
     
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  7. Sean

    Sean Senior Member (Voting Rights)

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    There are no words. :mad:
     
  8. TiredSam

    TiredSam Moderator Staff Member

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    What does that even mean?

    It's reached the point where any self-proclaimed expert can give a TED talk.

     
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  9. TiredSam

    TiredSam Moderator Staff Member

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  10. Andy

    Andy Administrator Staff Member

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    Also important to consider, just what does the fox say??
     
  11. Daisybell

    Daisybell Senior Member (Voting Rights)

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    Poor poor Esther - the maligned pioneer of medical research.....
    She’s presenting the view that the ‘activists’ aren’t patients, so she can feel so terribly sorry for the poor patients who are suffering - while she imagines her halo getting brighter and brighter.
    La la land. She really is completely delusional!
     
  12. Valentijn

    Valentijn Moderator Staff Member

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    I doubt it. She knows what she's doing: she's launched a deliberate and systematic campaign against ME/CFS patients. Though she might be delusional about some aspects of ME/CFS itself :p
     
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  13. Daisybell

    Daisybell Senior Member (Voting Rights)

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    I think she’s delusional about how she comes across though. I mean - you don’t have to know anything about the history of ME to feel creeped out by what is written. It’s so insincere and holier-than thou...
     
  14. Valentijn

    Valentijn Moderator Staff Member

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    Insincere is the key word. She knows she's lying. She knows what reality is, and it isn't what she's saying. She's not deluded in her accusations against patients - she's a liar.
     
  15. Luther Blissett

    Luther Blissett Senior Member (Voting Rights)

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    If the pattern persists of claiming to speak for us, then when the forum is up and running, a petition saying we do not recognize her speaking for us would be a good way to publicly challenge her.
     
  16. Jan

    Jan Senior Member (Voting Rights)

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    The ME community needs to take action against this narrative, writing to Holgate is pointless. I don't understand why she is being allowed to discuss 'nasty patients being horrible to her', what does that achieve educationally for students who listen?

    Not worded very well, I'm too furious that she is allowed to keep smearing sick people like this and everyone thinking this is ok.
     
  17. Trish

    Trish Senior Member (Voting Rights)

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    I get the impression she's quite careful not to specify who these anti-science activists she keeps banging on about actually are. A tweet yesterday suggested one of her listeners in the hall thought she was talking about religious fanatics. Maybe he thought she meant people like the fundamentalist creationists. She didn't specify that they are patients I don't think.
    In her blurb for the TedX talk she describes herself as being needed to speak up for patients who are too ill to have a voice, so she sees us in that context as needing her as spokesperson. (Bleurgh! Not in my name, Esther).
     
  18. Andy

    Andy Administrator Staff Member

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    For those with a strong constitution


    Not my video, just spotted it being shared around.
     
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  19. MarcNotMark

    MarcNotMark Senior Member (Voting Rights)

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    I've never saw her talk before, thank you very much, my life will never be the same again :eek::eek::eek:;)
     
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  20. Snowdrop

    Snowdrop Established Member (Voting Rights)

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    I'm not entirely clear on the structure of the TED talk universe but I think Jen Brea's talk was an actual TED talk and Esther Crawley's a TEDx talk.
    TEDx is not the same calibre it's labelled as a TED like talk organised by various local pods.

    I've never seen EC talk either and don't have the stomach for it now.

    ETA: getting crawley on video spouting nonsense is at least worth it for the 'historical record'
     

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