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  1. TiredSam

    Ric Arseneau, Clinical professor of internal medicine, University of British Columbia, Canada

    Hate to be a pedant but the Stockholm syndrome is complete quackery made up by a psych. https://www.bbc.co.uk/programmes/m000s7n1
  2. TiredSam

    The disappearance of ME/CFS

    I had to be assessed by a psych before I could get my ME diagnosis from the Charite hospital in Berlin. The first thing the psych did was insist that I walk down the corridor in front of her, presumably to assess my gait for some reason, she didn't explain. Once in her office she whacked me in...
  3. TiredSam

    News from France

    Think I'll send this to my sister in France.
  4. TiredSam

    News from Germany

    Sadly there's no system of legal precedent in Germany, so it's unlikely that any other court will be bound by this decision, although we can perhaps hope that some will follow it.
  5. TiredSam

    News from Germany

    Posting on behalf of @MSEsperanza From Berlin Students' Union: Studying with post-COVID, ME/CFS, and post-vaccination syndrome—is it possible? German page here: https://www.stw.berlin/veranstaltungskalender/erfolgreich-studieren-mit-post-covid-me/cfs-und-postvac-%E2%80%93-geht-das.html...
  6. TiredSam

    Using PCs versus laptops when you're mostly in or on your bed

    I think it needs a flat rectangular surface to clamp on to firmly. Here it's clamped on to the wooden edge of my bed. I have it affixed to the window sill in the living room.
  7. TiredSam

    United Kingdom: News from #There for ME

    Medals all round at S4ME I think :emoji_medal::emoji_medal::emoji_medal::emoji_medal::emoji_medal::emoji_trophy::emoji_trophy::emoji_trophy::emoji_trophy::emoji_trophy::emoji_military_medal::emoji_military_medal::emoji_military_medal::emoji_military_medal::emoji_military_medal:
  8. TiredSam

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    That'll be why we don't see him on social media any more. Was wondering where he'd gone.
  9. TiredSam

    Itaconate modulates immune responses via inhibition of peroxiredoxin 5, 2025, Tomas Paulenda et al

    I have just read this whole thread without understanding a word of it. I find it most encouraging.
  10. TiredSam

    Identifying and renaming inaccurate, inappropriate or minimising words, phrases, etc. in ME/CFS

    I've never been a fan of the phrase "ME patient", as it implies the provision of treatment or services by a healthcare provider. "ME sufferer" is about the best alternative I can come up with. Healthcare providers can call us "patients" once they start offering something useful, but as long as...
  11. TiredSam

    United Kingdom: ME Association governance issues

    I've been reading this thread and all I can see is bluster, empty threats and deliberate ambiguity on Riley's part. If that's how he talks to us, there's a good chance his representation of things legal to his colleagues at MEA has been just as dodgy, and more aligned to his own interests and...
  12. TiredSam

    JK Rowling new book — chronic illness references

    Spoiler alert! I haven't watched it yet.
  13. TiredSam

    Oral minocycline therapy as first-line treatment in patients with Myalgic encephalomyelitis and long COVID: A pilot study, 2024, Miwa

    It was mentioned in the first line of their text. I think that's what they must have meant.
  14. TiredSam

    Dietary sodium and health: How much is too much for those with orthostatic disorders?, 2022, Stock et al.

    I feel better immediately when I eat something salty. It's the first thing I do when I feel myself starting to turn into a zombie.
  15. TiredSam

    Clinical Remission After Therapeutic Apheresis in a [ME/CFS] Patient : A Case Report, 2024, Burgard

    "Long term" seems fairly redundant to me, unless the author is trying to distinguish it from another kind of ME/CFS I haven't heard about. Not even a raised eyebrow here.
  16. TiredSam

    JK Rowling new book — chronic illness references

    I will be watching the BBC's Ink Black Heart, as my wife is a huge fan of the Strike books and TV adaptations. I reserve the right to start screaming at the screen if provoked. In one of the previous series Strike gets into an exchange with a post modernist and lectures them with his...
  17. TiredSam

    Is “inability to recover and improve from exercise” a core component of ME/CFS? How common is it?

    I voted yes, because I can walk slowly for 1-2 hours without PEM, so I recover from that walk. If I do it often enough whilst staying in my envelope (every few days) I feel generally better. My ME doesn't improve, but the rest of me feels better for moving, stretching and getting some fresh air...
  18. TiredSam

    UK: Healthsense, formerly called Healthwatch

    Perhaps getting off topic for this thread but according to Gerd Gigerenzer (in his book Risk Savvy) prostate cancer is over-treated, leading to many men unnecessarily suffering the consequences of surgery (incontinence, impotence) when they would have been fine and eventually died of something...
  19. TiredSam

    UK: Healthsense, formerly called Healthwatch

    Well when someone with ME has to go into hospital for a non-ME related reason a bed away from all the light and noise might help?
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