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Medals all round at S4ME I think :emoji_medal::emoji_medal::emoji_medal::emoji_medal::emoji_medal::emoji_trophy::emoji_trophy::emoji_trophy::emoji_trophy::emoji_trophy::emoji_military_medal::emoji_military_medal::emoji_military_medal::emoji_military_medal::emoji_military_medal:

That'll be why we don't see him on social media any more. Was wondering where he'd gone.

I have just read this whole thread without understanding a word of it. I find it most encouraging.

Ibuprofen and Paracetamol do absolutely nothing for my ME symptoms, the main one being a headache that is unresponsive to anything apart from lying down for as long as it takes for it to go away. EDIT: I never even thought of taking them before activity.

I've never been a fan of the phrase "ME patient", as it implies the provision of treatment or services by a healthcare provider. "ME sufferer" is about the best alternative I can come up with. Healthcare providers can call us "patients" once they start offering something useful, but as long as...

I've been reading this thread and all I can see is bluster, empty threats and deliberate ambiguity on Riley's part. If that's how he talks to us, there's a good chance his representation of things legal to his colleagues at MEA has been just as dodgy, and more aligned to his own interests and...

Spoiler alert! I haven't watched it yet.

Frank Sidebottom fan?

It was mentioned in the first line of their text. I think that's what they must have meant.

I feel better immediately when I eat something salty. It's the first thing I do when I feel myself starting to turn into a zombie.

"Long term" seems fairly redundant to me, unless the author is trying to distinguish it from another kind of ME/CFS I haven't heard about. Not even a raised eyebrow here.

I will be watching the BBC's Ink Black Heart, as my wife is a huge fan of the Strike books and TV adaptations. I reserve the right to start screaming at the screen if provoked. In one of the previous series Strike gets into an exchange with a post modernist and lectures them with his...

I voted yes, because I can walk slowly for 1-2 hours without PEM, so I recover from that walk. If I do it often enough whilst staying in my envelope (every few days) I feel generally better. My ME doesn't improve, but the rest of me feels better for moving, stretching and getting some fresh air...

Perhaps getting off topic for this thread but according to Gerd Gigerenzer (in his book Risk Savvy) prostate cancer is over-treated, leading to many men unnecessarily suffering the consequences of surgery (incontinence, impotence) when they would have been fine and eventually died of something...

Well when someone with ME has to go into hospital for a non-ME related reason a bed away from all the light and noise might help?

I like the "Have you had ... " in the question, because I'm back to being able to drink now, but stopped in the first few years of ME. My main symptom when ME hit was headaches, so I would do anything to reduce their number. In my early ME years I went to a christmas party with colleagues...

Don't think so.

I don't know.

Hopefully this service won't be like the Isle of Wight ferry.

It's often individual healthcare staff abusing their position to foist their personal beliefs on a captive audience. It's rampant in Germany too, I've had it from doctors (offering to dangle a pendulum to diagnose my son's allergy) and physiotherapists (insisting on twiddling my toes, her own...