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  1. Snowdrop

    United Kingdom: Science Media Centre (including Fiona Fox)

    Link to reviews: https://www.amazon.co.uk/Beyond-Hype-Sciences-Biggest-Controversies-ebook/product-reviews/B09RGRGTVH/ref=cm_cr_dp_d_show_all_btm?ie=UTF8&reviewerType=all_reviews
  2. Snowdrop

    Functional Neurological Disorder (FND) - articles, social media and discussion

    @ems223 I see that you have been signed up here at S4ME since May 2021. So you may well have some idea of the ongoing issues we have with the BPS and their views if you've spent any time reading here. If that is the case it seems sad to me that among all the things to be driven crazy over...
  3. Snowdrop

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    The UK really needs for people like Javid to be on side in getting rid of the nonsensical BPS beliefs. However, I fully expect that for their part the BPS will go crying into their single malt about how ME is being 'politicised' and look, see and then point to Javid. So, it will be interesting...
  4. Snowdrop

    United Kingdom: Science Media Centre (including Fiona Fox)

    When it comes to ideas marketing is agnostic toward the truth. It doesn't enter into it. And it's easy to include the underdog view of ME into the climate change/vaccine/covid denier camp. But a realistic parsing of the ME situation is more akin to big tobacco denying cancer and emphysema...
  5. Snowdrop

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    Since it has passed two weeks after publication perhaps you can address all the points still but publish elsewhere. Perhaps Virology blog would offer you a space.
  6. Snowdrop

    Prevalence and correlates of alexithymia in older persons with medically (un)explained physical symptoms, 2022, Bos et al

    As to statement number 3 in Trish's post: "I have physical sensations even my doctors don't understand." Yes, right up until Covid. Now that many people have experienced long-covid -- surprise -- much understanding has ensued. These MUS that had in the past been systematically reframed as...
  7. Snowdrop

    BPS attempts at psychologizing Long Covid

    Maybe he isn't. Maybe he'd like to be transparent about it.
  8. Snowdrop

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I think they are saying that they needed to suspend judgment until they could see real results that were robust ie consistent and reproducible. I read it as suggesting that they were making no claims until the science backed it up.
  9. Snowdrop

    BPS attempts at psychologizing Long Covid

    This might be pointless to say but I expect that to some extent GM's point of view comes directly from where he can make money from holding that POV. Money is a great motivator. Throwing reality under the bus then becomes easy.
  10. Snowdrop

    Exercise Training in Post-COVID-19 Patients: The Need for a Multifactorial Protocol for a Multifactorial Pathophysiology, 2022, Cattadori et al

    I find irony in the fact that while the BPS lot generally are all writing endless papers on exercise as a cure-all there is another faction of this group doing research into life stress causing neurological disorders (other threads). The irony being that exercise is one life stressor making...
  11. Snowdrop

    News from Scandinavia

    Looking forward to hearing the stories of Agnetha & Anni-Frid . . . ;) Sorry, not really a serious post discussing the stories.
  12. Snowdrop

    Symptoms of Idiopathic Environmental Intolerance associated with chemicals (IEI-C) are positively associated with perceptual anomalies, 2022, Speck

    Just because someone latches on to a theory of what makes them sick because of an absence of scientific inquiry into their symptoms it does not then naturally follow that they are wrong about being physically ill. To say so is a non-sequitur. Even when you grant they may have a point about...
  13. Snowdrop

    Stuart Ritchie, science journalist, articles on science fraud and open science

    LOL. I think we'd need a whole separate thread for all the amusing guesswork on that one. This article was written by Stuart Ritchie. I sort of recall him from previously seeing some of his tweets. He seems like a good egg and not away with the fairies when it comes to discussing science...
  14. Snowdrop

    Fatigue - is it the main symptom of ME/CFS and Long Covid? Discussion thread

    I also think because we must not do too much or face consequences (some times irreversible) that the lack of variety, novelty, and just generally stimulation like a normal person is a kind of ennui that might be thought of as fatigue. Or 'no get up and go'. It's fatigue adjacent or mimics...
  15. Snowdrop

    Fatigue - is it the main symptom of ME/CFS and Long Covid? Discussion thread

    Exertion intolerance to me = failure to perform at a consistent level over a short (read shorter than a normal person) time-frame with the consequence of loss of further function, possibly (likely for me) pain, and loss of focus along with other cognitive symptoms. Also, if the over exertion...
  16. Snowdrop

    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    What would make the point of rebuttal to PW even better would be a few links to the relevant evidence backing the statements made. Extra work I know. And most of us here know the evidence but always good to make the case solid.
  17. Snowdrop

    Long COVID (post-COVID-19 condition) in children: a modified Delphi process, 2022, Stephenson et al

    Perhaps someone might comment who understands better than I do. Here is the WHO page on LC: https://www.who.int/publications/i/item/WHO-2019-nCoV-Post_COVID-19_condition-Clinical_case_definition-2021.1 It says: Also as is probably known by many here already it's money from NIHR as usual...
  18. Snowdrop

    Joint patient and clinician priority setting to identify 10 key research questions regarding the long-term sequelae of COVID-19, 2022, Evans, Chalder

    It's the NIHR giving her money that is a real problem. They need to be helped to understand that what they are doing is not responsible. And is it not also tax payers money they use?
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