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Recent Activity

Activity stream for all registered members at Science for ME.

  1. Dolphin replied to the thread The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al..

    A good thing about Leonard Jason is he does “waste” lots of data. We’ll probably see 5-20 (?) more papers on this study.

    Jan 24, 2020 at 9:09 PM
  2. NelliePledge liked Trish's post in the thread Fibromyalgia "Conference" via Jared Younger email touting it.

    I signed up to get the emails out of curiosity. I still receive them occasionally. I was surprised today to receive one with a heavily...

    Jan 24, 2020 at 9:08 PM
  3. DigitalDrifter replied to the thread "Complex Regional Pain Syndrome, Fibromyalgia and Chronic Fatigue Syndrome: Psychological or Physical Diseases?".

    ME has been around since 1955 may be earlier. Fibromyalgia came about in the 80's. Where? NICE still treats ME as psychological.

    Jan 24, 2020 at 9:08 PM
  4. NelliePledge liked Ravn's post in the thread Orthostatic Hypertension.

    I wonder if there's a progression of increasing autonomic dysregulation? I started with orthostatic hypotension, frequent fainting and...

    Jan 24, 2020 at 9:08 PM
  5. NelliePledge liked ahimsa's post in the thread Orthostatic Hypertension.

    So sorry you have this orthostatic hyPERtension, @Marky I think that it must be even harder to treat than the delayed hyPOtension that...

    Jan 24, 2020 at 9:07 PM
  6. Hutan liked Trish's post in the thread Fibromyalgia "Conference" via Jared Younger email touting it.

    I signed up to get the emails out of curiosity. I still receive them occasionally. I was surprised today to receive one with a heavily...

    Jan 24, 2020 at 9:03 PM
  7. Dolphin liked strategist's post in the thread The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al..

    Regarding the prevalence of severity. Consider that the patients with characteristics that make it easier to be diagnosed are likely to...

    Jan 24, 2020 at 9:01 PM
  8. Dolphin liked Robert 1973's post in the thread The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al..

    Thanks for your post Michiel. A really helpful start to the discussion. Yes, me too – even having read the responses from others....

    Jan 24, 2020 at 9:00 PM
  9. Trish liked dave30th's post in the thread Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al.

    Here's page 3 of the CBT Patient manual introduction to the online program: "There are a number of clinical trials showing that...

    Jan 24, 2020 at 8:57 PM
  10. Chezboo liked Wonko's post in the thread 'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020..

    I agree - and the way they are doing things (in that roster) is inefficient, no one with any experience would even do a lot of those...

    Jan 24, 2020 at 8:57 PM
  11. Trish liked Ravn's post in the thread Why do we crash so quick when upright/sitting?.

    Interesting. I have a similar observation. My OI, mainly tachycardia these days, gets worse after lying down for about 45 minutes (when...

    Jan 24, 2020 at 8:57 PM
  12. Dolphin liked NelliePledge's post in the thread The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al..

    I think I’d slightly disagree about the cognitive stuff not being able to go under the radar especially in mild ME people. I had/have...

    Jan 24, 2020 at 8:56 PM
  13. Chezboo liked Hutan's post in the thread 'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020..

    There are some good bits, but then, with 64 pages to fill, it's almost inevitable that some of it will be. Adding this to the list of...

    Jan 24, 2020 at 8:56 PM
  14. Dolphin liked Mithriel's post in the thread The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al..

    When I read about children with ME they are all very sick and I wonder about the ones like me. I was 14 and never missed a day of...

    Jan 24, 2020 at 8:56 PM
  15. Hutan liked Louie41's post in the thread 'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020..

    I was struck by their imagined roster of daily activities. I wouldn't be able to do one day's activities in a week!

    Jan 24, 2020 at 8:55 PM
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