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Recent Activity

Activity stream for all registered members at Science for ME.

  1. Inara liked Andy's post in the thread "Time for Unrest": ME article by Nathalie Wright.

    Sorry to taint this thread with the words from Wessely but he responded to a tweet from @Grigor with this [MEDIA] Link from the tweet -...

    Jan 19, 2018 at 11:11 AM
  2. Missense liked Jonathan Edwards's post in the thread IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments.

    Nacul's argument is an important one.. The other thing that strikes me is that if it is agreed that PEM is central to the category of...

    Jan 19, 2018 at 11:10 AM
  3. MeSci liked Amw66's post in the thread Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018.

    I think this is a huge point. The condition label effectively writes you off with some doctors. Our GP is trying to be helpful - in...

    Jan 19, 2018 at 11:10 AM
  4. Alvin replied to the thread David Tuller: Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims - 17th January 2018.

    Basically this, all those who resist knowledge, fight progress and fake their results in ME/CFS treatment should face sanction

    Jan 19, 2018 at 11:10 AM
  5. ukxmrv liked MEMarge's post in the thread Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018.

    My 16 year-old daughter would have been distraught to be told there's no cure, when she was first diagnosed. Having a close friend of...

    Jan 19, 2018 at 11:09 AM
  6. Lilpink replied to the thread "Exquisite sensitivity to medication".

    I'm hypersensitive to meds..and frankly to almost everything now. I think hypersensitivity should be regarded as a cardinal symptom in...

    Jan 19, 2018 at 11:09 AM
  7. Solstice liked Trish's post in the thread David Tuller: Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims - 17th January 2018.

    Sure there is blame to be shared, but EC is a senior paediatrician and University Professor and claims to be a world expert on CFS in...

    Jan 19, 2018 at 11:09 AM
  8. ukxmrv liked Sasha's post in the thread Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018.

    My suggestion was for a campaign for NICE to be willing to 'Tell us honestly there's nothing' as far as RCTs providing evidence for any...

    Jan 19, 2018 at 11:09 AM
  9. Solstice liked Alvin's post in the thread David Tuller: Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims - 17th January 2018.

    She intentionally harms children by believing lies, maligns patients who beg for help and uses her authority to take people away from...

    Jan 19, 2018 at 11:09 AM
  10. Alvin liked Trish's post in the thread David Tuller: Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims - 17th January 2018.

    Sure there is blame to be shared, but EC is a senior paediatrician and University Professor and claims to be a world expert on CFS in...

    Jan 19, 2018 at 11:08 AM
  11. Solstice liked Sean's post in the thread David Tuller: Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims - 17th January 2018.

    As with PACE and their post-hoc revisions to outcome thresholds, the problem is not the use of alternative definitions and thresholds...

    Jan 19, 2018 at 11:08 AM
  12. Solstice liked Valentijn's post in the thread David Tuller: Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims - 17th January 2018.

    "The study participants didn't like the scientific method, so I stopped using it. Instead, they wanted to tell me what they felt the...

    Jan 19, 2018 at 11:08 AM
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