Recent Activity

RaviHVJ replied to the thread Long Covid Moonshot Initiative.

The moonshot initiative is currently trying to get funding for Long Covid research from the 2024/2025 budget. This is distinct from...

RaviHVJ posted a new thread.

Long Covid Moonshot Initiative

Creating a thread to discuss the "Long Covid Moonshot" campaign. Its core demand has been $1 billion a year in funding for Long Covid...

Forum: Advocacy Projects and Campaigns

Solstice liked Sasha's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

Great stuff, @chillier - I didn't realise you were a forum member. This is very exciting work and you explain the intricacies very well...

Solstice liked Kitty's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

Thanks, @chillier, it's so cheering to know the work's being done by a member of S4ME as well—I'd no idea!

Solstice liked chillier's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

Yes good management of expectations, and as we see it a negative result is also an informative outcome. We deserve to know one way or...

Kalliope posted a new thread.

Harvard Business Review - Long Covid at Work: A Manager's Guide

The article provides several examples of accommodations for workers with chronic illness. Also includes quite a lot about ME. Quote:...

Forum: Long Covid news

Solstice liked chillier's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

It was a lot of fun talking with you @Simon M and quite an honour to be featured in your blog! Audrey and I have both been a big fan of...

Solstice liked Andy's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

Link to study thread, UK: Investigating the presence of Micro Clots and other blood factors in people with ME/CFS, Sheffield, Caroline...

Solstice liked Dolphin's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

An issue with crowdfunding for individual studies is what you do with the money if you raise a substantial amount but not enough for the...

JemPD replied to the thread Open Investigating family planning, pregnancy, and parenting for people with ME/CFS - the faMELy study.

Hi @EmmaS302 welcome to S4 :)

JohnTheJack liked Trish's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

Thank you, @Simon M for the article and @chillier and Audrey for your work. It is such important work. We need to know whether the hopes...

JohnTheJack liked Andy's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

Link to study thread, UK: Investigating the presence of Micro Clots and other blood factors in people with ME/CFS, Sheffield, Caroline...

JohnTheJack liked Simon M's post in the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.

I'm glad it stuck! And being quoted on someone's fridge - years on - makes me very happy. Thank you.

EndME liked RaviHVJ's post in the thread News from the USA, United States of America.

From the moonshot initiative: We’ve just gotten word that Senators now have until FRIDAY, MAY 10TH to sign the FY25 Long Covid funding...

Simon M liked chillier's post in the thread Open UK: Investigating the presence of Micro Clots and other blood factors in people with ME/CFS, Sheffield, Caroline Dalton.

The samples are being used for two projects related to microclots and related to cell phenotyping in serum swap experiments. I can't...