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General Advocacy Discussions

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  1. Jaybee00

    Writers needed to debunk pseudoscience—paid

    Jaybee00, Aug 11, 2024
    Replies:
    4
    Views:
    885
    Ash
    Aug 11, 2024
  2. Cybergreen91

    2024: Looking for scientific minds for live Twitter Space discussion

    Cybergreen91, Aug 31, 2024
    Replies:
    1
    Views:
    680
    Jonathan Edwards
    Aug 31, 2024
  3. Simon M

    Published poems by Veronica Ashenhurst, who has Severe ME

    Simon M, Oct 4, 2021 ... 2 3
    Replies:
    48
    Views:
    10,888
    Trish
    Oct 2, 2024
  4. Haveyoutriedyoga

    NHS England: Primary care patient safety strategy: Jess's Law 3 strikes and we rethink’.

    Haveyoutriedyoga, Oct 3, 2024
    Replies:
    4
    Views:
    915
    rvallee
    Oct 4, 2024
  5. mango

    A pilot self-advocacy program by Awareness for POTSies

    mango, Oct 11, 2024
    Replies:
    18
    Views:
    854
    Trish
    Oct 17, 2024
  6. Dolphin

    Fundraising for ME/CFS research - opportunities, problems

    Dolphin, Aug 14, 2019 ... 3 4 5
    Replies:
    81
    Views:
    11,048
    Dolphin
    Oct 25, 2024
  7. Hutan

    Using LinkedIn for advocacy campaigns

    Hutan, Nov 9, 2024
    Replies:
    5
    Views:
    626
    RainbowCloud
    Nov 10, 2024
  8. MSEsperanza

    Finding (patient) advocates and (civil) scientists on social media

    MSEsperanza, Nov 17, 2024
    Replies:
    10
    Views:
    861
    ME/CFS Skeptic
    Nov 24, 2024
  9. Dolphin

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Dolphin, Apr 8, 2022 ... 2 3 4
    Replies:
    63
    Views:
    9,373
    Dolphin
    Dec 19, 2024
  10. Sly Saint

    Why are the majority of pwME rarely mentioned?

    Sly Saint, Jan 18, 2019 ... 2 3
    Replies:
    54
    Views:
    12,059
    Sly Saint
    Jan 27, 2025
  11. Amw66

    Video query- Help appreciated

    Amw66, Feb 4, 2025
    Replies:
    7
    Views:
    384
    Amw66
    Feb 4, 2025
  12. Sly Saint

    Encyclopedia Britannica website: entry on CFS

    Sly Saint, Jan 10, 2022
    Replies:
    10
    Views:
    2,350
    forestglip
    Mar 18, 2025
  13. Hutan

    UK Action for ME - policies, actions and publications - discussion thread

    Hutan, Jul 26, 2021 ... 3 4 5
    Replies:
    82
    Views:
    5,999
    Sparkly Unicorn
    Mar 31, 2025
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