USA: News from #MEAction

[ahimsa]

This news is about getting a grant for one of #MEAction's projects mostly but my reason for posting it is mostly to let folks know about their planned project for emergency department guidelines. I think this was announced on Bluesky at one point but I could not find a separate news item on the #MEAction website.

Big News: $15K Matching Grant for Emergency Department Project

#MEAction has just launched an in-depth emergency department project with the urgent goal to develop clinical guidelines that improve how people with ME/CFS and Long COVID are treated in emergency settings.

Every day members of our community are harmed in emergency rooms because medical professionals are not adequately educated about infections-associated diseases - and we’re working to change that!

Thank you to each and every one of you who give your time, money and resources to #MEAction so we can make a difference in the lives of people with ME and Long COVID.

There is a fundraiser page with more information:

We all know how destabilizing the emergency room can be, especially for people with infection-associated chronic illnesses like ME/CFS and Long COVID. Concerns around receiving adequate and empathetic care are so profound that many avoid seeking emergency care when they need it most. That is a dangerous reality, and one we are determined to change.

#MEAction Scientific Director Jaime Seltzer and clinicians at the Mayo Clinic have already collected invaluable data to inform this work. Soon, we will be launching a survey to expand that evidence base, and we want you to be part of it.

Your experience matters: your responses will directly shape the guidelines we develop.