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  1. cassava7
    Thread

    The [ME/CFS] Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing..., 2021, van Campen et al

    The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during...
    Thread by: cassava7, Jun 19, 2021, 1 replies, in forum: BioMedical ME/CFS Research
  2. Andy
    Thread

    Pain Management through Neurocognitive Therapeutic Exercises in Hypermobile Ehlers–Danlos Syndrome Patients with Chronic Low Back Pain, 2021, Celletti

    Abstract Background. The hypermobile type of Ehlers–Danlos syndrome (hEDS) is likely the most common hereditary disorder of connective tissue...
    Thread by: Andy, Jun 19, 2021, 4 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  3. Andy
    Thread

    The Role of Cell Adhesion & Cytoskeleton Dynamics in the Pathogenesis of the Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders, 2021, Malek

    The Ehlers-Danlos syndromes (EDS) are a group of 13 disorders, clinically defined through features of joint hypermobility, skin...
    Thread by: Andy, Apr 22, 2021, 5 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  4. MeSci
    Thread

    Nil-by-mouth foodie: The chef who will never eat again - hypermobile Ehlers-Danlos Syndrome

    This is a long article about someone with EDS. Nil-by-mouth foodie: The chef who will never eat again - BBC News By Kirstie Brewer BBC News...
    Thread by: MeSci, Apr 18, 2021, 2 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  5. Andy
    Thread

    Ehlers–Danlos syndrome-associated craniocervical instability with cervicomedullary syndrome: Comparing outcome.., 2021, Spiessberger et al

    Full title: Ehlers–Danlos syndrome-associated craniocervical instability with cervicomedullary syndrome: Comparing outcome of craniocervical...
    Thread by: Andy, Apr 10, 2021, 0 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  6. Mij
    Thread

    Prevalence of gastrointestinal, cardiovascular, autonomic, and allergic... in hospitalized patients with EDS: a case... study, 2021, Brooks et al.

    Full title: Prevalence of gastrointestinal, cardiovascular, autonomic, and allergic manifestations in hospitalized patients with Ehlers-Danlos...
    Thread by: Mij, Jan 7, 2021, 0 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  7. Andy
    Thread

    Ehlers-Danlos Syndrome and Hypermobility Syndrome Compared with Other Common Chronic Pain Diagnoses, 2020, Molander et al

    Although chronic pain is common in patients with Ehlers-Danlos syndrome (EDS) and hypermobility syndromes (HMS), little is known about the...
    Thread by: Andy, Jul 11, 2020, 0 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  8. strategist
    Thread

    Dermal fibroblast-to-myofibroblast transition sustained by αvß3 integrin-ILK-Snail1/Slug signaling is a common feature for hEDS and HSD

    Hypermobile Ehlers-Danlos syndrome (hEDS) is a heritable connective tissue disorder with unknown molecular basis mainly characterized by...
    Thread by: strategist, Dec 21, 2019, 1 replies, in forum: Other Health News and Research
  9. Sly Saint
    Thread

    Article: Anti-vax, anti-science and the pitfalls of sharing a ‘rare’ condition with a celebrity, Nov 2019

    Aussie musician Sia announced on Twitter a few weeks ago that she’s been diagnosed with Ehlers-Danlos Syndrome (EDS), a condition I also have....
    Thread by: Sly Saint, Nov 27, 2019, 0 replies, in forum: Other Health News and Research
  10. Sarah94
    Thread

    Case report on rheumatological presentation of bartonella (Mozayeni et al, 2018)

    This case report describes infections with Bartonella koehlerae and Bartonella henselae in a female veterinarian whose symptoms were predominantly...
    Thread by: Sarah94, Jul 8, 2019, 1 replies, in forum: Other Health News and Research
  11. MSEsperanza
    Thread

    Mast cell activation syndrome: Importance of consensus criteria and call for research (J Allerg Clin Immunol), Valent et al 2018

    Mast cell activation syndrome: Importance of consensus criteria and call for research, Valent, Peter et al. 2018, Journal of Allergy and Clinical...
    Thread by: MSEsperanza, Jun 18, 2019, 20 replies, in forum: Immune: Autoimmune and Mast Cell Disorders
  12. Hutan
    Thread

    The phenotype of the musculocontractural type of Ehlers-Danlos syndrome, 2016, Janecke et al

    The Phenotype of the Musculocontractural Type of Ehlers-Danlos Syndrome due to CHST14 Mutations...
    Thread by: Hutan, Jun 17, 2019, 1 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  13. MeSci
    Thread

    Hidden disability: The young film-maker shining a light on hidden illness (EDS)

    With her blonde hair, youthful complexion and brown eyes, Ashleigh Harley looks every inch the model, social media influencer and budding writer...
    Thread by: MeSci, May 29, 2019, 5 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  14. Michiel Tack
    Thread

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Concerns about craniocervical instability surgery in ME/CFS CCI/AAI has little in common with ME/CFS Three ME/CFS patients, Jeff, Jennifer, and...
    Thread by: Michiel Tack, May 23, 2019, 1,464 replies, in forum: BioMedical ME/CFS News
  15. Milo
    Thread

    EDS, hypermobility, and the link, if any, to ME/CFS

    Moderator note: This post has been copied and posts responding to it have been moved from this thread: Jen Brea: My ME is in remission...
    Thread by: Milo, May 22, 2019, 107 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  16. Andy
    Thread

    Factors affecting quality of life in children and adolescents with hypermobile Ehlers-Danlos syndrome/hypermobility spectrum disorders,2019,Mu et al

    Abstract Hypermobile Ehlers‐Danlos syndrome (hEDS) is a hereditary disorder of connective tissue, often presenting with complex symptoms can...
    Thread by: Andy, Feb 2, 2019, 6 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  17. Liessa
    Thread

    Video: Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders

    Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders [MEDIA] First 20 minutes are an introduction and...
    Thread by: Liessa, Feb 1, 2019, 0 replies, in forum: Immune: Autoimmune and Mast Cell Disorders
  18. Daisybell
    Thread

    NZ Herald running a series on EDS

    The main paper in NZ is running a series of articles on people getting diagnosed with fictitious illness disorder. It seems to be people with EDS...
    Thread by: Daisybell, Dec 10, 2018, 28 replies, in forum: Other Health News and Research
  19. JenB
    Thread

    Treatment of ME patients in ERs and Hospitals

    Hi all! I'm working to improve the quality of information for patients with ME, fibro, EDS, POTS, mast cell activation disorder having surgery as...
    Thread by: JenB, Jul 27, 2018, 34 replies, in forum: General Advocacy Discussions
  20. Jonathan Edwards
    Thread

    EDS and ME - is there a connection?

    Moderator note: This thread has been split from...
    Thread by: Jonathan Edwards, Jan 20, 2018, 70 replies, in forum: Fibromyalgia and Connective Tissue Disorders
Showing results 1 to 20 of 21
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