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  1. SNT Gatchaman
    Thread

    Hereditary Connective Tissue Diseases and Risk of Post-Acute SARS-CoV-2, 2024, Bartlett et al.

    Hereditary Connective Tissue Diseases and Risk of Post-Acute SARS-CoV-2 Bartlett, Maggie L.; Sova, Daniel; Jain, Mahim We completed a...
    Thread by: SNT Gatchaman, Mar 30, 2024, 5 replies, in forum: Long Covid research
  2. SNT Gatchaman
    Thread

    Hemostatic abnormalities in patients with Ehlers–Danlos syndrome, 2018, Artoni et al.

    Hemostatic abnormalities in patients with Ehlers–Danlos syndrome A. Artoni; A. Bassotti; M. Abbattista; B. Marinelli; A. Lecchi; F. Gianniello; M....
    Thread by: SNT Gatchaman, Sep 6, 2023, 11 replies, in forum: 'Conditions related to ME/CFS' news and research
  3. SNT Gatchaman
    Thread

    Characterization of bleeding symptoms in Ehlers–Danlos syndrome, 2023, Kumskova et al.

    Characterization of bleeding symptoms in Ehlers–Danlos syndrome Mariia Kumskova; Gagan D. Flora; Janice Staber; Steven R. Lentz; Anil K. Chauhan...
    Thread by: SNT Gatchaman, Sep 6, 2023, 1 replies, in forum: 'Conditions related to ME/CFS' news and research
  4. SNT Gatchaman
    Thread

    NZ Herald - Ehlers-Danlos Syndrome: Germany treatment for Hastings teen

    Ehlers-Danlos Syndrome: Germany treatment for Hastings teen - ‘If we don’t go, I one hundred per cent believe Jaimee will die’ The Hastings girl...
    Thread by: SNT Gatchaman, Jun 17, 2023, 0 replies, in forum: Other health news and research
  5. Sly Saint
    Thread

    High overlap in patients diagnosed with hypermobile Ehlers-Danlos syndrome or hypermobile spectrum disorders with fibromyalgia..2023,Fairweather et al

    High overlap in patients diagnosed with hypermobile Ehlers-Danlos syndrome or hypermobile spectrum disorders with fibromyalgia and 40...
    Thread by: Sly Saint, Apr 26, 2023, 2 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  6. SNT Gatchaman
    Thread

    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO, 2021, Hakim et al.

    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO Alan J. Hakim; Brad T. Tinkle;...
    Thread by: SNT Gatchaman, Apr 1, 2023, 2 replies, in forum: 'Conditions related to ME/CFS' news and research
  7. Binkie4
    Thread

    Covid-19 and Ehlers-Danlos syndrome, 2023, Fajloun et al

    I came across this. COVID-19 and Ehlers-Danlos Syndrome: The Dangers of the Spike Protein of SARS-CoV-2 This article describes the effect of...
    Thread by: Binkie4, Feb 11, 2023, 4 replies, in forum: Long Covid research
  8. Andy
    Thread

    RNA-Seq of Dermal Fibroblasts from Patients with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders Supports.. 2022 Ritelli et al

    Full title: RNA-Seq of Dermal Fibroblasts from Patients with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders Supports...
    Thread by: Andy, Jan 3, 2023, 0 replies, in forum: Other health news and research
  9. Sly Saint
    Thread

    Revenge of the gaslit patients: Now, as scientists, they’re tackling Ehlers-Danlos syndromes

    Type “Ehlers-Danlos syndromes” into a search engine, and multiple suggestions pop up. Is Ehlers-Danlos an autoimmune disease? Is EDS hereditary?...
    Thread by: Sly Saint, Dec 13, 2022, 1 replies, in forum: Other health news and research
  10. MeSci
    Thread

    EDS sufferer to study medicine after long wait for correct diagnosis

    For years, Suffolk teenager Katy Shaw's symptoms were either misdiagnosed or not believed. Eventually she was found to have a genetic disorder...
    Thread by: MeSci, Sep 29, 2022, 5 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  11. Wyva
    Thread

    Co-morbidities - prevalence in people with ME/CFS

    Post copied from this thread: EDS, hypermobility, and the link, if any, to ME/CFS I didn't know where to post this, but the ME Association had an...
    Thread by: Wyva, Jul 25, 2022, 15 replies, in forum: General and other signs and symptoms
  12. Andy
    Thread

    Pain and fatigue in adults with Loeys–Dietz syndrome and vascular Ehlers–Danlos syndrome, a questionnaire-based study, 2022, Johansen et al

    Abstract The purpose was to study self-reported chronic pain and fatigue symptoms among adults with molecularly verified Loeys–Dietz and vascular...
    Thread by: Andy, Jun 11, 2022, 2 replies, in forum: Other health news and research
  13. Milo
    Thread

    Autonomic Dysfunction in Autism Spectrum Disorder (2021) Owens et al.

    This came into my mailbox. i thought i’d share. Full text here . Interestingly the authors are affiliated to King’s College in London. Abstract...
    Thread by: Milo, Jan 19, 2022, 3 replies, in forum: 'Conditions related to ME/CFS' news and research
  14. cassava7
    Thread

    The [ME/CFS] Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing..., 2021, van Campen et al

    The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during...
    Thread by: cassava7, Jun 19, 2021, 1 replies, in forum: ME/CFS research
  15. Andy
    Thread

    Pain Management through Neurocognitive Therapeutic Exercises in Hypermobile Ehlers–Danlos Syndrome Patients with Chronic Low Back Pain, 2021, Celletti

    Abstract Background. The hypermobile type of Ehlers–Danlos syndrome (hEDS) is likely the most common hereditary disorder of connective tissue...
    Thread by: Andy, Jun 19, 2021, 4 replies, in forum: 'Conditions related to ME/CFS' news and research
  16. Andy
    Thread

    The Role of Cell Adhesion & Cytoskeleton Dynamics in the Pathogenesis of the Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders, 2021, Malek

    The Ehlers-Danlos syndromes (EDS) are a group of 13 disorders, clinically defined through features of joint hypermobility, skin...
    Thread by: Andy, Apr 22, 2021, 5 replies, in forum: 'Conditions related to ME/CFS' news and research
  17. MeSci
    Thread

    Nil-by-mouth foodie: The chef who will never eat again - hypermobile Ehlers-Danlos Syndrome

    This is a long article about someone with EDS. Nil-by-mouth foodie: The chef who will never eat again - BBC News By Kirstie Brewer BBC News...
    Thread by: MeSci, Apr 18, 2021, 2 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  18. Andy
    Thread

    Ehlers–Danlos syndrome-associated craniocervical instability with cervicomedullary syndrome: Comparing outcome.., 2021, Spiessberger et al

    Full title: Ehlers–Danlos syndrome-associated craniocervical instability with cervicomedullary syndrome: Comparing outcome of craniocervical...
    Thread by: Andy, Apr 10, 2021, 0 replies, in forum: 'Conditions related to ME/CFS' news and research
  19. Mij
    Thread

    Prevalence of gastrointestinal, cardiovascular, autonomic, and allergic... in hospitalized patients with EDS: a case... study, 2021, Brooks et al.

    Full title: Prevalence of gastrointestinal, cardiovascular, autonomic, and allergic manifestations in hospitalized patients with Ehlers-Danlos...
    Thread by: Mij, Jan 7, 2021, 0 replies, in forum: 'Conditions related to ME/CFS' news and research
  20. Andy
    Thread

    Ehlers-Danlos Syndrome and Hypermobility Syndrome Compared with Other Common Chronic Pain Diagnoses, 2020, Molander et al

    Although chronic pain is common in patients with Ehlers-Danlos syndrome (EDS) and hypermobility syndromes (HMS), little is known about the...
    Thread by: Andy, Jul 11, 2020, 0 replies, in forum: 'Conditions related to ME/CFS' news and research
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