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  1. Andy
    Thread

    RNA-Seq of Dermal Fibroblasts from Patients with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders Supports.. 2022 Ritelli et al

    Full title: RNA-Seq of Dermal Fibroblasts from Patients with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders Supports...
    Thread by: Andy, Jan 3, 2023, 0 replies, in forum: Other health news and research
  2. Sly Saint
    Thread

    Revenge of the gaslit patients: Now, as scientists, they’re tackling Ehlers-Danlos syndromes

    Type “Ehlers-Danlos syndromes” into a search engine, and multiple suggestions pop up. Is Ehlers-Danlos an autoimmune disease? Is EDS hereditary?...
    Thread by: Sly Saint, Dec 13, 2022, 0 replies, in forum: Other health news and research
  3. MeSci
    Thread

    EDS sufferer to study medicine after long wait for correct diagnosis

    For years, Suffolk teenager Katy Shaw's symptoms were either misdiagnosed or not believed. Eventually she was found to have a genetic disorder...
    Thread by: MeSci, Sep 29, 2022, 5 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  4. Wyva
    Thread

    Co-morbidities - prevalence in people with ME/CFS

    Post copied from this thread: EDS, hypermobility, and the link, if any, to ME/CFS I didn't know where to post this, but the ME Association had an...
    Thread by: Wyva, Jul 25, 2022, 15 replies, in forum: General and other signs and symptoms
  5. Andy
    Thread

    Pain and fatigue in adults with Loeys–Dietz syndrome and vascular Ehlers–Danlos syndrome, a questionnaire-based study, 2022, Johansen et al

    Abstract The purpose was to study self-reported chronic pain and fatigue symptoms among adults with molecularly verified Loeys–Dietz and vascular...
    Thread by: Andy, Jun 11, 2022, 2 replies, in forum: Other health news and research
  6. Milo
    Thread

    Autonomic Dysfunction in Autism Spectrum Disorder (2021) Owens et al.

    This came into my mailbox. i thought i’d share. Full text here . Interestingly the authors are affiliated to King’s College in London. Abstract...
    Thread by: Milo, Jan 19, 2022, 3 replies, in forum: 'Conditions related to ME/CFS' news and research
  7. cassava7
    Thread

    The [ME/CFS] Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing..., 2021, van Campen et al

    The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during...
    Thread by: cassava7, Jun 19, 2021, 1 replies, in forum: ME/CFS research
  8. Andy
    Thread

    Pain Management through Neurocognitive Therapeutic Exercises in Hypermobile Ehlers–Danlos Syndrome Patients with Chronic Low Back Pain, 2021, Celletti

    Abstract Background. The hypermobile type of Ehlers–Danlos syndrome (hEDS) is likely the most common hereditary disorder of connective tissue...
    Thread by: Andy, Jun 19, 2021, 4 replies, in forum: 'Conditions related to ME/CFS' news and research
  9. Andy
    Thread

    The Role of Cell Adhesion & Cytoskeleton Dynamics in the Pathogenesis of the Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders, 2021, Malek

    The Ehlers-Danlos syndromes (EDS) are a group of 13 disorders, clinically defined through features of joint hypermobility, skin...
    Thread by: Andy, Apr 22, 2021, 5 replies, in forum: 'Conditions related to ME/CFS' news and research
  10. MeSci
    Thread

    Nil-by-mouth foodie: The chef who will never eat again - hypermobile Ehlers-Danlos Syndrome

    This is a long article about someone with EDS. Nil-by-mouth foodie: The chef who will never eat again - BBC News By Kirstie Brewer BBC News...
    Thread by: MeSci, Apr 18, 2021, 2 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  11. Andy
    Thread

    Ehlers–Danlos syndrome-associated craniocervical instability with cervicomedullary syndrome: Comparing outcome.., 2021, Spiessberger et al

    Full title: Ehlers–Danlos syndrome-associated craniocervical instability with cervicomedullary syndrome: Comparing outcome of craniocervical...
    Thread by: Andy, Apr 10, 2021, 0 replies, in forum: 'Conditions related to ME/CFS' news and research
  12. Mij
    Thread

    Prevalence of gastrointestinal, cardiovascular, autonomic, and allergic... in hospitalized patients with EDS: a case... study, 2021, Brooks et al.

    Full title: Prevalence of gastrointestinal, cardiovascular, autonomic, and allergic manifestations in hospitalized patients with Ehlers-Danlos...
    Thread by: Mij, Jan 7, 2021, 0 replies, in forum: 'Conditions related to ME/CFS' news and research
  13. Andy
    Thread

    Ehlers-Danlos Syndrome and Hypermobility Syndrome Compared with Other Common Chronic Pain Diagnoses, 2020, Molander et al

    Although chronic pain is common in patients with Ehlers-Danlos syndrome (EDS) and hypermobility syndromes (HMS), little is known about the...
    Thread by: Andy, Jul 11, 2020, 0 replies, in forum: 'Conditions related to ME/CFS' news and research
  14. strategist
    Thread

    Dermal fibroblast-to-myofibroblast transition sustained by αvß3 integrin-ILK-Snail1/Slug signaling is a common feature for hEDS and HSD

    Hypermobile Ehlers-Danlos syndrome (hEDS) is a heritable connective tissue disorder with unknown molecular basis mainly characterized by...
    Thread by: strategist, Dec 21, 2019, 1 replies, in forum: Other health news and research
  15. Sly Saint
    Thread

    Article: Anti-vax, anti-science and the pitfalls of sharing a ‘rare’ condition with a celebrity, Nov 2019

    Aussie musician Sia announced on Twitter a few weeks ago that she’s been diagnosed with Ehlers-Danlos Syndrome (EDS), a condition I also have....
    Thread by: Sly Saint, Nov 27, 2019, 0 replies, in forum: Other health news and research
  16. Dolphin
    Thread

    "Ehlers-Danlos syndromes: new labels confuse everyone", 2019, Williams, letter to BMJ, includes comments about CFS

    https://www.bmj.com/content/367/bmj.l6095.full Extract: My concern is that hypermobile EDS, often self diagnosed, sits alongside chronic fatigue...
    Thread by: Dolphin, Oct 30, 2019, 17 replies, in forum: General ME/CFS news
  17. Jaybee00
    Thread

    Lucky Dog Show—EDS episode

    Saw this on TV by chance. Found it on the internet. [MEDIA] [SPOILER]
    Thread by: Jaybee00, Sep 14, 2019, 0 replies, in forum: Other health news and research
  18. Sarah94
    Thread

    Case report on rheumatological presentation of bartonella (Mozayeni et al, 2018)

    This case report describes infections with Bartonella koehlerae and Bartonella henselae in a female veterinarian whose symptoms were predominantly...
    Thread by: Sarah94, Jul 8, 2019, 1 replies, in forum: Other health news and research
  19. MSEsperanza
    Thread

    Mast cell activation syndrome: Importance of consensus criteria and call for research (J Allerg Clin Immunol), Valent et al 2018

    Mast cell activation syndrome: Importance of consensus criteria and call for research, Valent, Peter et al. 2018, Journal of Allergy and Clinical...
    Thread by: MSEsperanza, Jun 18, 2019, 20 replies, in forum: Immune: Autoimmune and Mast Cell Disorders
  20. Hutan
    Thread

    The phenotype of the musculocontractural type of Ehlers-Danlos syndrome, 2016, Janecke et al

    The Phenotype of the Musculocontractural Type of Ehlers-Danlos Syndrome due to CHST14 Mutations...
    Thread by: Hutan, Jun 17, 2019, 1 replies, in forum: 'Conditions related to ME/CFS' news and research
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