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survey

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  1. Sly Saint
    Thread

    Survey: what explanations GPs use for conditions that have no agreed biomedical cause and the impact of those explanations on social support & stigma.

    [MEDIA]
    Thread by: Sly Saint, Aug 2, 2021 at 2:11 PM, 7 replies, in forum: General ME/CFS News
  2. Wyva
    Thread

    EMEA Pan-European ME Patient Survey

    (I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do...
    Thread by: Wyva, May 11, 2021, 39 replies, in forum: General ME/CFS News
  3. MatthiasRiem
    Thread

    '"Together against Post-Covid" Initiative' (survey), University Hospital Tübingen (Germany), May 2021

    At University Hospital Tübingen, Germany, a "group of scientists from various disciplines interested in questions regarding Post-Covid that are...
    Thread by: MatthiasRiem, May 6, 2021, 1 replies, in forum: Epidemics (including Covid-19)
  4. Wyva
    Thread

    Specifics of chronic fatigue syndrome coping strategies identified in a French flash survey during the COVID‐19 containment, 2021, Moncorps et al

    Abstract The COVID‐19 pandemic has focused health systems on supporting patients affected by this virus. Meanwhile in the community, many other...
    Thread by: Wyva, Apr 8, 2021, 31 replies, in forum: PsychoSocial ME/CFS Research
  5. John Mac
    Thread

    ME/CFS European Comparison Survey - SmartSurvey. Professor Derek Phelby 2020

    We very much appreciate your help with this brief survey, which should not take you more than ten minutes to complete. To participate, you should...
    Thread by: John Mac, Oct 20, 2020, 11 replies, in forum: General ME/CFS News
  6. Tom Kindlon
    Thread

    Emerge Australia Health and Wellbeing Survey 2019

    https://www.emerge.org.au/health-and-wellbeing-survey-2019 [MEDIA] [MEDIA]
    Thread by: Tom Kindlon, Oct 3, 2020, 5 replies, in forum: General ME/CFS News
  7. Andy
    Thread

    COVID-19 Patient Experience Survey #2

    Following up with our previous survey, we are launching our new study, which will be examining antibody testing results, wider and more detailed...
    Thread by: Andy, Sep 9, 2020, 2 replies, in forum: Epidemics (including Covid-19)
  8. Sly Saint
    Thread

    Open Canada (BC) Calling all physicians, specialists, allied health, clinical operations leads, and other clinicians!July 2020

    Dr. Hilary Robertson (ME|FM Society of BC) and Dr. Luis Nacul (BC Women’s Hospital’s Complex Chronic Diseases Program) would like to invite you to...
    Thread by: Sly Saint, Jul 8, 2020, 0 replies, in forum: Recruitment into current ME/CFS research studies
  9. Sly Saint
    Thread

    Australia - Survey 'Making the invisible visible: investigating the views and experiences of frail, homebound and bedridden people' 2020

    Before COVID-19, some members of our Australian community have been living with several health issues that do not allow them to leave their houses...
    Thread by: Sly Saint, Jul 2, 2020, 0 replies, in forum: General ME/CFS News
  10. rvallee
    Thread

    Rename Pain Catastrophizing (Stanford study/survey)

    A project from what seems to be the Stanford Division of Pain Medicine surveying the patient community over the notion of pain catastrophising and...
    Thread by: rvallee, May 30, 2020, 11 replies, in forum: Health News and Research unrelated to ME/CFS
  11. Andy
    Thread

    Survey: Doctors' Knowledge and Understanding of Myalgic Encephalomyelitis, UK, 2018, Hng

    Originally intended to be published in a journal, Dr Hng has decided instead to release this into the public domain. Introduction It has long...
    Thread by: Andy, May 1, 2020, 16 replies, in forum: General ME/CFS News
  12. Sly Saint
    Thread

    EMEA News Q1 2020 RESEARCH ON COVID-19 AMONG ME/CFS PATIENTS

    Our Dutch colleagues in ME/CVS Stichting Nederland have been working on a questionnaire that they wish to send out to as many ME patients as...
    Thread by: Sly Saint, Apr 13, 2020, 1 replies, in forum: Epidemics (including Covid-19)
  13. wigglethemouse
    Thread

    Caregiver Survey During COVID-19 (Stanford, Apr 2020)

    Stanford have a study to look at the effect of care giving during COVID-19 pandemic. It doesn't have to be of someone with COVID-19. This is a...
    Thread by: wigglethemouse, Apr 5, 2020, 2 replies, in forum: Epidemics (including Covid-19)
  14. Trish
    Thread

    International Survey on Coronavirus

    http://covid19-survey.org/ International Survey on Coronavirus An international team of researchers from ten different institutions, including...
    Thread by: Trish, Mar 21, 2020, 3 replies, in forum: Epidemics (including Covid-19)
  15. Michiel Tack
    Thread

    EFNA survey on stigma experienced by people living with neurological disorders

    [MEDIA]
    Thread by: Michiel Tack, Mar 16, 2020, 6 replies, in forum: General disability topics and advocacy
  16. Sly Saint
    Thread

    Scottish Health Council:Gathering public experience of Myalgic Encephalomyelitis (ME) survey: Feb 2020

    I just came across this survey but I can't see when it's from or how it came about. North Ayrshire HSCP @NAHSCP Are you living with a...
    Thread by: Sly Saint, Feb 11, 2020, 24 replies, in forum: General ME/CFS News
  17. Sly Saint
    Thread

    Gulf War Illness Symptom Severity and Onset: A Cross-Sectional Survey : Baraniuk et al Feb 2020

    Cayla M Fappiano, USAF, James N Baraniuk, MD Abstract Introduction: Gulf War illness (GWI) affects 25 to 32% of the 693,826 veterans of the...
    Thread by: Sly Saint, Feb 3, 2020, 0 replies, in forum: Health News and Research unrelated to ME/CFS
  18. InfiniteRubix
    Thread

    Closed New undergraduate research on the sociology of ME

    Hi all, Please consider completing this research survey from Marta Encefalomielitis Miálgica on Facebook's son : Hello! I am a fourth-year...
    Thread by: InfiniteRubix, Feb 1, 2020, 12 replies, in forum: Recruitment into current ME/CFS research studies
  19. Andy
    Thread

    Closed England & Wales: Survey: Involving adults with severe ME/CFS symptoms in developing a NICE guideline on ME/CFS

    You are being invited to take part in a research study to explore the views and needs of patients with severe ME/CFS. This project has been...
    Thread by: Andy, Nov 14, 2019, 25 replies, in forum: Recruitment into current ME/CFS research studies
  20. Trish
    Thread

    Open letter to Dr Peter Fisher, Liverpool University, about a research survey on emotional distress and CFS. 2019

    I wrote this personal open letter as a response to taking a survey detailed on this thread. University of Liverpool survey: 'Emotional Distress in...
    Thread by: Trish, Nov 7, 2019, 36 replies, in forum: Open Letters and Replies
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