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  1. Sly Saint
    Thread

    Long COVID quality of life and healthcare experiences in the UK: a mixed method online survey 2023,Owen et al

    Abstract Purpose The complexity of long COVID and its diverse symptom profile contributes to unprecedented challenges for patients, clinicians,...
    Thread by: Sly Saint, Sep 23, 2023, 0 replies, in forum: Long Covid research
  2. Sly Saint
    Thread

    Psychiatrists’ attitudes towards functional neurological disorders: results from a national survey 2023, Marotta et al

    Introduction: Functional neurological disorder (FND) presents motor, sensory, and cognitive symptoms characterized by clinical signs incongruent...
    Thread by: Sly Saint, Jul 25, 2023, 3 replies, in forum: Other psychosomatic news and research
  3. Trish
    Thread

    First major survey of doctors with Long Covid reveals debilitating impact on health, life and work, 2023, BMA media team

    First major survey of doctors with Long Covid reveals debilitating impact on health, life and work by BMA media team Press release from the BMA...
    Thread by: Trish, Jul 4, 2023, 13 replies, in forum: Long Covid news
  4. rvallee
    Thread

    Community survey of Long Covid clinics for children (by Long Covid Kids)

    https://www.longcovidkids.org/post/feedback-on-the-long-covid-clinics-preliminary-healthcare-experiences-survey-findings Long Covid Kids is an...
    Thread by: rvallee, May 21, 2023, 1 replies, in forum: Long Covid research
  5. Wyva
    Thread

    Impact of the COVID-19 pandemic on clinical autonomic practice in Europe A survey of the European Academy of Neurology and(...), 2023, Fanciulli et al

    Full title: Impact of the COVID-19 pandemic on clinical autonomic practice in Europe A survey of the European Academy of Neurology (EAN) and the...
    Thread by: Wyva, Mar 21, 2023, 1 replies, in forum: Long Covid research
  6. Simone
    Thread

    Impact of COVID infection on ME/CFS: surveys

    Hi everyone, I’m interested in any research or surveys which track the impact of a COVID infection on ME/CFS symptoms and/or functioning. I’ve...
    Thread by: Simone, Jan 17, 2023, 6 replies, in forum: General ME/CFS discussion
  7. shak8
    Thread

    Jarred Younger Lab: New Chronic Disease Survey using machine learning (December 2022)

    Here is the email I received from the Younger lab with the link to the survey and nothing about your data privacy (which I then asked Younger to...
    Thread by: shak8, Dec 20, 2022, 10 replies, in forum: 'Conditions related to ME/CFS' news and research
  8. Daisy
    Thread

    United Kingdom: Suffolk & North East Essex (SNEE) Service Development

    Work is continuing to develop a new M.E. and CFS Service in Suffolk and North East Essex. A survey has been created which is focused on...
    Thread by: Daisy, Nov 7, 2022, 0 replies, in forum: News from organisations
  9. Dolphin
    Thread

    (Europe) COVID-19 impact on healthcare management of people with chronic diseases

    I haven't fill this in myself so far. https://www.surveymonkey.com/r/8NWFDC2 COVID-19 impact on healthcare management of people with chronic...
    Thread by: Dolphin, Sep 13, 2022, 4 replies, in forum: Other health news and research
  10. John Mac
    Thread

    ME/CFS - course of illness survey, 2022, Norwegian ME Association, open to all

    Post copied from the News from Scandinavia thread Survey by the Norwegian ME Association. From OMF email: This survey is in English and is open...
    Thread by: John Mac, Sep 9, 2022, 15 replies, in forum: Advocacy Action Alerts
  11. Wyva
    Thread

    “I feel like my body is broken”: Exploring the experiences of people living with long COVID, 2022, Wurz et al

    Abstract Background: Long COVID, an illness affecting a subset of individuals after COVID-19, is distressing and poorly understood. Exploring the...
    Thread by: Wyva, Jan 25, 2022, 2 replies, in forum: Long Covid research
  12. Wyva
    Thread

    Online survey of the use of Transcutaneous Nerve Stimulation for ME/CFS, 2022, Physios for ME

    This post has been copied and following posts moved from this thread: Physios for ME [MEDIA]
    Thread by: Wyva, Jan 14, 2022, 29 replies, in forum: Recruitment into current ME/CFS research studies
  13. Andy
    Thread

    UK: Call for action on ‘unique’ barriers facing people with energy-limiting impairments

    "A major survey has shown the significant – and often unique – barriers faced by people with energy-limiting conditions (ELC). Nearly every...
    Thread by: Andy, Dec 20, 2021, 1 replies, in forum: General disability topics and advocacy
  14. ME/CFS Skeptic
    Thread

    Analyzing ordinal data with metric models: What could possibly go wrong?, Liddell et al. 2018

    Abstract We surveyed all articles in the Journal of Personality and Social Psychology (JPSP), Psychological Science (PS), and the Journal of...
    Thread by: ME/CFS Skeptic, Nov 26, 2021, 31 replies, in forum: Research methodology news and research
  15. Andy
    Thread

    UK: Work and Pensions Committee inquiry: Health assessments for benefits, 2021

    From a Chronic Illness Inclusion email; Focus groups on disability benefit assessments Chronic Illness Inclusion wants to hear your experiences...
    Thread by: Andy, Nov 19, 2021, 7 replies, in forum: General disability topics and advocacy
  16. Hutan
    Thread

    New Zealand: Covid-19 vaccinations for people with ME/CFS

    Posts consolidated from a number of threads - apologies if the posts do not completely flow Covid-19 vaccination experiences News from...
    Thread by: Hutan, Oct 25, 2021, 85 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  17. Andy
    Thread

    Open International: Dr. Todd Davenport, PEM/PESE Activity Survey Study, Nov 2021

    "You are invited to participate in a research study. The purpose of this study is to determine how well we can measure self-rated function in...
    Thread by: Andy, Nov 12, 2021, 25 replies, in forum: Recruitment into current ME/CFS research studies
  18. ahimsa
    Thread

    USA: News from #MEAction

    This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December...
    Thread by: ahimsa, Nov 9, 2017, 134 replies, in forum: News from organisations
  19. Andy
    Thread

    UK: The Neurological Alliance: "My Neuro" survey, 2021 (close 6th Feb 2022)

    From the website: Support #MyNeuroSurvey and help improve neuro services Take My Neuro Survey online here. Take My Neuro Survey now Or call the...
    Thread by: Andy, Oct 25, 2021, 8 replies, in forum: General ME/CFS news
  20. Kalliope
    Thread

    "Can someone as Young as You Really Feel That Much Pain?" - A survey on How People With Fibromyalgia Experience Healthcare in Sweden, 2021, Hasselroth

    SAGE Open Nursing "Can Someone as Young as You Really Feel That Much Pain?" - A Survey on How People With Fibromyalgia Experience Healthcare in...
    Thread by: Kalliope, Oct 11, 2021, 17 replies, in forum: 'Conditions related to ME/CFS' news and research
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