survey

Abstract: Background/Objectives: Patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) may report abnormalities in voice and speech; however, no formal research has been conducted in this area. Methods: An online mixed-methods survey was completed by 687 people with ME/CFS...

Full title: Understanding symptom clusters, diagnosis and healthcare experiences in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a cross-sectional survey in the UK Maedeh Mansoubi, Thomas Richards, Martine Ainsworth-Wells, Russell Fleming, Phaedra Leveridge, Charles...

Abstract Background: This study aims to explore the perceptions and clinical approaches of pain management specialists toward myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a condition characterized by persistent fatigue, widespread pain, unrefreshing sleep, and autonomic...

Evaluation of a survey exploring the experiences of adults and children with ME/CFS who have participated in CBT and GET interventional programmes https://www.meaction.net/wp-content/uploads/2019/04/NICE-Patient-Survey-Outcomes-CBT-and-GET-Oxford-Brookes-Full-Report-03.04.19.pdf FINAL REPORT...

Abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a medical condition characterized by severe and prolonged fatigue that is not relieved by rest or attributed to any underlying medical or psychological condition. Individuals with CFS/ME are considered to have an...

Behavior Assessment System for Children, Parent Rating Scales (BASC- PRS) is being used by a current study investigating omics in young people with ME/CFS. I thought it would be useful to have a closer look at it. It is a 173 item survey that parents fill out about their child. It costs over...

[I was told this survey is quite long, like over an hour, but can be paused at any time. It’s also open to people outside of austria] https://s2survey.net/pais/index.php?l=eng&q=base&htR=AwA%3D The Following are quotes: What do we want to achieve with this study? This study, sponsored by the...

Background: The high global burden of Long Covid (LC) has significant implications for population wellbeing, healthcare, social care and national economies. Aim: To explore associations between patient sociodemographic and health characteristics with two outcomes: reporting having LC and...

part of the 10 year reform plan for the NHS. Survey etc Change NHS

Post copied from MEA news. From the MEA's latest newsletter: MEA link: https://meassociation.org.uk/6dso Survey: https://forms.gle/TsQBGBYKxMGeb1eS6

Abstract Background Individuals may experience a range of symptoms after the clearance of the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection. This condition is termed long COVID (LC) or Post-COVID-19 condition (PCC). Despite the appreciable number of symptoms documented...

Just completed this John Hopkins long covid study survey. I think it’s worth filling out if you can manage: https://covid-long.com/ should take 10-30 min.

Full title: Evaluation of Tools to Assess Symptoms and Symptom Severity in Patients With Medically Unexplained Physical Symptoms: A Systematic Review and Narrative Synthesis Abstract A substantial portion of patients presenting to healthcare settings exhibit physical symptoms lacking clear...

Fear of COVID fades even as virus remains a ‘significant threat,’ survey reveals https://www.sfchronicle.com/health/article/survey-covid-fear-fades-even-virus-remains-18940241.php

Abstract Purpose The complexity of long COVID and its diverse symptom profile contributes to unprecedented challenges for patients, clinicians, and healthcare services. The threat of long COVID remains ignored by Governments, the media and public health messaging, and patients’ experiences must...

Introduction: Functional neurological disorder (FND) presents motor, sensory, and cognitive symptoms characterized by clinical signs incongruent with known neurological disease. Together with other health professionals, like neurologists, psychiatrists can play an essential role in diagnosing...

First major survey of doctors with Long Covid reveals debilitating impact on health, life and work by BMA media team Press release from the BMA Location: UK Published: Tuesday 4 July 2023 Key findings include: Doctors reported a wide range of symptoms, including fatigue, headaches, muscular...

https://www.longcovidkids.org/post/feedback-on-the-long-covid-clinics-preliminary-healthcare-experiences-survey-findings Long Covid Kids is an informal group of parents and others supporting or caring for children sick with LC. This isn't a formal survey, but it seems to have been necessary...

Full title: Impact of the COVID-19 pandemic on clinical autonomic practice in Europe A survey of the European Academy of Neurology (EAN) and the European Federation of Autonomic Societies (EFAS) Abstract Objective To investigate the impact of the coronavirus-disease-2019 (COVID-19) pandemic...

Hi everyone, I’m interested in any research or surveys which track the impact of a COVID infection on ME/CFS symptoms and/or functioning. I’ve found this Dutch survey, but the results are focussed on the impact of the pandemic more broadly, rather than the impact of a COVID infection. Does...