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Emerge Australia Health and Wellbeing Survey 2019

https://www.emerge.org.au/health-and-wellbeing-survey-2019 [MEDIA] [MEDIA]

Thread by: Tom Kindlon, Oct 3, 2020, 5 replies, in forum: General ME/CFS News
Thread
COVID-19 Patient Experience Survey #2

Following up with our previous survey, we are launching our new study, which will be examining antibody testing results, wider and more detailed...

Thread by: Andy, Sep 9, 2020, 2 replies, in forum: Epidemics (including Covid-19)
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Open Canada (BC) Calling all physicians, specialists, allied health, clinical operations leads, and other clinicians!July 2020

Dr. Hilary Robertson (ME|FM Society of BC) and Dr. Luis Nacul (BC Women’s Hospital’s Complex Chronic Diseases Program) would like to invite you to...

Thread by: Sly Saint, Jul 8, 2020, 0 replies, in forum: Recruitment into current ME/CFS research studies
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Australia - Survey 'Making the invisible visible: investigating the views and experiences of frail, homebound and bedridden people' 2020

Before COVID-19, some members of our Australian community have been living with several health issues that do not allow them to leave their houses...

Thread by: Sly Saint, Jul 2, 2020, 0 replies, in forum: General ME/CFS News
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Rename Pain Catastrophizing (Stanford study/survey)

A project from what seems to be the Stanford Division of Pain Medicine surveying the patient community over the notion of pain catastrophising and...

Thread by: rvallee, May 30, 2020, 11 replies, in forum: Health News and Research unrelated to ME/CFS
Thread
EMEA News Q1 2020 RESEARCH ON COVID-19 AMONG ME/CFS PATIENTS

Our Dutch colleagues in ME/CVS Stichting Nederland have been working on a questionnaire that they wish to send out to as many ME patients as...

Thread by: Sly Saint, Apr 13, 2020, 1 replies, in forum: Epidemics (including Covid-19)
Thread
Caregiver Survey During COVID-19 (Stanford, Apr 2020)

Stanford have a study to look at the effect of care giving during COVID-19 pandemic. It doesn't have to be of someone with COVID-19. This is a...

Thread by: wigglethemouse, Apr 5, 2020, 2 replies, in forum: Epidemics (including Covid-19)
Thread
International Survey on Coronavirus

http://covid19-survey.org/ International Survey on Coronavirus An international team of researchers from ten different institutions, including...

Thread by: Trish, Mar 21, 2020, 3 replies, in forum: Epidemics (including Covid-19)
Thread
EFNA survey on stigma experienced by people living with neurological disorders

[MEDIA]

Thread by: Michiel Tack, Mar 16, 2020, 6 replies, in forum: General disability topics and advocacy
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Scottish Health Council:Gathering public experience of Myalgic Encephalomyelitis (ME) survey: Feb 2020

I just came across this survey but I can't see when it's from or how it came about. North Ayrshire HSCP @NAHSCP Are you living with a...

Thread by: Sly Saint, Feb 11, 2020, 24 replies, in forum: General ME/CFS News
Thread
Gulf War Illness Symptom Severity and Onset: A Cross-Sectional Survey : Baraniuk et al Feb 2020

Cayla M Fappiano, USAF, James N Baraniuk, MD Abstract Introduction: Gulf War illness (GWI) affects 25 to 32% of the 693,826 veterans of the...

Thread by: Sly Saint, Feb 3, 2020, 0 replies, in forum: Health News and Research unrelated to ME/CFS
Thread
Closed New undergraduate research on the sociology of ME

Hi all, Please consider completing this research survey from Marta Encefalomielitis Miálgica on Facebook's son : Hello! I am a fourth-year...

Thread by: InfiniteRubix, Feb 1, 2020, 12 replies, in forum: Recruitment into current ME/CFS research studies
Thread
Open letter to Dr Peter Fisher, Liverpool University, about a research survey on emotional distress and CFS. 2019

I wrote this personal open letter as a response to taking a survey detailed on this thread. University of Liverpool survey: 'Emotional Distress in...

Thread by: Trish, Nov 7, 2019, 36 replies, in forum: Open Letters and Replies
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Your experience of ME services - #MEAction UK survey report concludes services 'not fit for purpose'

Your experience of ME services - Survey report by #MEAction UK Article:...

Thread by: Gecko, Oct 17, 2019, 42 replies, in forum: General ME/CFS News
Thread
On line ‘survey’ re UK CFS/ME specialist services

[I could not find this posted anywhere, but admins delete this if I am duplicating.] There is a ‘survey’ on line, effectively asking people to...

Thread by: Peter Trewhitt, Jul 25, 2019, 64 replies, in forum: General ME/CFS News
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EU Disability forum - Call for stories! Has your disability affected your financial stability and social inclusion?

[MEDIA]

Thread by: Sly Saint, Apr 24, 2019, 0 replies, in forum: Advocacy Action Alerts
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Open Australia: NCNED Research Registry survey

Split thread [MEDIA]

Thread by: Sly Saint, Feb 7, 2019, 1 replies, in forum: Recruitment into current ME/CFS research studies
Thread
Chronic fatigue syndrome in the emergency department (2019) Timbol and Baraniuk

Chronic fatigue syndrome in the emergency department...

Thread by: Milo, Jan 11, 2019, 37 replies, in forum: BioMedical ME/CFS Research
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Cochrane Survey: Provide feedback on Cochrane’s Policy on Conflicts of Interest

To ensure Cochrane’s policy is fit for purpose, we are reviewing the Commercial Sponsorship Policy for Cochrane reviews and Cochrane review...

Thread by: inox, Jan 7, 2019, 31 replies, in forum: Health News and Research unrelated to ME/CFS
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The Neurological Alliance: Patient experience survey

Patient experience survey About our patient experience survey 2018–2019 We are currently undertaking our third biennial patient experience survey....

Thread by: Andy, Dec 4, 2018, 26 replies, in forum: Advocacy Projects and Campaigns

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