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survey

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  1. rvallee
    Thread

    Rename Pain Catastrophizing (Stanford study/survey)

    A project from what seems to be the Stanford Division of Pain Medicine surveying the patient community over the notion of pain catastrophising and...
    Thread by: rvallee, May 30, 2020, 11 replies, in forum: Health News and Research unrelated to ME/CFS
  2. wigglethemouse
    Thread

    Caregiver Survey During COVID-19 (Stanford, Apr 2020)

    Stanford have a study to look at the effect of care giving during COVID-19 pandemic. It doesn't have to be of someone with COVID-19. This is a...
    Thread by: wigglethemouse, Apr 5, 2020, 2 replies, in forum: Epidemics (including Covid-19)
  3. Trish
    Thread

    International Survey on Coronavirus

    http://covid19-survey.org/ International Survey on Coronavirus An international team of researchers from ten different institutions, including...
    Thread by: Trish, Mar 21, 2020, 3 replies, in forum: Epidemics (including Covid-19)
  4. Michiel Tack
    Thread

    EFNA survey on stigma experienced by people living with neurological disorders

    [MEDIA]
    Thread by: Michiel Tack, Mar 16, 2020, 1 replies, in forum: General disability topics and advocacy
  5. InfiniteRubix
    Thread

    Closed New undergraduate research on the sociology of ME

    Hi all, Please consider completing this research survey from Marta Encefalomielitis Miálgica on Facebook's son : Hello! I am a fourth-year...
    Thread by: InfiniteRubix, Feb 1, 2020, 12 replies, in forum: Recruitment into current ME/CFS research studies
  6. Trish
    Thread

    Open letter to Dr Peter Fisher, Liverpool University, about a research survey on emotional distress and CFS. 2019

    I wrote this personal open letter as a response to taking a survey detailed on this thread. University of Liverpool survey: 'Emotional Distress in...
    Thread by: Trish, Nov 7, 2019, 36 replies, in forum: Open Letters and Replies
  7. Peter Trewhitt
    Thread

    On line ‘survey’ re UK CFS/ME specialist services

    [I could not find this posted anywhere, but admins delete this if I am duplicating.] There is a ‘survey’ on line, effectively asking people to...
    Thread by: Peter Trewhitt, Jul 25, 2019, 64 replies, in forum: General ME/CFS News
  8. Sly Saint
    Thread

    EU Disability forum - Call for stories! Has your disability affected your financial stability and social inclusion?

    [MEDIA]
    Thread by: Sly Saint, Apr 24, 2019, 0 replies, in forum: Advocacy Action Alerts
  9. inox
    Thread

    Cochrane Survey: Provide feedback on Cochrane’s Policy on Conflicts of Interest

    To ensure Cochrane’s policy is fit for purpose, we are reviewing the Commercial Sponsorship Policy for Cochrane reviews and Cochrane review...
    Thread by: inox, Jan 7, 2019, 31 replies, in forum: Health News and Research unrelated to ME/CFS
  10. Andy
    Thread

    The Neurological Alliance: Patient experience survey

    Patient experience survey About our patient experience survey 2018–2019 We are currently undertaking our third biennial patient experience survey....
    Thread by: Andy, Dec 4, 2018, 26 replies, in forum: Advocacy Projects and Campaigns
  11. Andy
    Thread

    ME Association Quick Survey Nov 18: Do you have a healthcare plan that is consulted, adhered to and kept up to date...?

    Full question: Do you have a healthcare plan that is consulted, adhered to and kept up to date every time you see a healthcare professional?...
    Thread by: Andy, Nov 2, 2018, 14 replies, in forum: Advocacy Action Alerts
  12. rvallee
    Thread

    Survey on stigma around ME

    I wasn't sure where to post this but social and professional stigma around this disease seems kind of relevant to what psychosocial medicine...
    Thread by: rvallee, Oct 29, 2018, 13 replies, in forum: PsychoSocial ME/CFS Research
  13. Sly Saint
    Thread

    South Australia - Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?

    " What should be considered in the design of a clinic to treat complex health conditions? By Cathie Powell Copyright © 2018 Bridges & Pathways....
    Thread by: Sly Saint, Sep 5, 2018, 0 replies, in forum: Advocacy Projects and Campaigns
  14. Tom Kindlon
    Thread

    Patient perceptions of post exertional malaise, 2018, Jason et al

    I was surprised that there doesn't seem to be a thread on this paper given it discusses a few times the survey that was run here. In this case, I...
    Thread by: Tom Kindlon, Jul 25, 2018, 28 replies, in forum: PsychoSocial ME/CFS Research
  15. rvallee
    Thread

    Results from Survey of Young Europeans with Neurological Conditions (EFNA)

    I have not seen a thread yet on the survey so there it is. Hopefully this is the right forum. The full report:...
    Thread by: rvallee, Jul 22, 2018, 3 replies, in forum: General ME/CFS News
  16. Andy
    Thread

    ME Association quick survey, June 2018: Have you tried using the FODMAP diet for irritable bowel symptoms?

    Click http://www.meassociation.org.uk/ to take part, survey is in the centre panel of their homepage, scroll towards the bottom of the page to...
    Thread by: Andy, Jun 6, 2018, 1 replies, in forum: General ME/CFS News
  17. Webdog
    Thread

    Leonard Jason wants ME/CFS patients to do a PEM survey

    For those interested in participating in ME/CFS research. https://redcap.is.depaul.edu/surveys/?s=YJNCDPHXTH We are conducting a research study...
    Thread by: Webdog, Apr 10, 2018, 59 replies, in forum: BioMedical ME/CFS Research
  18. Andy
    Thread

    Scotland: “Lived experience of neurological conditions” Survey

    Organised by Our Voice, The Alliance Neurological Programme and Neurological Alliance of Scotland Lived Experience of Neurological Conditions...
    Thread by: Andy, Mar 5, 2018, 3 replies, in forum: General ME/CFS News
  19. Sly Saint
    Thread

    Chronic Fatigue Syndrome: a survey of GPs' attitudes and knowledge 2005 - Jo Bowen

    Thought this was an interesting survey; would be even more interesting to have a similar study from the last 5 years or so to compare with....
    Thread by: Sly Saint, Mar 1, 2018, 2 replies, in forum: Diagnostic Guidelines
  20. Andy
    Thread

    ME Association: Website survey: What do you think should be our research funding priorities for 2018?

    To go straight to the survey, it's on the MEA home page, http://www.meassociation.org.uk/, towards the bottom of the page, middle column. Options...
    Thread by: Andy, Jan 4, 2018, 10 replies, in forum: General ME/CFS News
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