Full title: Understanding symptom clusters, diagnosis and healthcare experiences in myalgic encephalomyelitis/chronic fatigue syndrome and long...
Abstract Background: This study aims to explore the perceptions and clinical approaches of pain management specialists toward myalgic...
Evaluation of a survey exploring the experiences of adults and children with ME/CFS who have participated in CBT and GET interventional programmes...
Abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a medical condition characterized by severe and prolonged fatigue that...
Behavior Assessment System for Children, Parent Rating Scales (BASC- PRS) is being used by a current study investigating omics in young people...
[I was told this survey is quite long, like over an hour, but can be paused at any time. It’s also open to people outside of austria]...
Background: The high global burden of Long Covid (LC) has significant implications for population wellbeing, healthcare, social care and national...
part of the 10 year reform plan for the NHS. Survey etc We want to have the biggest ever conversation about the future of the NHS. It doesn’t...
Post copied from MEA news. From the MEA's latest newsletter: We are looking for people with ME/CFS and their carers to give their opinions...
Abstract Background Individuals may experience a range of symptoms after the clearance of the severe acute respiratory syndrome coronavirus 2...
Just completed this John Hopkins long covid study survey. I think it’s worth filling out if you can manage: https://covid-long.com/ should take...
Full title: Evaluation of Tools to Assess Symptoms and Symptom Severity in Patients With Medically Unexplained Physical Symptoms: A Systematic...
Fear of COVID fades even as virus remains a ‘significant threat,’ survey reveals...
Abstract Purpose The complexity of long COVID and its diverse symptom profile contributes to unprecedented challenges for patients, clinicians,...
Introduction: Functional neurological disorder (FND) presents motor, sensory, and cognitive symptoms characterized by clinical signs incongruent...
First major survey of doctors with Long Covid reveals debilitating impact on health, life and work by BMA media team Press release from the BMA...
https://www.longcovidkids.org/post/feedback-on-the-long-covid-clinics-preliminary-healthcare-experiences-survey-findings Long Covid Kids is an...
Full title: Impact of the COVID-19 pandemic on clinical autonomic practice in Europe A survey of the European Academy of Neurology (EAN) and the...
Hi everyone, I’m interested in any research or surveys which track the impact of a COVID infection on ME/CFS symptoms and/or functioning. I’ve...
Here is the email I received from the Younger lab with the link to the survey and nothing about your data privacy (which I then asked Younger to...
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