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survey

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  1. Wyva
    Thread

    Preprint: “I feel like my body is broken”: Exploring the experiences of people living with long COVID, 2022, Wurz et al

    Abstract Background: Long COVID, an illness affecting a subset of individuals after COVID-19, is distressing and poorly understood. Exploring the...
    Thread by: Wyva, Jan 25, 2022, 1 replies, in forum: Long Covid research
  2. Wyva
    Thread

    Online survey of the use of Transcutaneous Nerve Stimulation for ME/CFS, 2022, Physios for ME

    This post has been copied and following posts moved from this thread: Physios for ME [MEDIA]
    Thread by: Wyva, Jan 14, 2022, 24 replies, in forum: Recruitment into current ME/CFS research studies
  3. Andy
    Thread

    UK: Call for action on ‘unique’ barriers facing people with energy-limiting impairments

    "A major survey has shown the significant – and often unique – barriers faced by people with energy-limiting conditions (ELC). Nearly every...
    Thread by: Andy, Dec 20, 2021, 1 replies, in forum: General disability topics and advocacy
  4. ME/CFS Skeptic
    Thread

    Analyzing ordinal data with metric models: What could possibly go wrong?, Liddell et al. 2018

    Abstract We surveyed all articles in the Journal of Personality and Social Psychology (JPSP), Psychological Science (PS), and the Journal of...
    Thread by: ME/CFS Skeptic, Nov 26, 2021, 31 replies, in forum: Research methodology news and research
  5. Andy
    Thread

    UK: Work and Pensions Committee inquiry: Health assessments for benefits, 2021

    From a Chronic Illness Inclusion email; Focus groups on disability benefit assessments Chronic Illness Inclusion wants to hear your experiences...
    Thread by: Andy, Nov 19, 2021, 7 replies, in forum: General disability topics and advocacy
  6. Hutan
    Thread

    New Zealand: Covid-19 vaccinations for people with ME/CFS

    Posts consolidated from a number of threads - apologies if the posts do not completely flow Covid-19 vaccination experiences News from...
    Thread by: Hutan, Oct 25, 2021, 84 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  7. Andy
    Thread

    Open International: Dr. Todd Davenport, PEM/PESE Activity Survey Study, Nov 2021

    "You are invited to participate in a research study. The purpose of this study is to determine how well we can measure self-rated function in...
    Thread by: Andy, Nov 12, 2021, 25 replies, in forum: Recruitment into current ME/CFS research studies
  8. Sly Saint
    Thread

    #MEAction: strategic planning survey 2021

    from email We're excited to share that #MEAction is engaged in a strategic planning process facilitated by the Center for Nonprofit Management...
    Thread by: Sly Saint, Nov 3, 2021, 9 replies, in forum: General ME/CFS news
  9. Andy
    Thread

    UK: The Neurological Alliance: "My Neuro" survey, 2021 (close 6th Feb 2022)

    From the website: Support #MyNeuroSurvey and help improve neuro services Take My Neuro Survey online here. Take My Neuro Survey now Or call the...
    Thread by: Andy, Oct 25, 2021, 7 replies, in forum: General ME/CFS news
  10. Kalliope
    Thread

    "Can someone as Young as You Really Feel That Much Pain?" - A survey on How People With Fibromyalgia Experience Healthcare in Sweden, 2021, Hasselroth

    SAGE Open Nursing "Can Someone as Young as You Really Feel That Much Pain?" - A Survey on How People With Fibromyalgia Experience Healthcare in...
    Thread by: Kalliope, Oct 11, 2021, 17 replies, in forum: 'Conditions related to ME/CFS' news and research
  11. MEMarge
    Thread

    UK survey - Changes to eligibility for non emergency patient transport

    From PATIENTS ASSOCIATION Newsletter, They are collecting info on patient experience via a short survey (closes this w/e) "NHS England has...
    Thread by: MEMarge, Oct 1, 2021, 1 replies, in forum: General disability topics and advocacy
  12. Andy
    Thread

    Disability Rights UK/Chronic Illness Inclusion evidence gathering survey on potential collaboration between different illness groups, closes 25th Sept

    This survey is part of a collaboration between Disability Rights UK and Chronic Illness Inclusion. The aim of this survey is to explore 1)...
    Thread by: Andy, Sep 4, 2021, 1 replies, in forum: General disability topics and advocacy
  13. Sly Saint
    Thread

    UK: Survey for C4 Dispatches on Disability Benefits system, deadline end of August 2021

    " Channel 4 Dispatches Survey: Disability Benefits Channel 4 is making a Dispatches programme on how the disability benefits process, as...
    Thread by: Sly Saint, Aug 29, 2021, 3 replies, in forum: Work, Finances and Disability Insurance
  14. Sly Saint
    Thread

    Survey:Improving NICE guidance

    "Introduction Please complete this short survey to help us improve how we write and present our guidance. Your feedback is key to help us...
    Thread by: Sly Saint, Aug 21, 2021, 16 replies, in forum: Other health news and research
  15. JohnTheJack
    Thread

    Clinician Conceptualization of the Benefits of Treatments for Individual Patients, 2021, Morgan, Pineles et al

    https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2782140 Key Points Question How do clinicians conceptualize the benefits of...
    Thread by: JohnTheJack, Aug 12, 2021, 2 replies, in forum: Other health news and research
  16. Sly Saint
    Thread

    Survey: what explanations GPs use for conditions that have no agreed biomedical cause and the impact of those explanations on social support & stigma.

    [MEDIA]
    Thread by: Sly Saint, Aug 2, 2021, 7 replies, in forum: General ME/CFS news
  17. Sly Saint
    Thread

    Wales: WAMES survey – NICE guidance in Wales

    Survey – Do GPs in Wales use NICE guidance? People with ME are looking forward to the publication of the revised NICE guidance, expected on 18th...
    Thread by: Sly Saint, Jul 19, 2021, 0 replies, in forum: General ME/CFS news
  18. Andy
    Thread

    UK: Equality & Human Rights Commision: Inquiry into challenging decisions about adult social care [includes survey], closes 15th Sept 21

    Our action We have launched an inquiry into how older and disabled adults and unpaid carers can challenge local council decisions about social...
    Thread by: Andy, Jul 19, 2021, 2 replies, in forum: General disability topics and advocacy
  19. Andy
    Thread

    Impacts of online support groups on quality of life, and perceived anxiety and depression in those with ME/CFS: a survey, 2021, Morehouse et al

    ABSTRACT Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition that can negatively affect physical...
    Thread by: Andy, Jul 11, 2021, 1 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Arnie Pye
    Thread

    Response to Women's Health Survey from Improve Thyroid Treatment group

    The response to the Women's Health Survey from the ITT (Improve Thyroid Treatment) group can be found here :...
    Thread by: Arnie Pye, Jun 18, 2021, 7 replies, in forum: Other health news and research
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