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  1. Andy
    Thread

    UK: Work and Pensions Committee inquiry: Health assessments for benefits, 2021

    From a Chronic Illness Inclusion email; Focus groups on disability benefit assessments Chronic Illness Inclusion wants to hear your experiences...
    Thread by: Andy, Nov 19, 2021, 6 replies, in forum: General disability topics and advocacy
  2. Sly Saint
    Thread

    New Zealand: ANZMES Vaccination and Covid-19 Survey, 2021

    Introduction At the request of the ME/CFS community, ANZMES has issued a survey relating to reactions experienced by the community to the COVID-19...
    Thread by: Sly Saint, Nov 15, 2021, 12 replies, in forum: Epidemics (including Covid-19)
  3. Andy
    Thread

    Open International: Dr. Todd Davenport, PEM/PESE Activity Survey Study, Nov 2021

    "You are invited to participate in a research study. The purpose of this study is to determine how well we can measure self-rated function in...
    Thread by: Andy, Nov 12, 2021, 25 replies, in forum: Recruitment into current ME/CFS research studies
  4. Sly Saint
    Thread

    #MEAction: strategic planning survey 2021

    from email We're excited to share that #MEAction is engaged in a strategic planning process facilitated by the Center for Nonprofit Management...
    Thread by: Sly Saint, Nov 3, 2021, 9 replies, in forum: General ME/CFS News
  5. Andy
    Thread

    UK: The Neurological Alliance: "My Neuro" survey, 2021 (close 14th Jan 2022)

    From the website: Support #MyNeuroSurvey and help improve neuro services Take My Neuro Survey online here. Take My Neuro Survey now Or call the...
    Thread by: Andy, Oct 25, 2021, 4 replies, in forum: General ME/CFS News
  6. Sly Saint
    Thread

    Survey:Improving NICE guidance

    "Introduction Please complete this short survey to help us improve how we write and present our guidance. Your feedback is key to help us...
    Thread by: Sly Saint, Aug 21, 2021, 16 replies, in forum: Other Health News and Research
  7. Sly Saint
    Thread

    Survey: what explanations GPs use for conditions that have no agreed biomedical cause and the impact of those explanations on social support & stigma.

    [MEDIA]
    Thread by: Sly Saint, Aug 2, 2021, 7 replies, in forum: General ME/CFS News
  8. Sly Saint
    Thread

    Wales: WAMES survey – NICE guidance in Wales

    Survey – Do GPs in Wales use NICE guidance? People with ME are looking forward to the publication of the revised NICE guidance, expected on 18th...
    Thread by: Sly Saint, Jul 19, 2021, 0 replies, in forum: General ME/CFS News
  9. Wyva
    Thread

    2021 Pan-Europe ME Patient Survey (EMEA)

    (I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do...
    Thread by: Wyva, May 11, 2021, 40 replies, in forum: Advocacy Projects and Campaigns
  10. MatthiasRiem
    Thread

    '"Together against Post-Covid" Initiative' (survey), University Hospital Tübingen (Germany), May 2021

    At University Hospital Tübingen, Germany, a "group of scientists from various disciplines interested in questions regarding Post-Covid that are...
    Thread by: MatthiasRiem, May 6, 2021, 1 replies, in forum: Epidemics (including Covid-19)
  11. Wyva
    Thread

    Specifics of chronic fatigue syndrome coping strategies identified in a French flash survey during the COVID‐19 containment, 2021, Moncorps et al

    Abstract The COVID‐19 pandemic has focused health systems on supporting patients affected by this virus. Meanwhile in the community, many other...
    Thread by: Wyva, Apr 8, 2021, 31 replies, in forum: PsychoSocial ME/CFS Research
  12. Tom Kindlon
    Thread

    Table listing % of Canadians with CFS, Fibromyalgia, MCS, etc. who have 19 specific co-morbidities, based on an official survey

    This isn't new, but I don't think it has been highlighted much, if at, all online Table listing the percentage of Canadians with chronic fatigue...
    Thread by: Tom Kindlon, Jan 11, 2021, 0 replies, in forum: General ME/CFS News
  13. John Mac
    Thread

    ME/CFS European Comparison Survey - SmartSurvey. Professor Derek Phelby 2020

    We very much appreciate your help with this brief survey, which should not take you more than ten minutes to complete. To participate, you should...
    Thread by: John Mac, Oct 20, 2020, 11 replies, in forum: General ME/CFS News
  14. Tom Kindlon
    Thread

    Emerge Australia Health and Wellbeing Survey 2019

    https://www.emerge.org.au/health-and-wellbeing-survey-2019 [MEDIA] [MEDIA]
    Thread by: Tom Kindlon, Oct 3, 2020, 5 replies, in forum: General ME/CFS News
  15. Andy
    Thread

    COVID-19 Patient Experience Survey #2

    Following up with our previous survey, we are launching our new study, which will be examining antibody testing results, wider and more detailed...
    Thread by: Andy, Sep 9, 2020, 2 replies, in forum: Epidemics (including Covid-19)
  16. Sly Saint
    Thread

    Open Canada (BC) Calling all physicians, specialists, allied health, clinical operations leads, and other clinicians!July 2020

    Dr. Hilary Robertson (ME|FM Society of BC) and Dr. Luis Nacul (BC Women’s Hospital’s Complex Chronic Diseases Program) would like to invite you to...
    Thread by: Sly Saint, Jul 8, 2020, 0 replies, in forum: Recruitment into current ME/CFS research studies
  17. Sly Saint
    Thread

    Australia - Survey 'Making the invisible visible: investigating the views and experiences of frail, homebound and bedridden people' 2020

    Before COVID-19, some members of our Australian community have been living with several health issues that do not allow them to leave their houses...
    Thread by: Sly Saint, Jul 2, 2020, 0 replies, in forum: General ME/CFS News
  18. rvallee
    Thread

    Rename Pain Catastrophizing (Stanford study/survey)

    A project from what seems to be the Stanford Division of Pain Medicine surveying the patient community over the notion of pain catastrophising and...
    Thread by: rvallee, May 30, 2020, 11 replies, in forum: Other Health News and Research
  19. Andy
    Thread

    Survey: Doctors' Knowledge and Understanding of Myalgic Encephalomyelitis, UK, 2018, Hng

    Originally intended to be published in a journal, Dr Hng has decided instead to release this into the public domain. Introduction It has long...
    Thread by: Andy, May 1, 2020, 16 replies, in forum: General ME/CFS News
  20. Andy
    Thread

    Europe: European ME Alliance (EMEA) (also EMECC and EMERG)

    Note from Moderators: IiME created the EMEA, and also the EMECC (Clinicians Council) and the EMERG (Research Group). The EMEA is a member of EFNA...
    Thread by: Andy, Jan 18, 2019, 19 replies, in forum: News from Organisations
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