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  1. Sly Saint
    Thread

    Wales: WAMES survey – NICE guidance in Wales

    Survey – Do GPs in Wales use NICE guidance? People with ME are looking forward to the publication of the revised NICE guidance, expected on 18th...
    Thread by: Sly Saint, Jul 19, 2021, 0 replies, in forum: General ME/CFS news
  2. Andy
    Thread

    UK: Equality & Human Rights Commision: Inquiry into challenging decisions about adult social care [includes survey], closes 15th Sept 21

    Our action We have launched an inquiry into how older and disabled adults and unpaid carers can challenge local council decisions about social...
    Thread by: Andy, Jul 19, 2021, 2 replies, in forum: General disability topics and advocacy
  3. Arnie Pye
    Thread

    Response to Women's Health Survey from Improve Thyroid Treatment group

    The response to the Women's Health Survey from the ITT (Improve Thyroid Treatment) group can be found here :...
    Thread by: Arnie Pye, Jun 18, 2021, 7 replies, in forum: Other health news and research
  4. Wyva
    Thread

    2021 Pan-Europe ME Patient Survey (EMEA)

    (I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do...
    Thread by: Wyva, May 11, 2021, 59 replies, in forum: Advocacy Projects and Campaigns
  5. MatthiasRiem
    Thread

    '"Together against Post-Covid" Initiative' (survey), University Hospital Tübingen (Germany), May 2021

    At University Hospital Tübingen, Germany, a "group of scientists from various disciplines interested in questions regarding Post-Covid that are...
    Thread by: MatthiasRiem, May 6, 2021, 1 replies, in forum: Long Covid news
  6. Andy
    Thread

    UK: BBC survey: the experiences of disabled people in the UK during the Covid-19 pandemic

    "How has Covid–19 affected you? @BBCNews wants to hear from deaf & disabled people. What impact has the pandemic had on your health, your...
    Thread by: Andy, Apr 27, 2021, 3 replies, in forum: General disability topics and advocacy
  7. Sly Saint
    Thread

    University of Bath Psychology dept: Fatigue in Neuromuscular Conditions, 2021, current PhD research project

    [MEDIA] Fatigue in Neuromuscular Conditions Parent Information Sheet Your child is being invited to take part in a research study. Before...
    Thread by: Sly Saint, Apr 18, 2021, 6 replies, in forum: Other psychosomatic news and research
  8. Wyva
    Thread

    Specifics of chronic fatigue syndrome coping strategies identified in a French flash survey during the COVID‐19 containment, 2021, Moncorps et al

    Abstract The COVID‐19 pandemic has focused health systems on supporting patients affected by this virus. Meanwhile in the community, many other...
    Thread by: Wyva, Apr 8, 2021, 31 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Andy
    Thread

    Research survey: Young Disabled People’s Views and Experiences of Disability Activism across Europe

    Is your age within the range of 18 to 35? Do you identify as a disabled person? Do you currently live in a European State? Do you have experience...
    Thread by: Andy, Apr 5, 2021, 1 replies, in forum: General disability topics and advocacy
  10. Andy
    Thread

    UK govt: Open consultation: Women's Health Strategy: Call for Evidence

    Executive summary We are seeking your views to help inform the development of the government’s Women’s Health Strategy. This call for evidence is...
    Thread by: Andy, Mar 29, 2021, 8 replies, in forum: General disability topics and advocacy
  11. ME/CFS Skeptic
    Thread

    The course of the illness for ME patients in Norway, 2021, Schei and Angelsen

    The Norwegian ME Association just published an impressive survey on 5.822 ME patients in Norway. An English summary is available here:...
    Thread by: ME/CFS Skeptic, Mar 11, 2021, 42 replies, in forum: ME/CFS research
  12. Amw66
    Thread

    Engaging with severly affected - surveys etc ( PLP survey coming up)

    Advocacy work can involve surveys - online/ telephone/ hard copy. Much of the time, those who are most severly affected can find it difficult to...
    Thread by: Amw66, Mar 1, 2021, 1 replies, in forum: General Advocacy Discussions
  13. Andy
    Thread

    UK: Public survey to gather views and experiences for the National Strategy of Disabled People, closes 23rd April 2021

    The Disability Unit in the Cabinet Office is working with government colleagues, disabled people, disabled people’s organisations, charities and...
    Thread by: Andy, Jan 25, 2021, 4 replies, in forum: General disability topics and advocacy
  14. Tom Kindlon
    Thread

    Table listing % of Canadians with CFS, Fibromyalgia, MCS, etc. who have 19 specific co-morbidities, based on an official survey

    This isn't new, but I don't think it has been highlighted much, if at, all online Table listing the percentage of Canadians with chronic fatigue...
    Thread by: Tom Kindlon, Jan 11, 2021, 0 replies, in forum: General ME/CFS news
  15. Hutan
    Thread

    UK: 'Managing my ME', 2010, ME Association

    'Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for...
    Thread by: Hutan, Nov 16, 2020, 12 replies, in forum: General ME/CFS news
  16. John Mac
    Thread

    ME/CFS European Comparison Survey - SmartSurvey. Professor Derek Pheby 2020

    We very much appreciate your help with this brief survey, which should not take you more than ten minutes to complete. To participate, you should...
    Thread by: John Mac, Oct 20, 2020, 11 replies, in forum: General ME/CFS news
  17. Sly Saint
    Thread

    The Effect of CBT, GET and Pacing Treatments on ME/CFS Symptoms: Analysis of a Patient Survey compared against Secondary Surveys - 2017 Geraghty et al

    Problem Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) severely impacts the quality of life of sufferers. Most ME/CFS patients will...
    Thread by: Sly Saint, Oct 18, 2020, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Tom Kindlon
    Thread

    Emerge Australia Health and Wellbeing Survey 2019

    https://www.emerge.org.au/health-and-wellbeing-survey-2019 [MEDIA] [MEDIA]
    Thread by: Tom Kindlon, Oct 3, 2020, 5 replies, in forum: General ME/CFS news
  19. Andy
    Thread

    COVID-19 Patient Experience Survey #2

    Following up with our previous survey, we are launching our new study, which will be examining antibody testing results, wider and more detailed...
    Thread by: Andy, Sep 9, 2020, 2 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  20. Sly Saint
    Thread

    Open Canada (BC) Calling all physicians, specialists, allied health, clinical operations leads, and other clinicians!July 2020

    Dr. Hilary Robertson (ME|FM Society of BC) and Dr. Luis Nacul (BC Women’s Hospital’s Complex Chronic Diseases Program) would like to invite you to...
    Thread by: Sly Saint, Jul 8, 2020, 0 replies, in forum: Recruitment into current ME/CFS research studies
Showing results 41 to 60 of 119
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