survey

Survey – Do GPs in Wales use NICE guidance? https://wames.org.uk/cms-english/survey-do-gps-in-wales-use-nice-guidance/

Our action We have launched an inquiry into how older and disabled adults and unpaid carers can challenge local council decisions about social care and support in England and Wales. Survey now open We’ve launched a survey to hear from those affected by the issues covered by our inquiry...

The response to the Women's Health Survey from the ITT (Improve Thyroid Treatment) group can be found here : https://drive.google.com/file/d/1sK6d8LManRI3mMIDT5nERThwRPOZlnRT/view I thought it might be of interest since so many people with ME also have thyroid disease of some kind. And I...

(I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do something like that pretty interesting Norwegian survey with 6000 pwME participating that showed there was a peak in onsets in 2009, probably due to H1N1...

At University Hospital Tübingen, Germany, a "group of scientists from various disciplines interested in questions regarding Post-Covid that are relevant to [clinical] practice ["praxisrelevant"]" has designed a set of surveys (one for patients, one for doctors and one for other health...

"How has Covid–19 affected you? @BBCNews wants to hear from deaf & disabled people. What impact has the pandemic had on your health, your disability, your life? Share your experiences with us, it won't take long" https://www.smartsurvey.co.uk/s/BBCDisabilityCovid19/

https://bathpsychology.eu.qualtrics.com/jfe/form/SV_e3Q1UfPb2trpOol

Abstract The COVID‐19 pandemic has focused health systems on supporting patients affected by this virus. Meanwhile in the community, many other contained patients could only use self‐care strategies, especially in countries that have set up a long and strict containment such as France. The...

Is your age within the range of 18 to 35? Do you identify as a disabled person? Do you currently live in a European State? Do you have experience or are interested in disability activism and disability politics? If you answered yes to these questions then please consider taking part in this...

Executive summary We are seeking your views to help inform the development of the government’s Women’s Health Strategy. This call for evidence is seeking to collect views on women’s health. It will run for a period of 12 weeks and is open to everyone aged 16 and over. The easiest way to...

The Norwegian ME Association just published an impressive survey on 5.822 ME patients in Norway. An English summary is available here: https://me-foreningen.no/wp-content/uploads/2021/03/Norwegian-ME-Association-2021-Report-on-the-course-of-illness-English-summary.pdf

Advocacy work can involve surveys - online/ telephone/ hard copy. Much of the time, those who are most severly affected can find it difficult to engage with this unless a fanily member/ carer can assist them- some may struggle to have this assistance. The PLP will feature a survey and there are...

https://www.gov.uk/government/news/citizen-space-survey-national-strategy-for-disabled-people AfME article on this, https://www.actionforme.org.uk/news/national-strategy-for-disabled-people-have-your-say/

This isn't new, but I don't think it has been highlighted much, if at, all online Table listing the percentage of Canadians with chronic fatigue syndrome, fibromyalgia, multiple chemical sensitivity, etc. who have 19 specific co-morbidities, based on a official survey See pages 5-8...

'Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for them and what don’t are available for downloading. The link to the PDF is at the bottom of this story. The survey also shows what people with the...

https://www.smartsurvey.co.uk/s/GX4HMU/ I took the survey and it did only take 10 minutes. Wanted to know your symptoms, medications and treatments. https://me-pedia.org/wiki/Derek_Pheby

https://sapc.ac.uk/conference/2017/abstract/effect-of-cbt-get-and-pacing-treatments-mecfs-symptoms-analysis-of-patient

https://www.emerge.org.au/health-and-wellbeing-survey-2019

https://patientresearchcovid19.com/survey2/

http://whri.org/calling-all-physicians-specialists-allied-health-clinical-operations-leads-and-other-clinicians/ eta: also here https://www.bcmj.org/blog/seeking-physicians-input-what-your-experience-myalgic-encephalomyelitis