[I could not find this posted anywhere, but admins delete this if I am duplicating.] There is a ‘survey’ on line, effectively asking people to...
Copied from the News from New Zealand and the Pacific Islands Just came across the NZ Health Survey....
Action for M.E. is following-up its major 2014 survey, 'M.E. Time to Deliver' by looking, five years on, at health, welfare, employment and...
[MEDIA] I thought that this was interesting and would be interesting to do with ME so we target our education efforts better. I was wondering...
[MEDIA]
Welcome to the ME/CFS Early Career Investigator Survey! The purpose of this survey is to learn about junior researchers' perceived knowledge...
https://2tired.weebly.com/home/dismissal-of-young-people-with-me-by-nhs-professionals [MEDIA] [MEDIA]
https://www.bacme.info/sites/bacme.info/files/BACME%20CFS%20ME%20National%20services%20survey%20March19.pdf [MEDIA] [MEDIA]
ME Association: Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019...
In addition to ME/CFS, do you have a diagnosis of any of the following conditions? Endometriosis Fibromyalgia Hypermobility/Ehlers Danlos...
Overall, how would you describe the effect that cognitive dysfunction (“brain fog”) has on your ability to function on a day-to-day basis?...
Split thread [MEDIA]
Action for M.E. wants all children living with M.E./CFS to get the support they need in school. We need to make sure we are focusing on the issues...
If you have used private or NHS counselling to help with emotional, mental health or relationship problems linked to ME/CFS did you find it...
The National Institute of Health and Care Excellence (NICE) is rewriting the UK ME guidelines. As part of this process, the Forward ME Group...
Chronic fatigue syndrome in the emergency department...
This month the ME Association has welcomed a survey designed by a third-year medical student based at Cardiff University. Her project is being...
To ensure Cochrane’s policy is fit for purpose, we are reviewing the Commercial Sponsorship Policy for Cochrane reviews and Cochrane review...
Patient experience survey About our patient experience survey 2018–2019 We are currently undertaking our third biennial patient experience survey....
Conclusions The results of this study confirm the GR’s observation of the assessment of ME patients by the UWV. People with ME regularly...
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