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ME/CFS Early Career Investigator Survey

Discussion in 'General ME/CFS news' started by Andy, Apr 18, 2019.

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  1. Andy

    Andy Committee Member

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    https://redcap.rti.org/mecfs/surveys/?s=94JADKFCPC
     
    Andy, Apr 18, 2019
    #1
    JaneL, ScottTriGuy, alktipping and 3 others like this.
  2. Wonko

    Wonko Senior Member (Voting Rights)

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    erm...what?
     
    Wonko, Apr 18, 2019
    #2
    alktipping likes this.
  3. alktipping

    alktipping Senior Member (Voting Rights)

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    why would completing a survey expose anyone to risk , just what are the authors implying.
     
    alktipping, Apr 19, 2019
    #3
    ScottTriGuy and Wonko like this.
  4. Esther12

    Esther12 Senior Member (Voting Rights)

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    I've seen other research like this - trying to warn participants about any potential risk of the research can end up sounding a bit silly in some cases.
     
    Esther12, Apr 19, 2019
    #4
    ScottTriGuy and alktipping like this.
  5. Trish

    Trish Moderator Staff Member

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    The bit about risk may be a standard thing ethics committees require researchers to assess and state for participants taking part in the research .even if the research only requires participants to fill in a questionnaire like this one.
     
    Trish, Apr 19, 2019
    #5
    alktipping, Keebird, ScottTriGuy and 1 other person like this.
  6. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

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    I took that to mean that the survey may trigger PTSD symptoms that are caused by traumatic experiences in their career / professional development. I think this would especially pertain to researchers that also have ME (or family member).

    I suspect the same information about recall potentially causing distress, would also be used when asking ME patients to recall their experiences with the health care system. Most (all?) ME patients will have at least one distressing / traumatic event from physicians / health care. (Like Dr Klimas said, but I'm paraphrasing: 'They came to the doctor with ME. They left with PTSD.')
     
    ScottTriGuy, Apr 19, 2019
    #6
    alktipping, andypants, Trish and 1 other person like this.

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