Action for M.E. are testing out an idea we have for a new project that could potentially help support people with M.E. nationwide. This project...
Full question: Do you have a healthcare plan that is consulted, adhered to and kept up to date every time you see a healthcare professional?...
I wasn't sure where to post this but social and professional stigma around this disease seems kind of relevant to what psychosocial medicine...
Emerge Australia conducted a health and welfare survey of 600 Australians with ME/CFS, and has released a 77 page report of the findings. The...
" What should be considered in the design of a clinic to treat complex health conditions? By Cathie Powell Copyright © 2018 Bridges & Pathways....
The report has an English summary from pages 9 - 12. ME-pasienters erfaring med rehabiliteringsopphold (ME patients' experiences with...
My good friend Catherine Hale who is lead researcher with Chronic Illness Inclusion Project has alerted me to this survey if anyone wishes to take...
I was surprised that there doesn't seem to be a thread on this paper given it discusses a few times the survey that was run here. In this case, I...
The European ME Alliance has been a member organisation of the European Federation of Neurological Associations since 2015...
Click http://www.meassociation.org.uk/ to take part, survey is in the centre panel of their homepage, scroll towards the bottom of the page to...
For those interested in participating in ME/CFS research. https://redcap.is.depaul.edu/surveys/?s=YJNCDPHXTH We are conducting a research study...
" Mason Foundation ME CFS Biobank Survey The Mason Foundation is a charitable trust that supports medical and scientific research on myalgic...
Organised by Our Voice, The Alliance Neurological Programme and Neurological Alliance of Scotland Lived Experience of Neurological Conditions...
Thought this was an interesting survey; would be even more interesting to have a similar study from the last 5 years or so to compare with....
To go straight to the survey, it's on the MEA home page, http://www.meassociation.org.uk/, towards the bottom of the page, middle column. Options...
Severely affected ME (Myalgic Encephalomyelitis) analysis report on questionnaire 25% ME Group (UK) 2004 Link to survey ME 2008: What progress...
This was pointed out in a post on another thread but I thought it'd be interesting to have it in it's own thread. To what extent has the very...
From: National ME/FM Action Network http://mefmaction.com/images/stories/quest_newsletters/Quest112.pdf [MEDIA] A supplement to this edition...
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