From an email from The Neurological Alliance. Please tell us about your experiences during COVID-19 We want to know how you have been impacted...
A project from what seems to be the Stanford Division of Pain Medicine surveying the patient community over the notion of pain catastrophising and...
Originally intended to be published in a journal, Dr Hng has decided instead to release this into the public domain. Introduction It has long...
We are conducting this survey as part of the Chronic Illness Inclusion Project (CIIP). The CIIP works to build a collective voice for people with...
Note from Moderators: IiME created the EMEA, and also the EMECC (Clinicians Council) and the EMERG (Research Group). The EMEA is a member of EFNA...
Stanford have a study to look at the effect of care giving during COVID-19 pandemic. It doesn't have to be of someone with COVID-19. This is a...
http://covid19-survey.org/ International Survey on Coronavirus An international team of researchers from ten different institutions, including...
TIME FOR A PROFESSIONAL RETHINK ON ME : Your heart is as important as your head - blog by Jane Colby In 1985 I was taken seriously and severely...
I just came across this survey but I can't see when it's from or how it came about. North Ayrshire HSCP @NAHSCP Are you living with a...
Cayla M Fappiano, USAF, James N Baraniuk, MD Abstract Introduction: Gulf War illness (GWI) affects 25 to 32% of the 693,826 veterans of the...
Hi all, Please consider completing this research survey from Marta Encefalomielitis Miálgica on Facebook's son : Hello! I am a fourth-year...
MEAction performed a survey earlier this year, gathering data to submit to NICE for their review of the ME guideline. I think there’s already a...
This was highlighted in the December Invest in ME newsletter. Welcome to the MULTI-ACT Patient Engagement Survey MULTI-ACT is a 3-year European...
You are being invited to take part in a research study to explore the views and needs of patients with severe ME/CFS. This project has been...
I wrote this personal open letter as a response to taking a survey detailed on this thread. University of Liverpool survey: 'Emotional Distress in...
I've written a blog post about the recent amendment to the Cochrane review and how it doesn't address the major flaws. I will post the full text...
Your experience of ME services - Survey report by #MEAction UK Article:...
Corsius et al. (2019). Zorg voor betere behandeling bij ME. Enquête onder ME-patiënten naar hun ervaringen met behandelingen bij ME. A new...
Hi, This is Lunarainbow’s mum. She is too ill to type now. I came across this survey and told her about it. She wanted me to post this to alert...
What category of illness severity best reflects your (or the person you care for’s) current level of disability? For this month’s website poll,...
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