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survey

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  1. Sly Saint
    Thread

    Australia - Survey 'Making the invisible visible: investigating the views and experiences of frail, homebound and bedridden people' 2020

    Before COVID-19, some members of our Australian community have been living with several health issues that do not allow them to leave their houses...
    Thread by: Sly Saint, Jul 2, 2020, 0 replies, in forum: General ME/CFS news
  2. Andy
    Thread

    The Neurological Alliance survey: Life with a neurological condition during COVID-19 [Closes 20th June 2020]

    From an email from The Neurological Alliance. Please tell us about your experiences during COVID-19 We want to know how you have been impacted...
    Thread by: Andy, Jun 8, 2020, 1 replies, in forum: Advocacy Projects and Campaigns
  3. rvallee
    Thread

    Rename Pain Catastrophizing (Stanford study/survey)

    A project from what seems to be the Stanford Division of Pain Medicine surveying the patient community over the notion of pain catastrophising and...
    Thread by: rvallee, May 30, 2020, 11 replies, in forum: Other psychosomatic news and research
  4. Andy
    Thread

    Survey: Doctors' Knowledge and Understanding of Myalgic Encephalomyelitis, UK, 2018, Hng

    Originally intended to be published in a journal, Dr Hng has decided instead to release this into the public domain. Introduction It has long...
    Thread by: Andy, May 1, 2020, 16 replies, in forum: General ME/CFS news
  5. Andy
    Thread

    Survey: Chronic illness and the impact of the coronavirus pandemic, closes 22nd April 2020

    We are conducting this survey as part of the Chronic Illness Inclusion Project (CIIP). The CIIP works to build a collective voice for people with...
    Thread by: Andy, Apr 15, 2020, 3 replies, in forum: Advocacy Projects and Campaigns
  6. Andy
    Thread

    Europe: European ME Alliance (EMEA) (also EMECC and EMERG)

    Note from Moderators: IiME created the EMEA, and also the EMECC (Clinicians Council) and the EMERG (Research Group). The EMEA is a member of EFNA...
    Thread by: Andy, Jan 18, 2019, 28 replies, in forum: News from organisations
  7. wigglethemouse
    Thread

    Caregiver Survey During COVID-19 (Stanford, Apr 2020)

    Stanford have a study to look at the effect of care giving during COVID-19 pandemic. It doesn't have to be of someone with COVID-19. This is a...
    Thread by: wigglethemouse, Apr 5, 2020, 2 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  8. Trish
    Thread

    International Survey on Coronavirus

    http://covid19-survey.org/ International Survey on Coronavirus An international team of researchers from ten different institutions, including...
    Thread by: Trish, Mar 21, 2020, 3 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  9. Andy
    Thread

    UK - The Young ME Sufferers (TYMES) Trust

    TIME FOR A PROFESSIONAL RETHINK ON ME : Your heart is as important as your head - blog by Jane Colby In 1985 I was taken seriously and severely...
    Thread by: Andy, May 12, 2018, 18 replies, in forum: News from organisations
  10. Sly Saint
    Thread

    Scottish Health Council:Gathering public experience of Myalgic Encephalomyelitis (ME) survey: Feb 2020

    I just came across this survey but I can't see when it's from or how it came about. North Ayrshire HSCP @NAHSCP Are you living with a...
    Thread by: Sly Saint, Feb 11, 2020, 24 replies, in forum: General ME/CFS news
  11. Sly Saint
    Thread

    Gulf War Illness Symptom Severity and Onset: A Cross-Sectional Survey : Baraniuk et al Feb 2020

    Cayla M Fappiano, USAF, James N Baraniuk, MD Abstract Introduction: Gulf War illness (GWI) affects 25 to 32% of the 693,826 veterans of the...
    Thread by: Sly Saint, Feb 3, 2020, 0 replies, in forum: 'Conditions related to ME/CFS' news and research
  12. InfiniteRubix
    Thread

    Closed New undergraduate research on the sociology of ME

    Hi all, Please consider completing this research survey from Marta Encefalomielitis Miálgica on Facebook's son : Hello! I am a fourth-year...
    Thread by: InfiniteRubix, Feb 1, 2020, 12 replies, in forum: Recruitment into current ME/CFS research studies
  13. ringding
    Thread

    MEAction: How did your local service perform?

    MEAction performed a survey earlier this year, gathering data to submit to NICE for their review of the ME guideline. I think there’s already a...
    Thread by: ringding, Dec 5, 2019, 17 replies, in forum: General ME/CFS news
  14. Andy
    Thread

    Survey: Consultation on the MULTI-ACT Patient Engagement Strategy

    This was highlighted in the December Invest in ME newsletter. Welcome to the MULTI-ACT Patient Engagement Survey MULTI-ACT is a 3-year European...
    Thread by: Andy, Dec 1, 2019, 3 replies, in forum: General disability topics and advocacy
  15. Andy
    Thread

    Closed England & Wales: Survey: Involving adults with severe ME/CFS symptoms in developing a NICE guideline on ME/CFS

    You are being invited to take part in a research study to explore the views and needs of patients with severe ME/CFS. This project has been...
    Thread by: Andy, Nov 14, 2019, 25 replies, in forum: Recruitment into current ME/CFS research studies
  16. Trish
    Thread

    Open letter to Dr Peter Fisher, Liverpool University, about a research survey on emotional distress and CFS. 2019

    I wrote this personal open letter as a response to taking a survey detailed on this thread. University of Liverpool survey: 'Emotional Distress in...
    Thread by: Trish, Nov 7, 2019, 36 replies, in forum: Open Letters and Replies
  17. ME/CFS Skeptic
    Thread

    Why the Cochrane review on exercise therapy for chronic fatigue syndrome is still misleading

    I've written a blog post about the recent amendment to the Cochrane review and how it doesn't address the major flaws. I will post the full text...
    Thread by: ME/CFS Skeptic, Oct 20, 2019, 19 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Gecko
    Thread

    Your experience of ME services - #MEAction UK survey report concludes services 'not fit for purpose'

    Your experience of ME services - Survey report by #MEAction UK Article:...
    Thread by: Gecko, Oct 17, 2019, 41 replies, in forum: General ME/CFS news
  19. ME/CFS Skeptic
    Thread

    Patient survey by the Dutch ME/CFS Association - Corsius et al. 2019

    Corsius et al. (2019). Zorg voor betere behandeling bij ME. Enquête onder ME-patiënten naar hun ervaringen met behandelingen bij ME. A new...
    Thread by: ME/CFS Skeptic, Sep 12, 2019, 17 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  20. lunarainbows
    Thread

    University of Liverpool survey: 'Emotional Distress in Chronic Fatigue Syndrome', 2019

    Hi, This is Lunarainbow’s mum. She is too ill to type now. I came across this survey and told her about it. She wanted me to post this to alert...
    Thread by: lunarainbows, Aug 31, 2019, 50 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
Showing results 61 to 80 of 119
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