MEAction performed a survey earlier this year, gathering data to submit to NICE for their review of the ME guideline. I think there’s already a...
This was highlighted in the December Invest in ME newsletter. Welcome to the MULTI-ACT Patient Engagement Survey MULTI-ACT is a 3-year European...
You are being invited to take part in a research study to explore the views and needs of patients with severe ME/CFS. This project has been...
I wrote this personal open letter as a response to taking a survey detailed on this thread. University of Liverpool survey: 'Emotional Distress in...
I've written a blog post about the recent amendment to the Cochrane review and how it doesn't address the major flaws. I will post the full text...
Your experience of ME services - Survey report by #MEAction UK Article:...
Corsius et al. (2019). Zorg voor betere behandeling bij ME. Enquête onder ME-patiënten naar hun ervaringen met behandelingen bij ME. A new...
Hi, This is Lunarainbow’s mum. She is too ill to type now. I came across this survey and told her about it. She wanted me to post this to alert...
What category of illness severity best reflects your (or the person you care for’s) current level of disability? For this month’s website poll,...
[I could not find this posted anywhere, but admins delete this if I am duplicating.] There is a ‘survey’ on line, effectively asking people to...
Copied from the News from New Zealand and the Pacific Islands Just came across the NZ Health Survey....
Action for M.E. is following-up its major 2014 survey, 'M.E. Time to Deliver' by looking, five years on, at health, welfare, employment and...
[MEDIA] I thought that this was interesting and would be interesting to do with ME so we target our education efforts better. I was wondering...
[MEDIA]
Welcome to the ME/CFS Early Career Investigator Survey! The purpose of this survey is to learn about junior researchers' perceived knowledge...
https://2tired.weebly.com/home/dismissal-of-young-people-with-me-by-nhs-professionals [MEDIA] [MEDIA]
https://www.bacme.info/sites/bacme.info/files/BACME%20CFS%20ME%20National%20services%20survey%20March19.pdf [MEDIA] [MEDIA]
ME Association: Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019...
In addition to ME/CFS, do you have a diagnosis of any of the following conditions? Endometriosis Fibromyalgia Hypermobility/Ehlers Danlos...
Overall, how would you describe the effect that cognitive dysfunction (“brain fog”) has on your ability to function on a day-to-day basis?...
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