Discussion in 'General disability topics and advocacy' started by Andy, Dec 1, 2019.
This was highlighted in the December Invest in ME newsletter.
The survey is pretty demanding to fill in and cannot save progress so keep that in mind before going in.
Still, it provides a few areas to provide freeform comments, including one at the end for extended comments.
Here's mine, trying to steer the conversation towards acknowledging past failures, and learning lessons from those, as a good way forward:
aims to develop brand new tools to foster the true engagement of all stakeholders in Health Research and Innovation and maximize the impact and effectiveness of patient engagement
I am tempted to say for God's sake just join a patient website and listen.
And do something when you see professionals bending the rules to suit themselves.
Separate names with a comma.