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Survey: Consultation on the MULTI-ACT Patient Engagement Strategy

Discussion in 'General disability topics and advocacy' started by Andy, Dec 1, 2019.

  1. Andy

    Andy Committee Member & Outreach

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    This was highlighted in the December Invest in ME newsletter.
    https://www.surveymonkey.com/r/87GSGGY
     
  2. rvallee

    rvallee Senior Member (Voting Rights)

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    The survey is pretty demanding to fill in and cannot save progress so keep that in mind before going in.

    Still, it provides a few areas to provide freeform comments, including one at the end for extended comments.

    Here's mine, trying to steer the conversation towards acknowledging past failures, and learning lessons from those, as a good way forward:
     
  3. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    aims to develop brand new tools to foster the true engagement of all stakeholders in Health Research and Innovation and maximize the impact and effectiveness of patient engagement

    I am tempted to say for God's sake just join a patient website and listen.
    And do something when you see professionals bending the rules to suit themselves.
     
  4. obeat

    obeat Senior Member (Voting Rights)

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    More jargon.
     
    MEMarge likes this.

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