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patient engagement

  1. Milo
    Thread

    M.E. In BC [British Columbia]: How the healthcare system for M.E. impacts clinicians and patients

    M.E. In BC [British Columbia]: How the healthcare system for M.E. impacts clinicians and patients This is a preliminary study assessing the unmet...
    Thread by: Milo, Apr 2, 2021, 1 replies, in forum: BioMedical ME/CFS News
  2. Sly Saint
    Thread

    Therapists’ perceptions of barriers and facilitators to uptake and engagement with therapy in long‐term conditions - Oct 2020 Moss-Morris et al

    Abstract Objective Improving Access to Psychological Therapies (IAPT) services in England have established a long‐term condition (LTC) pathway in...
    Thread by: Sly Saint, Oct 27, 2020, 7 replies, in forum: PsychoSocial ME/CFS Research
  3. Andy
    Thread

    Cochrane UK Consumer Champions: another step towards better patient and public involvement

    Anybody want to help spread the Cochrane gospel? Cochrane UK has launched the Cochrane UK Consumer Champions initiative and we are inviting...
    Thread by: Andy, Aug 28, 2020, 3 replies, in forum: Health News and Research unrelated to ME/CFS
  4. Andy
    Thread

    The experience of living with severe ME/CFS, Newton et al, study starts July 2020

    The plight of patients with severe ME/CFS has been the subject of a series of studies funded by ME Research UK over the last few years, and...
    Thread by: Andy, Jun 5, 2020, 0 replies, in forum: PsychoSocial ME/CFS Research
  5. Andy
    Thread

    UK: Workshop: "What big research questions do people with M.E., their carers and clinicians want answered?", 10th March 2020

    What big research questions do people with M.E., their carers and clinicians want answered? You are invited to a free workshop on Tuesday 10...
    Thread by: Andy, Feb 20, 2020, 14 replies, in forum: Advocacy Projects and Campaigns
  6. Andy
    Thread

    Blog: BMJ Opinion: Dear Father Christmas—The BMJ Patient Advisory Panel’s wish list

    Dear Father Christmas, I do apologise for bothering you. I know December is fiendishly busy, and how you manage to conjure such good cheer in it,...
    Thread by: Andy, Dec 20, 2019, 2 replies, in forum: Health News and Research unrelated to ME/CFS
  7. rvallee
    Thread

    #RCPsychIC hosting a panel on patient engagement with Rob Howard, Mental Elf and Simon Wessely

    [MEDIA] Likely followed by a talk on vaccine safety by Andrew Wakefield and a panel on the scientific method sponsored by Goop.com and...
    Thread by: rvallee, Jul 2, 2019, 12 replies, in forum: PsychoSocial ME/CFS Research
  8. Andy
    Thread

    Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    So, for those of you who aren't aware, I have been fortunate enough to be invited along to take part in these meetings as a patient...
    Thread by: Andy, May 7, 2019, 75 replies, in forum: Researcher Interactions
  9. Andy
    Thread

    What accomodations would PwME need for us to be able to be involved in research?

    Title pretty much says it all, or perhaps another way of asking the question is "What would be the ideal way that researchers could accommodate...
    Thread by: Andy, Mar 2, 2019, 7 replies, in forum: General Advocacy Discussions
  10. Esther12
    Thread

    2019 blog: Co-producing a systematic review with patients [Patient wanted more positive emphasis on psychosocial management for post cancer fatigue]

    https://blogs.bmj.com/bmj/2019/02/08/hilde-t-myrhaug-and-tone-hansen-co-producing-a-systematic-review-with-patients/ At least I wanted the...
    Thread by: Esther12, Feb 26, 2019, 2 replies, in forum: Health News and Research unrelated to ME/CFS
  11. Snowdrop
    Thread

    Canadian Medical Assoc -- Patient Voice

    I'm posting this in case there are Cdn advocates here who are not aware of this group and who might find connecting with this group of possible...
    Thread by: Snowdrop, Dec 6, 2018, 3 replies, in forum: General Advocacy Discussions
  12. Andy
    Thread

    Blog: Occupy ME: Public Comment on Engaging People with ME

    I delivered these comments via telephone today at the CFS Advisory Committee meeting: My name is Jennifer Spotila. I will soon begin my 25th year...
    Thread by: Andy, Jun 21, 2018, 1 replies, in forum: General ME/CFS News
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