M.E. In BC [British Columbia]: How the healthcare system for M.E. impacts clinicians and patients This is a preliminary study assessing the unmet...
Abstract Objective Improving Access to Psychological Therapies (IAPT) services in England have established a long‐term condition (LTC) pathway in...
Anybody want to help spread the Cochrane gospel? Cochrane UK has launched the Cochrane UK Consumer Champions initiative and we are inviting...
The plight of patients with severe ME/CFS has been the subject of a series of studies funded by ME Research UK over the last few years, and...
What big research questions do people with M.E., their carers and clinicians want answered? You are invited to a free workshop on Tuesday 10...
Dear Father Christmas, I do apologise for bothering you. I know December is fiendishly busy, and how you manage to conjure such good cheer in it,...
[MEDIA] Likely followed by a talk on vaccine safety by Andrew Wakefield and a panel on the scientific method sponsored by Goop.com and...
So, for those of you who aren't aware, I have been fortunate enough to be invited along to take part in these meetings as a patient...
Title pretty much says it all, or perhaps another way of asking the question is "What would be the ideal way that researchers could accommodate...
https://blogs.bmj.com/bmj/2019/02/08/hilde-t-myrhaug-and-tone-hansen-co-producing-a-systematic-review-with-patients/ At least I wanted the...
I'm posting this in case there are Cdn advocates here who are not aware of this group and who might find connecting with this group of possible...
I delivered these comments via telephone today at the CFS Advisory Committee meeting: My name is Jennifer Spotila. I will soon begin my 25th year...
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