europe

Why are diseases more common in some parts of Europe than others, and why are northern Europeans taller than their southern counterparts? An international team of scientists say they have unearthed the answer in the DNA of ancient teeth and bones. The genes which protected our ancestors from...

European Parliament: COVID-19 pandemic: lessons learned and recommendations for the future pdf https://www.europarl.europa.eu/doceo/document/TA-9-2023-0282_EN.pdf

Full title: Impact of the COVID-19 pandemic on clinical autonomic practice in Europe A survey of the European Academy of Neurology (EAN) and the European Federation of Autonomic Societies (EFAS) Abstract Objective To investigate the impact of the coronavirus-disease-2019 (COVID-19) pandemic...

I haven't fill this in myself so far. https://www.surveymonkey.com/r/8NWFDC2 COVID-19 impact on healthcare management of people with chronic diseases Questionnaire for individual patients What is the survey about? This survey seeks to map the impact that COVID-19 has had on diagnosis...

The European ME Coalition (EMEC) presents three new fact sheets about ME/CFS. We hope these will help to inform politicians and key policymakers about the need for biomedical research on ME/CFS in Europe. The documents briefly summarize key facts about the economic and societal impact of...

(I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do something like that pretty interesting Norwegian survey with 6000 pwME participating that showed there was a peak in onsets in 2009, probably due to H1N1...

What is the Conference on the Future of Europe? The Conference on the Future of Europe is a unique and timely opportunity for European citizens to debate on Europe’s challenges and priorities. No matter where you are from or what you do, this is the place to think about what future you want for...

Is your age within the range of 18 to 35? Do you identify as a disabled person? Do you currently live in a European State? Do you have experience or are interested in disability activism and disability politics? If you answered yes to these questions then please consider taking part in this...

Full title: Perceptions of European ME/CFS Experts Concerning Knowledge and Understanding of ME/CFS among Primary Care Physicians in Europe: A Report from the European ME/CFS Research Network (EUROMENE) Open access, https://www.mdpi.com/1010-660X/57/3/208/htm

Not sure which forum this should go in. How to cite: Nacul, L.; Authier, J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.; Alegre Martin, J.; Sirbu, C.A.; Mengshoel, A.M.; Polo, O.; Behrends, U.; Nielsen, H.; Grabowski, P.; Sekulic, S.; Sepulveda., N.; Esteves Lopez, F.; Zalewsk, P.; Pheby, D...

Dutch study on functional complaints (including CFS) receives €4 million in European funding "Some people particularly benefit from physical therapy, while others are more in need of support from a psychologist." https://www.dvhn.nl/groningen/Als-de-dokter-niks-kan-vinden-25856002.html...

Link to the article https://www.europarl.europa.eu/news/en/press-room/20200615IPR81245/me-cfs-meps-call-for-more-funds-for-research-into-complex-illness

Press Release from the European ME coalition (EMEC): 'Scientists call for more European research on ME/CFS' Brussels, 10 June 2020 More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...

Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology https://www.mdpi.com/2077-0383/9/5/1557

The advocacy group of Evelien Van Den Brink and Francis Martin (of which I’m part) now has an official name and website. Check it out here: https://europeanmecoalition.wordpress.com/ For those who might not remember, this is the group that has submitted the successful European petition for...

The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE) Authors Derek F.H. Pheby 1,* , Diana Araja 2, Uldis Berkis 3, Elenka Brenna 4 , John Cullinan 5...

https://www.meaction.net/2020/02/05/the-eu-committee-on-petitions-is-preparing-a-resolution-on-me/

How to sign the EU-petition on a request for funding for biomedical research on Myalgic Encephalomyelitis (No0204/2019) 1) Go to the EU website: https://petiport.secure.europarl.europa.eu/petitions/en/petition/content/0204%2F2019/html/missinglink 2) Click register at the top right corner of...

full paper here https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0225995

This was highlighted in the December Invest in ME newsletter. https://www.surveymonkey.com/r/87GSGGY