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  1. ME/CFS Skeptic
    Thread

    EU: News from the European ME Coalition (EMEC)

    The European ME Coalition (EMEC) presents three new fact sheets about ME/CFS. We hope these will help to inform politicians and key policymakers...
    Thread by: ME/CFS Skeptic, Aug 18, 2020, 18 replies, in forum: News from organisations
  2. Wyva
    Thread

    2021 Pan-Europe ME Patient Survey (EMEA)

    (I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do...
    Thread by: Wyva, May 11, 2021, 40 replies, in forum: Advocacy Projects and Campaigns
  3. Andy
    Thread

    Endorse the European ME Coalition's idea at The [2021] Conference on the Future of Europe

    What is the Conference on the Future of Europe? The Conference on the Future of Europe is a unique and timely opportunity for European citizens...
    Thread by: Andy, Apr 26, 2021, 10 replies, in forum: Advocacy Action Alerts
  4. Andy
    Thread

    Research survey: Young Disabled People’s Views and Experiences of Disability Activism across Europe

    Is your age within the range of 18 to 35? Do you identify as a disabled person? Do you currently live in a European State? Do you have experience...
    Thread by: Andy, Apr 5, 2021, 1 replies, in forum: General disability topics and advocacy
  5. Andy
    Thread

    Perceptions of European ME/CFS Experts Concerning Knowledge and Understanding of ME/CFS among Primary Care Physicians in Europe.. Cullinan et al, 2021

    Full title: Perceptions of European ME/CFS Experts Concerning Knowledge and Understanding of ME/CFS among Primary Care Physicians in Europe: A...
    Thread by: Andy, Mar 4, 2021, 3 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  6. John Mac
    Thread

    EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe, 2020, Nacul et al.

    Not sure which forum this should go in. How to cite: Nacul, L.; Authier, J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.; Alegre Martin, J.;...
    Thread by: John Mac, Sep 28, 2020, 9 replies, in forum: General ME/CFS news
  7. Dolphin
    Thread

    Dutch study on functional complaints (including CFS) receives €4 million in European funding

    "Some people particularly benefit from physical therapy, while others are more in need of support from a psychologist."...
    Thread by: Dolphin, Jul 22, 2020, 12 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  8. strategist
    Thread

    Members of the European Parliament call for more funds for research into ME/CFS

    Parliament wants to increase EU funding in order to advance research on diagnostic tests and treatment of Myalgic Encephalomyelitis/Chronic...
    Thread by: strategist, Jun 18, 2020, 34 replies, in forum: General ME/CFS news
  9. ME/CFS Skeptic
    Thread

    Press Release from the European ME coalition (EMEC): 'Scientists call for more European research on ME/CFS'

    Press Release from the European ME coalition (EMEC): 'Scientists call for more European research on ME/CFS' Brussels, 10 June 2020 More than one...
    Thread by: ME/CFS Skeptic, Jun 10, 2020, 2 replies, in forum: Advocacy Projects and Campaigns
  10. Sly Saint
    Thread

    Systematic Review of the Epidemiological Burden of ME/CFS Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology 2020

    Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE...
    Thread by: Sly Saint, May 21, 2020, 5 replies, in forum: General ME/CFS news
  11. ME/CFS Skeptic
    Thread

    European ME Coalition (EMEC)

    The advocacy group of Evelien Van Den Brink and Francis Martin (of which I’m part) now has an official name and website. Check it out here:...
    Thread by: ME/CFS Skeptic, Apr 19, 2020, 11 replies, in forum: Advocacy Projects and Campaigns
  12. Sly Saint
    Thread

    The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of (ME/CFS): A Report from Euromene Apr 2020

    The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the...
    Thread by: Sly Saint, Apr 8, 2020, 3 replies, in forum: Research methodology news and research
  13. ME/CFS Skeptic
    Thread

    ME Action: The EU committee on petition is preparing a resolution on ME

    "Hi everyone! Time for an update: We have super important news! The Committee on Petitions is preparing a resolution on ME! This is the...
    Thread by: ME/CFS Skeptic, Feb 9, 2020, 68 replies, in forum: Advocacy Projects and Campaigns
  14. ME/CFS Skeptic
    Thread

    2020: How to sign the EU-petition on a request for funding for biomedical research on Myalgic Encephalomyelitis (No0204/2019)

    How to sign the EU-petition on a request for funding for biomedical research on Myalgic Encephalomyelitis (No0204/2019) 1) Go to the EU website:...
    Thread by: ME/CFS Skeptic, Feb 1, 2020, 4 replies, in forum: Advocacy Projects and Campaigns
  15. Sly Saint
    Thread

    (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union - Strand, Nacul (EUROMENE) 2019

    Abstract ME/CFS is a chronic, complex, multisystem disease that often limits the health and functioning of the affected patients. Diagnosing...
    Thread by: Sly Saint, Dec 6, 2019, 34 replies, in forum: ME/CFS research
  16. Andy
    Thread

    Survey: Consultation on the MULTI-ACT Patient Engagement Strategy

    This was highlighted in the December Invest in ME newsletter. Welcome to the MULTI-ACT Patient Engagement Survey MULTI-ACT is a 3-year European...
    Thread by: Andy, Dec 1, 2019, 3 replies, in forum: General disability topics and advocacy
  17. strategist
    Thread

    How could the EU best advance research into ME/CFS?

    Let's assume that the EU decides to make €2 million available for ME/CFS research and projects. What would be the best way to spend this money?
    Thread by: strategist, Nov 13, 2019, 5 replies, in forum: General Advocacy Discussions
  18. ahimsa
    Thread

    ME Activist Evelien Van Den Brink Testifies before EU Parliament

    News about Evelien's testimony to Parliament has already been posted on the thread about the EU Petition but I thought the testimony deserved its...
    Thread by: ahimsa, Oct 5, 2019, 1 replies, in forum: General Advocacy Discussions
  19. Jaybee00
    Thread

    MS research versus ME/CFS research

    So the big European MS meeting just finished a couple of days ago. The scientific program book is 131 pages long for a three day meeting!!...
    Thread by: Jaybee00, Sep 17, 2019, 34 replies, in forum: General ME/CFS news
  20. FMMM1
    Thread

    EU Petition 2019 - opportunity to lobby for funding for ME research

    A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the...
    Thread by: FMMM1, Jul 12, 2019, 150 replies, in forum: Petitions
Showing results 1 to 20 of 31
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