The European ME Coalition (EMEC) presents three new fact sheets about ME/CFS. We hope these will help to inform politicians and key policymakers...
(I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do...
What is the Conference on the Future of Europe? The Conference on the Future of Europe is a unique and timely opportunity for European citizens...
Is your age within the range of 18 to 35? Do you identify as a disabled person? Do you currently live in a European State? Do you have experience...
Full title: Perceptions of European ME/CFS Experts Concerning Knowledge and Understanding of ME/CFS among Primary Care Physicians in Europe: A...
Not sure which forum this should go in. How to cite: Nacul, L.; Authier, J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.; Alegre Martin, J.;...
"Some people particularly benefit from physical therapy, while others are more in need of support from a psychologist."...
Parliament wants to increase EU funding in order to advance research on diagnostic tests and treatment of Myalgic Encephalomyelitis/Chronic...
Press Release from the European ME coalition (EMEC): 'Scientists call for more European research on ME/CFS' Brussels, 10 June 2020 More than one...
Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE...
The advocacy group of Evelien Van Den Brink and Francis Martin (of which I’m part) now has an official name and website. Check it out here:...
The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the...
"Hi everyone! Time for an update: We have super important news! The Committee on Petitions is preparing a resolution on ME! This is the...
How to sign the EU-petition on a request for funding for biomedical research on Myalgic Encephalomyelitis (No0204/2019) 1) Go to the EU website:...
Abstract ME/CFS is a chronic, complex, multisystem disease that often limits the health and functioning of the affected patients. Diagnosing...
This was highlighted in the December Invest in ME newsletter. Welcome to the MULTI-ACT Patient Engagement Survey MULTI-ACT is a 3-year European...
Let's assume that the EU decides to make €2 million available for ME/CFS research and projects. What would be the best way to spend this money?
News about Evelien's testimony to Parliament has already been posted on the thread about the EU Petition but I thought the testimony deserved its...
So the big European MS meeting just finished a couple of days ago. The scientific program book is 131 pages long for a three day meeting!!...
A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the...
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