Dr. Hilary Robertson (ME|FM Society of BC) and Dr. Luis Nacul (BC Women’s Hospital’s Complex Chronic Diseases Program) would like to invite you to complete a short
5 minute survey as part of a community engagement project funded by the Vancouver Foundation.
This project is about patient and clinical stakeholder experiences with Myalgic Encephalomyelitis (ME; also called Chronic Fatigue Syndrome) in BC. It is important to examine ME patient and health service needs within the provincial context to improve patient care and support, and to inform policy decision making in our province.
To date, a needs assessment of this type has not been completed in BC, nor elsewhere in Canada. The larger goal is to inform a framework for a larger and more robust provincial ME needs assessment study.
This project is currently seeking participation from varied types of clinicians and healthcare decision makers across BC. All types of clinicians to participate, regardless of clinical experience with ME patients are encouraged to participate. This survey will add to the information from 25 patient-interviews from across BC.
If you would like to participate, please click on the link below and complete the form. Please be advised that no personal identifying information will be retained. If you would like to be included for a draw of one of two $100 gift cards, there will be an opportunity to add contact information (which will not be linked to survey data).
The survey will be open until August 4, 2020: https://forms.gle/bCqNYpXPv4rG9LBt5
If you have any questions related to this survey please contact our Co-Lead Researcher: Hilary Robertson, PhD at
hilary.robertson@mefm.bc.ca or Lana LeBlanc, MPH, Research Co-ordinator at
research@mefm.bc.ca.
