My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her....
Most of the public stuff we see from medical and public health bodies is theater, political posturing. Whatever they say in public doesn't matter...
How to be an Effective Advocate for a Disabled Patient https://www.disabledginger.com/p/how-to-be-an-effective-advocate-for Disabled patients are...
Abstract: A group of debilitating health conditions disproportionately impacting women, increasingly known as ‘energy limiting conditions’, is...
I’m curious.
Impact of long COVID on health-related quality-of-life: an OpenSAFELY population cohort study using patient-reported outcome measures OpenPROMPT...
Disability News Service DWP set to waste thousands fighting release of two secret reports The Department for Work and Pensions (DWP) is set to...
For the past five decades, patients with myalgic encephalomyelitis (ME) have struggled against the stereotype that their symptoms are “all in...
6% of Workers' Comp Cases Are for Long COVID, But Many Can't Collect https://www.medscape.com/viewarticle/997416 (no paywall but may require...
Free fulltext: https://www.cpj.edu.in/wp-content/uploads/2023/07/CPJ-Law-Journal-Issue-2-min.pdf#page=545 Rights of the Persons with Invisible...
ONS Health state life expectancies, UK: 2018 to 2020 1. Main Points Healthy life expectancy (HLE) at birth in the UK showed no significant...
Fit For Work – Three Part Series on BBC Radio 4 by Jolyon Jenkins "For 30 years, governments have tried to get disabled people into work by...
Ordeals and the Empathy Gap Sam Freedman 'Comment is Freed' substack Long read, UK focused but wider relevance: Exerpt An under-discussed...
The Oxford Handbook of the Sociology of Disability Robyn Lewis Brown (ed.), Michelle Maroto (ed.), David Pettinicchio (ed.) The Oxford Handbook...
Resolution Foundation Costly differences: Living standards for working-age people with disabilities Omar El Dessouky & Charlie McCurdy The cost...
[I didn't know where to put this - please move if needed] Seen on twitter: a “Science Journalism & Disability” Pop-up Panel & Discussion is...
A couple of months old but of relevance as Coffey is now the Secretary of State for Health and Social Care: "MPs have asked the work and pensions...
Joseph Roundtree Foundation, "From disability to destitution", 2022, Tom Clark and Peter Matejic "The official story on poverty among disabled...
I'm not sure whether this document has any "teeth" (a way to enforce it) but I thought this might be helpful for disabled folks in the USA who are...
'Looking Forward' to Another Year of ME.... This Chronic Elephant Blog is about how coping with the daunting prospect of another year of ME:...
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