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disability

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  1. hellytheelephant
    Thread

    The Chronic Elephant blog by hellytheelephant

    'Looking Forward' to Another Year of ME.... This Chronic Elephant Blog is about how coping with the daunting prospect of another year of ME:...
    Thread by: hellytheelephant, Feb 4, 2018, 76 replies, in forum: Relationships and coping
  2. Andy
    Thread

    UK: Call for action on ‘unique’ barriers facing people with energy-limiting impairments

    "A major survey has shown the significant – and often unique – barriers faced by people with energy-limiting conditions (ELC). Nearly every...
    Thread by: Andy, Dec 20, 2021, 1 replies, in forum: General disability topics and advocacy
  3. ahimsa
    Thread

    USA: News from #MEAction

    This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December...
    Thread by: ahimsa, Nov 9, 2017, 41 replies, in forum: News from organisations
  4. rvallee
    Thread

    Current forms and checklists for disability

    I'm probably asking for something that already exists in a thread somewhere but can't find what I'm looking for and I can't figure out the terms...
    Thread by: rvallee, Sep 18, 2021, 12 replies, in forum: Work, Finances and Disability Insurance
  5. Andy
    Thread

    Disability Rights UK/Chronic Illness Inclusion evidence gathering survey on potential collaboration between different illness groups, closes 25th Sept

    This survey is part of a collaboration between Disability Rights UK and Chronic Illness Inclusion. The aim of this survey is to explore 1)...
    Thread by: Andy, Sep 4, 2021, 1 replies, in forum: General disability topics and advocacy
  6. Andy
    Thread

    Editorial: Lancet: "Disability—a neglected issue in public health"

    "More than 1 billion people, around 15% of the global population, have some form of disability. Disabilities include long-term sensory, mental,...
    Thread by: Andy, Jul 4, 2021, 4 replies, in forum: Other health news and research
  7. rvallee
    Thread

    Massive Science article: We must reckon with our ableism if we want healthcare to work for people

    This is the kind of issue that makes physicians roll their eyes, which is exactly why it is important to discuss as it can't be fixed from the...
    Thread by: rvallee, Jun 17, 2021, 32 replies, in forum: General disability topics and advocacy
  8. Dolphin
    Thread

    Forbes article: We Need To Rethink The Penalties And Rewards Of Identifying As “Disabled”, 2021, Pulrang

    We Need To Rethink The Penalties And Rewards Of Identifying As “Disabled”...
    Thread by: Dolphin, May 25, 2021, 0 replies, in forum: General disability topics and advocacy
  9. Andy
    Thread

    UK: Video: Disability employment gap - Commons Work and Pensions Committee - 28 April 2021

    "The Commons Work and Pensions Committee is investigating the gap between the employment rates of disabled and non-disabled people and how the...
    Thread by: Andy, Apr 29, 2021, 4 replies, in forum: General disability topics and advocacy
  10. Andy
    Thread

    UK: BBC survey: the experiences of disabled people in the UK during the Covid-19 pandemic

    "How has Covid–19 affected you? @BBCNews wants to hear from deaf & disabled people. What impact has the pandemic had on your health, your...
    Thread by: Andy, Apr 27, 2021, 3 replies, in forum: General disability topics and advocacy
  11. MeSci
    Thread

    The disabled doctors not believed by their colleagues

    (Not sure whether I've posted this before) 19 April People often feel nervous when they visit a doctor with some fearing their symptoms may not...
    Thread by: MeSci, Apr 26, 2021, 11 replies, in forum: Other psychosomatic news and research
  12. Roy S
    Thread

    USA: PBS NewsHour segment April 2021 features disability advocate Rivka Solomon discussing ME/cfs and long COVID

    Rivka on Twitter: "Tonight, the @PBS @NewsHour w/ @JudyWoodruff airs a piece on #MEcfs. Thx to an amazing @MassMECFS volunteer for this graphic....
    Thread by: Roy S, Apr 22, 2021, 16 replies, in forum: General ME/CFS news
  13. InitialConditions
    Thread

    [Blog] How Singer-Songwriter John Prine Helped Me Accept A Life of Illness

    This is a beautiful piece about becoming chronically ill, learning to cope under the extreme burden, and accepting a new reality. It was written...
    Thread by: InitialConditions, Apr 8, 2021, 11 replies, in forum: Relationships and coping
  14. Andy
    Thread

    Research survey: Young Disabled People’s Views and Experiences of Disability Activism across Europe

    Is your age within the range of 18 to 35? Do you identify as a disabled person? Do you currently live in a European State? Do you have experience...
    Thread by: Andy, Apr 5, 2021, 1 replies, in forum: General disability topics and advocacy
  15. Wyva
    Thread

    Washington Post article: How the able-bodied can do better with disabled neighbors like me (author has ME)

    By Litsa Dremousis "As is true for many disabled Americans, my health-care costs resemble pipe bombs that keep blowing up my bank account,...
    Thread by: Wyva, Apr 4, 2021, 0 replies, in forum: General ME/CFS news
  16. Andy
    Thread

    UK: Public survey to gather views and experiences for the National Strategy of Disabled People, closes 23rd April 2021

    The Disability Unit in the Cabinet Office is working with government colleagues, disabled people, disabled people’s organisations, charities and...
    Thread by: Andy, Jan 25, 2021, 4 replies, in forum: General disability topics and advocacy
  17. Andy
    Thread

    Video: Chronic illness and the social model of disability - Leonora Gunn

    Many people with chronic illnesses struggle to see the relevance of the social model of disability to their situation. In this video, Leonora...
    Thread by: Andy, Sep 24, 2020, 18 replies, in forum: Advocacy Projects and Campaigns
  18. Sly Saint
    Thread

    UK - EHRC (Equality and Human Rights Commission)failed to consult its own disabled advisers before snubbing DWP deaths probe: July 2020

    The equality watchdog failed to consult its own committee of disabled advisers before deciding not to investigate deaths of benefit claimants that...
    Thread by: Sly Saint, Jul 10, 2020, 8 replies, in forum: Other health news and research
  19. Andy
    Thread

    Documenting disability in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), 2020, Podell et al

    Background: According to the 2015 National Academy of Medicine report, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) “is a serious,...
    Thread by: Andy, Jun 23, 2020, 2 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Dolphin
    Thread

    (Thesis) Modeling Disability: Softly Making the Invisible Visible, 2020, Evan

    https://openscholarship.wustl.edu/cgi/viewcontent.cgi?article=1075&context=bfa The thesis contains some photographs. Washington University in St....
    Thread by: Dolphin, May 26, 2020, 0 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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