1. Guest, the 'News in Brief' for the week beginning 16th November 2020 is here.
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  3. Guest, NICE have published their draft guideline for ME/CFS, click here to read about it.
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disability

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  1. Sly Saint
    Thread

    UK - EHRC (Equality and Human Rights Commission)failed to consult its own disabled advisers before snubbing DWP deaths probe: July 2020

    The equality watchdog failed to consult its own committee of disabled advisers before deciding not to investigate deaths of benefit claimants that...
    Thread by: Sly Saint, Jul 10, 2020, 8 replies, in forum: Health News and Research unrelated to ME/CFS
  2. Sly Saint
    Thread

    Article (Canada): Park resident granted Premier’s Council Award May 2020

    A local resident has been awarded one of the province’s highest honours. Linda MacDonald, who lives in Sherwood Park, received the Premier’s...
    Thread by: Sly Saint, May 9, 2020, 0 replies, in forum: General ME/CFS News
  3. Sly Saint
    Thread

    Article in Guardian: Covid lockdown opening up world for people with disabilities Apr 2020

    While the coronavirus pandemic has led to unprecedented restrictions for billions of people, for many with disabilities, the lockdown has...
    Thread by: Sly Saint, Apr 20, 2020, 15 replies, in forum: Epidemics (including Covid-19)
  4. InitialConditions
    Thread

    UK: UC50 (Universal Credit) or PIP diary

    Has anyone submitted a diary along with their ESA/UC or PIP form? I am struggling with what to write and include. I've seen some PIP diaries...
    Thread by: InitialConditions, Apr 4, 2020, 21 replies, in forum: Work, Finances and Disability Insurance
  5. rvallee
    Thread

    'The victimisation was horrible': why are so many disabled lawyers treated badly?

    A new study says that more than half of disabled lawyers have experienced bullying or discrimination at work When Isobel Rogers, 29, who has...
    Thread by: rvallee, Feb 16, 2020, 0 replies, in forum: Work, Finances and Disability Insurance
  6. Sly Saint
    Thread

    Article: 'They don't know the reality': Artist living with ME says candidates need to listen to those who are disabled Jan 2020

    Corina Duyn had to open a window in her home to speak to a general election candidate – she could not get to the door because she is disabled....
    Thread by: Sly Saint, Jan 30, 2020, 0 replies, in forum: General ME/CFS News
  7. ladycatlover
    Thread

    Which computer for someone with Parkinson's Disease

    https://www.theguardian.com/technology/askjack/2020/jan/23/which-is-the-best-pc-for-someone-who-has-parkinsons I thought some of the suggestions...
    Thread by: ladycatlover, Jan 23, 2020, 7 replies, in forum: Lifestyle Management
  8. Sly Saint
    Thread

    Lincolnshire County Council; Children's social care 2020

    Eligibility Children may be assessed through our Early Help team, Social Care teams and/or the Children with Disabilities Team. In order for a...
    Thread by: Sly Saint, Jan 11, 2020, 1 replies, in forum: Information for NICE guidelines
  9. Sly Saint
    Thread

    New ASU (Arizona State University) degree program to provide more nuanced understanding of disability

    The Disabilities Studies program is one of only a few full degree programs like it, and it is open to students of all majors. “Not only do we...
    Thread by: Sly Saint, Oct 18, 2019, 0 replies, in forum: General ME/CFS News
  10. Trish
    Thread

    Huff Post: 'I Sometimes Feel Defeated By My Disability – And That's Okay', 2019, Pippa Stacey

    Excellent article in Huff Post by a woman with ME who was told to exercise, and suffered as a result. I Sometimes Feel Defeated By My Disability...
    Thread by: Trish, Oct 1, 2019, 3 replies, in forum: General ME/CFS News
  11. Sly Saint
    Thread

    US - The Sleepy Girl Guide to Social Security Disability

    For people in US This guide is designed for anyone who is homebound and for people with Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, Lyme...
    Thread by: Sly Saint, Jun 23, 2019, 1 replies, in forum: Work, Finances and Disability Insurance
  12. Sly Saint
    Thread

    Civil Service blog - Personal Disability Stories - Kays story (ME sufferer)

    In January, I shared Emma’s and Therese’s stories of having an autoimmune condition. This struck a chord with many readers and generated lots of...
    Thread by: Sly Saint, May 4, 2019, 2 replies, in forum: General ME/CFS News
  13. WillowJ
    Thread

    Community participation and inclusion: people with disabilities defining their place. Milner, Kelly

    Paul Milner & Berni Kelly (2009) Community participation and inclusion: people with disabilities defining their place, Disability & Society, 24:1,...
    Thread by: WillowJ, Apr 24, 2019, 9 replies, in forum: General disability topics and advocacy
  14. Sly Saint
    Thread

    EU Disability forum - Call for stories! Has your disability affected your financial stability and social inclusion?

    [MEDIA]
    Thread by: Sly Saint, Apr 24, 2019, 0 replies, in forum: Advocacy Action Alerts
  15. ladycatlover
    Thread

    BBC1 Doctors 17 April 2019 Storyline about PIP (UK benefit)

    Warning - this may be a programme that is upsetting for PIP claimants, or those awaiting a PIP assessment. On the other hand, it at least shows...
    Thread by: ladycatlover, Apr 17, 2019, 1 replies, in forum: Work, Finances and Disability Insurance
  16. Andy
    Thread

    UK: The APPG for Disability are looking for stories of issues with PIP

    Twitter post from them [MEDIA] Email that can be used: Appgsecretariat@disabilityrightsuk.org
    Thread by: Andy, Jan 19, 2019, 0 replies, in forum: Work, Finances and Disability Insurance
  17. Andy
    Thread

    Six Ways of Looking at Crip Time by Ellen Samuels

    Abstract In this creative nonfiction essay, the author reflects on how 'crip time' has operated in their life, not only as a form of liberation,...
    Thread by: Andy, Dec 14, 2018, 0 replies, in forum: Health News and Research unrelated to ME/CFS
  18. Webdog
    Thread

    Brain volume loss is present in Japanese multiple sclerosis patients with no evidence of disease activity (2018) Yokote et al.

    Brain volume loss in Multiple Sclerosis patients with no evidence of disease activity predicts future disability. Brain atrophy has recently been...
    Thread by: Webdog, Jul 6, 2018, 2 replies, in forum: Health News and Research unrelated to ME/CFS
  19. Cheshire
    Thread

    Functional Status and Well-Being in People with ME/CFS Compared with People with MS and Healthy Controls (2018) Kingdon and al.

    Caroline C. Kingdon, Erinna W. Bowman, Hayley Curran, Luis Nacul, Eliana M. Lacerda Background People with myalgic encephalomyelitis/chronic...
    Thread by: Cheshire, Mar 13, 2018, 25 replies, in forum: BioMedical ME/CFS Research
  20. Andy
    Thread

    Emerge Australia submission to the Joint Standing Committee on the National Disability Insurance Scheme

    Emerge Australia submission to the Joint Standing Committee on the National Disability Insurance Scheme. Last week Emerge Australia made a...
    Thread by: Andy, Mar 5, 2018, 0 replies, in forum: Work, Finances and Disability Insurance
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