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Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

Discussion in 'Petitions' started by Sly Saint, Feb 23, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    thanks Tom............clearly luck of the Irish has helped ........

    3600
     
    MEMarge, Andy, NelliePledge and 2 others like this.
  2. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Yes and not far off 3700 now so hopefully the ripples from Toms postings will help push it over 4000 and towards 5000.

    What about Jen Brea. Any ideas on how to contact her?

    ETA tagged Jen in a post on PR
     
    Last edited: Mar 10, 2018
    MEMarge, MeSci and Keela Too like this.
  3. AndyPandy

    AndyPandy Senior Member (Voting Rights)

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    Signed today.

    Didn't realise that people outside the UK could sign. Thought I'd try anyway and it worked.
     
  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  5. Forestvon

    Forestvon Senior Member (Voting Rights)

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    There are a number of petitions (4, I think) re ME going round atm and it is hard to get people to keep signing different ones and confusing too as they can think they have already signed.
    NB the Change.org ones are worldwide.
    When MEA petition was going round think it was the only one.
     
    Binkie4, MEMarge and Skycloud like this.
  6. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    3814 now
     
    Hutan, Binkie4, Jan and 5 others like this.
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    "Ellen Goudsmit
    2 weeks ago ago

    As a scientist, it’s hard to justify the continued recommendation for two interventions consistently linked to an exacerbation if the illness. I made NICE aware of factual errors which impacted on their advice. Their response was that they really didn’t care. That’s not an acceptable attitude on science. I believe that given the evidence, any patient can now sue any doctor advocating GET based on the NICE guidelines, as the latter is no longer medically sustainable. NICE can’t delay a change in advice for so long. It will cause needless distress."

    3948

    You can like comments (see Nigel Speights from 2 weeks ago)

    eta: for those on twitter and FB, when you like a comment you can also tweet it/fb it
     
    Last edited: Mar 13, 2018
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  10. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  11. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Hi @JenB welcome tagging you onto this thread to ask please can you share this petition
    Thanks
     
  12. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    4201
     
    Binkie4, dangermouse and Jan like this.
  13. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Yes it’s slowed down after a good burst following Tom sharing. I’ve tried contacting @JenB in different routes. Appreciate if anyone who is in regular contact can draw it to her attention.
     
  14. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    If only half of her 17,000 followers signed..............

    eta: ditto Action for ME (although they have less followers)
     
  15. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  16. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    4409

    really slowed down.
    please keep sharing.
     
  17. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Now had a bit of an uplift to 4540 another push on sharing following a bit of a hiatus while some involved were diverting efforts onto support for to Dr Ms GMC complaint.
     
  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  19. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    well, I don't know who shared it (yesterday it had barely moved), but thanks whoever you are:

    4777
     
    Last edited: Apr 8, 2018
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  20. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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