Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

The photo is of a doctor doing a facepalm, which sends entirely the wrong message. What's she thinking - "Oh no, not another ME patient!"

 

does anyone know how to contact Robin?

https://twitter.com/user/status/967071788634165250


3020

 

Robin is active on ME Action - facebook page?

 

Never saw it that way until you said, and still don't now. To me it shows a doctor holding her head in her hand, as people do when shattered; her posture is just the same as when you have your elbow on the desk for support.

 

Well I was being a bit silly. But just the fact that it's another pretty woman looking tired at her desk is annoying enough.

 

True, but if that is actually a picture of the real doctor, then you can't blame her for the way she looks ... I'd assumed it was as I've seen that picture on her own website somewhere, but cannot now find where. But I may have just got my wires crossed for a change.

Edit: This is who I was thinking of, Dr. K.N. Hng. . Still don't know if that picture is of her or not though.

Edit 2: I see @MEMarge beat me to it .

 

It might be worth writing to the male MP from the debate in Parliament the other week. As he had expressed concern about GET and suggested removing it until the new guideline is published. Telling him that there is no way of flagging non pharmacological treatments that cause harm might help add weight to his demand to remove. Also it might give him and the other MPs another issue to bring up when the next debate comes round.
I think I saw that he had written a question to parliament on whether NICE had details of how many people were harmed. So he obviously still cares about this part of the problem and he may be able to ask another question as to why there is no yellow card system for these treatments.

 

This doctor has a fairly active Facebook Group, could message her, via this:
Dr Hng's ME/CFS Friends

The book is OK. It is an easy read and does include relevant info/descriptions.
It did annoy my daughter, due to refs to being ultra busy, burnout style, but keeping going as long as she could.....

 

Re the Yellow card thing

Keep an eye out this or next week. My own MP, Jim Shannon, has given me the head's up that he will ask this question soon.

 

Jim Shannon has now asked this question. The info is in this post in the Questions thread:

https://www.s4me.info/threads/uk-house-of-lords-house-of-commons-questions.707/page-4#post-50241

 

Nigel Speight commented:
"
Nigel Speight
1 week ago ago
As a paediatrician I see case after case of young people with ME. CBT proves virtually always ineffectual and GET almost universally harmful, sometimes with long term effects. These treatments should be consigned to the dustbin of history.

3087

 

This poor woman has a whole host of problems, and is popping up everywhere:

https://www.asianscientist.com/2016/07/academia/10-things-starting-medical-school/

https://sorryworks.net/blog/1130

https://www.clinicaladvisor.com/sui...-symptoms-in-medical-symptoms/article/577455/

etc etc

 

Now at 3111, https://www.change.org/p/nice-stop-harming-me-cfs-patients-remove-cbt-get-out-of-nice-now

 

now at 3200

 

https://twitter.com/user/status/967071788634165250


@dave30th please retweet

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eta:
it was retweeted by #MEAction
https://twitter.com/user/status/967011838650212352

still can't find it on Jen Breas FB or twitter tho

3373

 

anyone who has tweeted please tweet again.
share on as many FBs pages as you can.
currently going up at the rate of about 100 a day.

3450

 

Done