News about Long Covid including its relationship to ME/CFS 2020 to 2021

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Dolphin said:
The doctor says at one point it’s not like other post viral syndromes, which may or may not be true. The blood vessel angle is interesting but again some ME/CFS research has found abnormalities in this area.
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Based on my reading of retrospective studies, I would say no two post infectious syndrome types are the same except for the ME/CFS symptoms, meaning you will have a cluster of symptoms that are specific to the initial infection that eventually is self limiting, though not necessarily the ME symptoms that came with them.
 
Wits_End said:
I know there's been quite a bit of speculation that Boris Johnson may have it, or at least not have recovered particularly well from the original illness.
If someone in his position were to discuss it publicly, people would certainly listen.
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I think it would be extremely unlikely he would. Just look at his fairly recent little push-ups stunt where he attempted to prove how fit he was post Covid-19. But, in general, yes, it would be great if someone did.
 
Tom Bosworth: British race walker rules out competing this season after long-lasting effects of coronavirus
"I did get back to training in May and went too hard, I really pushed my body, and it all just flared back up like the effects of any virus, neural effects, joint pain, that sort of thing, it all came back."

He added: "We really did take it slowly the first week or so and it felt like it was fine.

"But then as the days went on, and I built up training - and we're just talking about training once a day, I usually train twice a day - and by the end of a few weeks of that it was back to square one and literally putting one foot in front of another was so painful."
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https://www.bbc.co.uk/sport/athletics/54010324
 
NIH - Director's Blog - by Francis Collins
Citizen Scientists Take on the Challenge of Long-Haul COVID-19

More information is now emerging from the first detailed patient survey of post-COVID syndrome, also known as Long COVID [1]. What’s unique about the survey is that it has been issued by a group of individuals who are struggling with the syndrome themselves. These citizen scientists, who belong to the online Body Politic COVID-19 Support Group , decided to take matters into their own hands. They already had a pretty good grip on what sort of questions to ask, as well as online access to hundreds of long-haulers to whom they could pose the questions.
 
NIH director who refused to act despite saying there is no hope without action has words to say, not much action to show for it.


Citizen Scientists Take on the Challenge of Long-Haul COVID-19

https://directorsblog.nih.gov/2020/...-take-on-the-challenge-of-long-haul-covid-19/


Only some "citizen science", I guess. But also the usual kind of science, which has clearly shown that significant actions should have been taken years ago. The NIH has been sitting for 5 years on the IOM report. Way past the point of willful negligence.

No matter what happens moving forward, it is critical that ample blame be laid on those who manufactured this crisis in the pursuit of insane ideological delusions, at best for enabling this clearly delusional nonsense. Even if that blame must be laid on those tasked with fixing it, maybe especially so. Collins could have acted, even told us the emptiest possible words to our (virtual) faces: no hope without action. Well, no significant action was taken, hence the continuing hopelessness.
 


This is where the MUS/FND/BPS conflict with reality, NHS explicitly advise to do the opposite of that, trains and encourages GPs to dismiss those patients, shunt them off to the psychobabble bin. Maybe in people with confirmed tests this could work but most don't have that so no dice.



The entire BPS ideology is incompatible with this. So now what? BPS is clearly a massive disaster that needs to be dismantled, but too much escalation of commitment makes it impossible without admitting to manufactured failure, careers going down in flame, massive litigation.

Extraordinary claims. Extraordinary evidence. Always heed that. Good grief people heed that when millions of lives are at stake.
 
Andy said:
Tom Bosworth: British race walker rules out competing this season after long-lasting effects of coronavirus

https://www.bbc.co.uk/sport/athletics/54010324
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Poor Tom. He's had enough to deal with in recent years without this. God willing, sooner or later he will actually reap the rewards which his undoubted abilities deserve, but now he's back at about square one due to the training equivalent of GET :(
 
Kalliope said:
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David Tuller is a senior fellow in public health and journalism at UC Berkeley’s Center for Global Public Health. He received a master’s degree in public health in 2006 and a doctor of public health degree in 2013, both from Berkeley. He was a reporter and editor for 10 years at The San Francisco Chronicle and served as health editor at Salon.com. He has written regularly about public health and medical issues for The New York Times, the policy journal Health Affairs, and many other publications. Since 2015, he has been investigating scientific, methodological and ethical problems with research on the illness, or cluster of illnesses, variously known as myalgic encephalomyelitis, chronic fatigue syndrome, ME/CFS or CFS/ME. His ongoing series on this issue is called “Trial By Error.”
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good to see proper recognition for 'a man called David Tuller'

see
https://www.s4me.info/threads/indep...ed-by-hilda-bastian.13645/page-28#post-267207
 
Last night on CNN Chris Como interviewed Dr. William Li who says it appears that COVID is a 'blood vessel disease' causing severe damage to the vascular system, which would explain why the virus seems to be affecting all organs.

Dr Li is an internal medicine physician and a research scientist—specifically a vascular biologist. He’s been actively involved in angiogenesis research and clinical analysis for more than two decades. Angiogenesis is the development of new blood vessels and Dr. Li is one of the world’s leading experts in this field.
 
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