News about Long Covid including its relationship to ME/CFS 2020 to 2021

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For those who live in USA or have access to CNN US, I totally recommend watching Cuomo Prime Time weeknights at 9pm EST.

Chris Cuomo got COVID in April and was sick with fairly mild illness. The way he described his symptoms and severity it was pretty much a similar level as my EBV infection that caused ME.

Chris Cuomo has long COVID and he’s mentioned on air some of his symptoms and they are some of the most common symptoms of ME/CFS, though he hasn’t mentioned PEM.

He actually mentioned on air the words myalgic encephalomyelitis/chronic fatigue syndrome and that doctors told him if his symptoms persists then he might have that. He also has news stories and discussions about long COVID most evenings, nothing too deep, but it’s commendable that he cares about this to make it a constant theme in his program.
 
Dolphin said:
Nice article but no mention about COVID except for this extract. Be warned that probably more than half is not about his illness (it’s mainly about football); but plenty also about his ME.
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It is a good article, one that might convince some people not sure that ME is 'a thing'. I've copied the link to a thread with another article about Davie Provan.
Davie Provan - ex-footballer with ME
 
I forgot to mention that one of my strangest ME symptoms from the beginning was that it made my hair immediately change and to fall out constantly. When my symptoms ramp up the hair loss also gets worse. I’ve mentioned it years ago on threads on PR and if I remember correctly not a lot of people had the same symptom.

Well with long COVID a major symptom is hair loss, I thought that was really interesting.
 
leokitten said:
Cuomo is on now with another long COVID segment and a person is on now and talking about her PEM from long COVID! She was a personal trainer before COVID and now even light yoga lands her in bed for days with horrible symptoms and aches and pains.
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Wonder if this is available anywhere? I did a few searches on Twitter with his username: quite a lot of people were commenting on it but no luck with a recording. Not that important of course.
 
Title : Still ill six months later: 'I have no idea how to get better'

Link : https://www.bbc.co.uk/news/stories-53948028

Monique Jackson believes she caught Covid-19 early in the pandemic and nearly six months later she's still unwell. One of thousands in this position, she has been keeping an illustrated diary about her symptoms and her vain attempts to get treatment.
About a year ago, Monique Jackson watched a Ted talk about mushrooms and was enthralled. Fungi, the speaker said, are the original world wide web, they have a network that runs under entire forests; it enables trees to help each other if they get into trouble.
These days, as she battles the coronavirus for the 24th week in a row, it's something she thinks about often.
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@Dolphin CNN have a youtube page. I don't think you can watch whole shows but they have lots of long (10mins ish) clips, including ones by Cuomo. Or if you know the name of who he's interviewing, and type them both into youtube sometimes you get lucky and someone has uploaded the clip. Hope that helps. Kx
 
CNN Cuomo Prime Time doing another segment on COVID long haul tonight.

He listed some of his symptoms again:

Brain fog and fatigue particularly getting worse at night
Word recall issues
Mental acuity problems
Random joint pains (getting worse over time)
Depression and emotional lability (getting worse over time)
No enthusiasm for things like before COVID
 
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Without more data, both doctors and patients are left with few resources in the middle of a fast-moving pandemic. “We’re going to need to develop a training manual to help professionals deal with this crisis,” said Leonard Jason, director of the DePaul Center for Community Research. After being contacted for this article, he began creating a survey to study pediatric long-term Covid symptoms. “It’s not that you can’t do anything. It’s just that most physicians have no idea how to treat things like this.”

Undark When Children's Covid-19 Symptoms Won't Go Away
 
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A rather good article in the Norwegian newspaper VG today about ME as a possible consequence of Covid-19 (apart from the title where ME is called 'chronic tiredness').

It mentions a research project where the national patient register will follow hospitalised Covid-19 patients over two years and make their data available for other researchers.

Doctor and deputy in the Swedish patient organisation Eriksson talks about the historic connection between viruses and ME and says it's important not to overdo things. If the symptoms continues for months and you're not able to exert yourself, you should contact health care personnel, he advices. He also talks about the importance of pacing.

Researcher Marte K. Viken says ME is a complex and stigmatised disease and that it will be interesting to follow Covid-19 research.

Doctor Björn Bragée is also interviewed and hopes the epidemic will lead to better understanding of ME patients situation.

Fauci's quote on Covid-19 and ME is also mentioned.

Article is paywalled.

VG: Ekspertene advarer: Frykter corona kan gjøre noen kronisk trøtte (Experts warn: Fear that corona may make some chronic tired)
 
Kalliope said:
If the symptoms continues for months and you're not able to exert yourself, you should contact health care personnel, he advices
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But. Overexerting themselves is literally what health care personnel will advise, eventually anyway. That's a big problem, pretending otherwise is really not helping. I understand it's hard to admit to catastrophic failure but the current system is explicitly built to fail those patients, advising to work with the current failing guidelines is not at all helpful. It's exactly what long-haulers are doing and finding no help whatsoever.

This must all be so much confusing given the major boners Norwegian medicine has for ME denial, so much contradictory coverage in recent months, two different realities existing at once with somehow very few people aware of the blatant contradictions.
 
Yet Another Global Health Crisis Awaits the World After The Coronavirus Pandemic

https://www.news18.com/news/india/y...he-world-after-covid-19-pandemic-2839373.html


There is no end to the coronavirus pandemic in sight yet and the world is already staring at another health crisis: the Covid-19 aftermath. They call it the “post-Covid syndrome”.
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According to a research paper posted by America’s National Institute of Health and similar papers published by other health-science entities, post-Covid syndrome can cause patients even to have nervous, immune, and metabolic system abnormalities, all affecting the body in sync, similar to a health illness known as chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME), that was identified 70 years ago. ME is a long-term-effect health problem that deteriorates our strength and body.

Hospitals and doctors say many recovered patients are complaining about and being re-hospitalised for severe fatigue, brain fog, body ache and pain and immune aberrations, all ME symptoms. In severe cases, ME can also disable the whole body.

According to Dr Anthony Fauci, top American infectious disease expert, countries need to consider seriously that what many patients are facing is strikingly similar to ME. “This is not a virus to take lightly, even with young people,” Fauci said in an interview with Facebook CEO, Mark Zuckerberg.
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SARS, MERS and Epstein-Barr virus triggered ME in many patients but if the same happens with SARS-CoV-2 or Covid-19 virus, we cannot imagine the problems associated with it, seeing the global pandemic caused by it. There is no test available so far for ME, no scientific details on its origin, no cure available so far, no approved drugs and too few experts to talk about it. A 2015 study by the National Medicine in the US estimated that up to 2.5 million Americans suffered from ME.

There is no information on how many Covid-19 patients may end up having ME. According to Leonard Jason, a professor and an ME researcher at DePaul University in Chicago, said based on older research, 10% or an even larger number of Covid-19 patients may develop ME if they feel symptoms even after six months. That means a possibility of 2.5 million ME cases globally or 3.5 lakh cases in India, if we go by the current Covid-19 numbers.

Professor Jason adds that though the threshold is six months to see if post-recovery symptoms were shorter-lived viral syndrome or ME, the same cannot be applied if it is after Covid-19 recovery as very little is known about the novel coronavirus and “there are more questions than answers”.
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Actually the crisis is already here, no need to imagine anything about how it will unfold, we already know what medicine will do when faced with that crisis: faceplant, deny, misdirect, lie lie lie. It's necessary to acknowledge, understand and fix the failure that lead to this in order to make progress. The current system created that failure, it must be reformed, the factors that created this massive human rights disaster have to be dismantled.
 
128 Days Later: What It's Like To Live With Long Covid

Long Covid is a term used to describe an illness in people who have recovered from Covid-19 but continue to suffer symptoms many weeks and often months later. It is thought to affect around one in 10 people who develop Covid-19. The lasting effects can be debilitating and include symptoms such as fatigue, breathing problems and hair loss. Here, we follow 'long hauler' Sophie Wilson as she tries to adjust to a life with ...
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https://www.huffingtonpost.co.uk/en...vWQXaVrrixCdFwyJwW1QLLhwDOKu89Mcwyy7JCga2Xow4

Old wine in very old bottles.
 
I still wonder why our leaders don't talk about Long Covid. By now, every health minister must know, for sure.

WHO has addressed it.

Many governments struggle to justify their lockdown rules due to seemingly "low" death rates. Wouldn't talking about long term health struggles a good point to make then?

What would be the rationale behind leaving that out?
 
leokitten said:
CNN Cuomo Prime Time doing another segment on COVID long haul tonight.

He listed some of his symptoms again:

Brain fog and fatigue particularly getting worse at night
Word recall issues
Mental acuity problems
Random joint pains (getting worse over time)
Depression and emotional lability (getting worse over time)
No enthusiasm for things like before COVID
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Probably this one:

 
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