michael sharpe@profmsharpe To CFS and ME patients and activists. I am grateful to those who engage in genuine dialogue. Unfortunately not all do and some waste time playing games of 'gotcha'. I am sorry but life is just too short and those playing games will be blocked. A lost opportunity.
20:51 - 25 Jun 20
Might it be an idea to make this thread members only?
Might it be an idea to make this thread members only?
I don’t think we have anything to hide.Might it be an idea to make this thread members only?
I don’t think we have anything to hide.
In fact he is welcome to be a member as long as he respects our values....what’s the one about critical debate ?
I would probably give him about 2 days though before he broke a few though. Disrespecting other members might be a tricky one for him since most twitter threads I’ve noticed end with him making personal remarks about people offering up critiques and then banning them.
Damn it another "missed opportunity" for us then!I think this forum would be a terrible medium for Sharpe, because unlike twitter, there's no character limit and he can't block anyone. He would have no chance with elaborate and well argued responses from members to his nonsense. That's one of the reasons why he's not here and will never be.
Even funnier, even heavily stacked, PACE still didn't produce a good result for them.They used the wrong protocol for that test, which has a known bias. As always the known bias is in favour of their hypothesis. Funny its never the other way around.
Yes, I keep wondering why with so many favourable biases they got such terrible results with no statistically significant difference between arms at long term follow-up.Even funnier, even heavily stacked, PACE still didn't produce a good result for them.
I think it can be argued (by someone smarter than me), that if patient trust is high, they may be unaware of harm. So the ability to say there was no harm is not a statement that can be made with confidence. There may be some first hand documents of harm submitted to Myhill's GMC case against PACE. If so, I wonder if they will be available publicly once details of the GMC case are published.
Sorry, but I am going to block you because you keep asking questions that I want to avoid answering. This is 'deaf dialogue' and we're just going around in circles.
A new thread has been set up here where reports from PACE trial participants (on harm experienced as well as other aspects) can be recorded.
We feel that the posts in this thread with such reports should stay as an integral part of this rambling thread. But posters who posted PACE trial participant reports are encouraged to copy them in to the new thread.
I vote we start this expanded research project with the correlation calculations on the full PACE data set."More research is needed to find out why there is such a difference."
Prof. Sharpe
So sad, you'll never again get to sit at his feet and hear his great words of wisdom @Lucibee @JohnTheJack and @Joh