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Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME: interviews with adolescents and parents, 2018, Crawley et al

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Amw66, Dec 5, 2018.

  1. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    4,990
    Unfortunately there is no biological or objective evidence/research mentioned here either.

    I didn't come across anything that suggests the authors weren't anything other than sympathetic in how they presented their findings.
    However I'm not sure sceptic would find the results that interesting.
    And I think if one was so inclined, one might think that a lot of the impairment was down to mood and adolescents not doing things for no particular reason.
     
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  2. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    4,990
    There may be some value in the paper in terms of the particular wordings adolescents and/or their parents used to describe symptoms, their impairments, etc.

    Two quotes I highlighted to myself were
    But I'm not sure they or other quotes are that interesting so I'm not sure I'm going to spend time highlighting them.

    So overall I found it a bit bland.
     
  3. NelliePledge

    NelliePledge Moderator Staff Member

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    Location:
    UK West Midlands
    Omg they’ve got 13 year olds on amitryptiline
     
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  4. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  5. Amw66

    Amw66 Senior Member (Voting Rights)

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    Yes, it' s the go- to for sleep and pain. The only prescription our paediatrician would countenance.
    Lots of kids on this .
     
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  6. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,145
    Location:
    UK West Midlands
    Yuk I found it made me so sluggish and it wasn’t that effective after a while and I’m a middle aged chunky woman. I know drugs affect different people in different ways but I find it concerning they can’t come up with something better. Nortryptiline had less of a hangover for me so may be worth trying but it still made me too lethargic so I stopped in the end. I’m mild moderate though so my experience not that useful for any severe folks.
     
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  7. Amw66

    Amw66 Senior Member (Voting Rights)

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    My concerns were what effect it would have on a developing brain . I could not find any info re testing on children.
     

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