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outcomes

  1. Sly Saint
    Thread

    Corrected proof: Treatment outcome in adults with CFS: a prospective study in England based on the CFS/ME National Outcomes Database- Crawley,White

    Treatment outcome in adults with chronic fatigue syndrome: a prospective study in England based on the CFS/ME National Outcomes Database E...
    Thread by: Sly Saint, Jun 30, 2020, 4 replies, in forum: PsychoSocial ME/CFS Research
  2. Sly Saint
    Thread

    Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME - Crawley et al Jan 2020

    Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic...
    Thread by: Sly Saint, Jan 7, 2020, 8 replies, in forum: PsychoSocial ME/CFS Research
  3. Sly Saint
    Thread

    Developing and pretesting a new patient reported outcome measure for paediatric CFS/ME: cognitive interviews with children Nov 2019 Crawley et al

    Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME):...
    Thread by: Sly Saint, Nov 10, 2019, 7 replies, in forum: PsychoSocial ME/CFS Research
  4. Andy
    Thread

    COMPare Trials, Ben Goldacre et al

    Two papers published today on the same subject, first: COMPare: a prospective cohort study correcting and monitoring 58 misreported trials in...
    Thread by: Andy, Feb 14, 2019, 22 replies, in forum: Health News and Research unrelated to ME/CFS
  5. Amw66
    Thread

    Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME: interviews with adolescents and parents, 2018, Crawley et al

    New paper - has a number of red flags. Focuses on fatigue description and " payback" as a description for PEM without much definition....
    Thread by: Amw66, Dec 5, 2018, 26 replies, in forum: PsychoSocial ME/CFS Research
  6. JaimeS
    Thread

    Who was it that said being in support groups leads to poor outcome?

    Halp. Looking for a resource on this? I'll start the hunt through Phoenix Rising, but if someone has it handy, I'd really appreciate it.
    Thread by: JaimeS, Jul 24, 2018, 244 replies, in forum: PsychoSocial ME/CFS Research
  7. Esther12
    Thread

    New Crawley research? MOrPH-CFS

    I don't remember seeing anything about this previously: MOrPH-CFS We know very little about the causes of CFS/ME, although it is sometimes...
    Thread by: Esther12, Jan 6, 2018, 36 replies, in forum: General ME/CFS News
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