Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME: interviews with adolescents and parents, 2018, Crawley et al

Dolphin said:
There is no real psychobabble in this. Nor is there promotion of CBT, graded activity or similar approaches.
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Unfortunately there is no biological or objective evidence/research mentioned here either.

I didn't come across anything that suggests the authors weren't anything other than sympathetic in how they presented their findings.
However I'm not sure sceptic would find the results that interesting.
And I think if one was so inclined, one might think that a lot of the impairment was down to mood and adolescents not doing things for no particular reason.
 
There may be some value in the paper in terms of the particular wordings adolescents and/or their parents used to describe symptoms, their impairments, etc.

Two quotes I highlighted to myself were
So you can be tired and you can be really tired. (C12, male 13).
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…she calls it her normal tiredness and her bad tiredness. (P9, mother of female 13)
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But I'm not sure they or other quotes are that interesting so I'm not sure I'm going to spend time highlighting them.

So overall I found it a bit bland.
 
Amw66 said:
Yes, it' s the go- to for sleep and pain. The only prescription our paediatrician would countenance.
Lots of kids on this .
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Yuk I found it made me so sluggish and it wasn’t that effective after a while and I’m a middle aged chunky woman. I know drugs affect different people in different ways but I find it concerning they can’t come up with something better. Nortryptiline had less of a hangover for me so may be worth trying but it still made me too lethargic so I stopped in the end. I’m mild moderate though so my experience not that useful for any severe folks.
 
NelliePledge said:
Yuk I found it made me so sluggish and it wasn’t that effective after a while and I’m a middle aged chunky woman. I know drugs affect different people in different ways but I find it concerning they can’t come up with something better. Nortryptiline had less of a hangover for me so may be worth trying but it still made me too lethargic so I stopped in the end. I’m mild moderate though so my experience not that useful for any severe folks.
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My concerns were what effect it would have on a developing brain . I could not find any info re testing on children.
 
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