scotland

Abstract Long COVID, reflected by persistent symptoms, including breathlessness and fatigue, after coronavirus disease-19 (COVID-19) infection, presents an unmet therapeutic need. In this study, the effects of a resistance exercise intervention on exercise capacity and health status in...

Prevalence and risk factors for long COVID among adults in Scotland using electronic health records: a national, retrospective, observational cohort study Karen Jeffrey; Lana Woolford; Rishma Maini; Siddharth Basetti; Ashleigh Batchelor; David Weatherill; Chris White; Vicky Hammersley; Tristan...

"This report analyses survey responses from ten NHS Health Boards in Scotland to understand delivery of ME/CFS services, implementation of the updated ME/CFS NICE guidelines, barriers and opportunities to implementing the guidelines, and options for future ME/CFS service development."...

Published 28 February 2023 This guidance is intended to support the diagnosis and management of ME/CFS in primary care, and was originally published in 2010. The Scottish Government has partially updated it to insert key recommendations from the NICE Guideline on ME/CFS published in October...

I didn't know how to title this as there are so many problematic issues. This is a website called neurosymptoms.org There are pages dealing with FND symptoms. This one is on visual symptoms https://www.neurosymptoms.org/en_GB/symptoms/fnd-symptoms/visual-symptoms/ the chronic fatigue...

Abstract With increasing numbers infected by SARS-CoV-2, understanding long-COVID is essential to inform health and social care support. A Scottish population cohort of 33,281 laboratory-confirmed SARS-CoV-2 infections and 62,957 never-infected individuals were followed-up via 6, 12 and...

Be Part Of Designing UWS [University of the West of Scotland] Research Into ME And Long COVID "Researchers at the University of the West of Scotland (UWS) are undertaking research into ME and long COVID, and are looking for members of the ME community to be involved in the development. The...

This website is in need of updating. The first page isn't too bad but...... Chronic fatigue syndrome (CFS) GET and CBT stuff is still there and then there is this Living with chronic fatigue Even in its mildest form, chronic fatigue can have a significant emotional and financial impact on...

Horrified that Crawley is co-author with Terence Stephenson on the CLoCk Study for kids with long COVID, meanwhile DECODE and many other biomedical studies get rejected...

The Scottish Health Department has posted an interim statement advising caution over the suitability of Graded Exercise Therapy (GET) in treating ME/CFS and has reiterated the earlier statement from NICE cautioning against use of GET in Post/Long-Covid. Following a review of the evidence behind...

From Twitter tonight. It is very much a case of be careful what you wish for. Seems to be GET through the back door via " activity management". Sleep hygiene us also a big issue. The failure to understand what is proposed, and how this affects pwME seems to be endemic. There is a real lack.of...

Edinburgh News: Edinburgh SNP councillor Ian Campbell stands down for health reasons https://www.edinburghnews.scotsman.com/news/politics/edinburgh-snp-councillor-ian-campbell-stands-down-health-reasons-1886039 Edinburgh SNP councillor Ian Campbell has announced he is resigning for health...

I just came across this survey but I can't see when it's from or how it came about. see tweet in Andys post below https://www.smartsurvey.co.uk/s/myalgicencephalomyelitissurvey anyone know anything about it? @chicaguapa eta: who's the rep for #MEaction Scotland here?

BBC interview with a Lyme victim who has a story that too many of us recognize. It also triggered ME/CFS in her case. The good news is that there is, or will be, an app where people can find out if infected ticks have been found in certain places or areas. I´d be very interested in this app...

There are a range of courses branded under the TheWEL banner. David Reilly, a Glasgow doctor, is the developer of the courses. My local health authority in New Zealand seems to be considering offering TheWEL courses for people with chronic illnesses specifically including ME/CFS. A person...

https://www.facebook.com/meassociation/posts/2098397253551255

"This draft plan sets out our vision for driving improvement in the care, treatment and support available to people living with neurological conditions – and their carers - in Scotland. Our Vision is that everyone with a neurological condition will be able to access the care and support they...

Third Force News: If the government won’t take ME seriously who will? http://thirdforcenews.org.uk/blogs/if-the-government-wont-take-me-seriously-who-will Lesley Scott argues ME can't be fixed through psychological interventions and the authorities need to take a different tact 29 August...

This post and subsequent discussion have been moved from this thread. For no particular reason I am posting here a document that will be made public by the Scottish Parliament in support of @Emsho's petition.