petition

Press Release from the European ME coalition (EMEC): 'Scientists call for more European research on ME/CFS' Brussels, 10 June 2020 More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...

The advocacy group of Evelien Van Den Brink and Francis Martin (of which I’m part) now has an official name and website. Check it out here: https://europeanmecoalition.wordpress.com/ For those who might not remember, this is the group that has submitted the successful European petition for...

https://www.meaction.net/2020/02/05/the-eu-committee-on-petitions-is-preparing-a-resolution-on-me/

How to sign the EU-petition on a request for funding for biomedical research on Myalgic Encephalomyelitis (No0204/2019) 1) Go to the EU website: https://petiport.secure.europarl.europa.eu/petitions/en/petition/content/0204%2F2019/html/missinglink 2) Click register at the top right corner of...

07/01/2020 - Agenda item, Petitions Committee P-05-926 To Provide a Chronic Fatigue Department in Wales http://www.senedd.assembly.wales/mgIssueHistoryHome.aspx?IId=26835&Opt=0 Research brief http://www.senedd.assembly.wales/documents/s96850/Research Brief.pdf My comments on the above: Don't...

Petition to stop contracting out DWP health-related benefits assessments and make the system fairer: https://petition.parliament.uk/petitions/274312/signatures/new UK citizens only.

News about Evelien's testimony to Parliament has already been posted on the thread about the EU Petition but I thought the testimony deserved its own thread. This article by #MEAction includes a video: https://www.meaction.net/2019/10/03/me-activist-testifies-before-eu-parliament/

A young woman with ME has started UK Parliamentary petition seeking training in relation to ME for teachers: https://petition.parliament.uk/petitions/266152 It can be signed by any UK resident or UK citizens including those living overseas.

A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the impact of ME on 2 million people in the EU and the lack of EU funding for ME Research. I'd be grateful if you would consider supporting it (and ask...

https://www.meaction.net/2018/06/29/volunteer-of-the-month-scottish-trio/ Congrats @Emsho :)

Station: Manx Radio and Aiir Date: April 18, 2019 WebRadio: https://www.manxradio.com/news/isle-of-man-news/petition-for-island-m-e-service-gains-traction/ Petition for Island M.E. service gains traction ----------------------------------------------- Craig Morris says sufferers are crying out...

UK Gov petition (ie at 10,000 Govt will respond) currently 3567 signatures (my addition: if you fail on the one test but were previously in receipt of both benefits, you would effectively be left with nothing, pending appeal.) link here: https://petition.parliament.uk/petitions/244329

I realise this may be controversial but it goes into it quite deeply, maybe too deeply. https://www.change.org/p/dr-paul-chrisp-define-melvin-ramsay-s-myalgic-encephalomyelitis-m-e-as-own-distinct-disease-from-cfs

Been asked to share this Spanish petition on social media but wondered if any of our Spanish speaking members could offer an opinion on the petitions demands i.e. are they the sort of demands that this forum would be likely to support...

Hi everyone, greetings from Germany the situation here in Germany is still pretty bad, even some MPs are now familiar or at least involved with ME/CFS organisations. The following petition still needs more signatures so we can make more pressure to the Health Ministry.... its all in german but...

A conversation in the 'News from New Zealand and the Pacific Islands' thread led to the idea that 'we'* work together on ensuring that people with ME and CFS have access to Disability Support Services (DSS). These conditions are not currently included in the eligibility criteria for DSS, but...

Parliament of Australia from the Minister for Families and Social Services, Mr Fletcher...

Spotted this on social media. https://petitions.whitehouse.gov/petition/funding-dedicated-research-chronic-fatigue-syndrome-mecfs-develop-diagnostic-test-treatment-and-cure

https://www.bbc.co.uk/news/uk-england-derbyshire-46880547 A debate has been held in parliament about a chronic pain condition after a petition attracted more than 115,000 signatures. Toby Perkins, MP for Chesterfield, organised the debate along with constituent and fibromyalgia campaigner...

https://www.change.org/p/increase-research-funding-for-me-cfs/u/23686254?cs_tk=AUWl2Qz7NG-fLViGA1wAnBKDWTbxtNsAD1IAIo2cXA%3D%3D&utm_campaign=8ea457b4a7164a6ebc71bf0a543a3a4d&utm_medium=email&utm_source=petition_update&utm_term=cs