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  1. ME/CFS Skeptic
    Thread

    European ME Coalition (EMEC)

    The advocacy group of Evelien Van Den Brink and Francis Martin (of which I’m part) now has an official name and website. Check it out here:...
    Thread by: ME/CFS Skeptic, Apr 19, 2020, 11 replies, in forum: Advocacy Projects and Campaigns
  2. ME/CFS Skeptic
    Thread

    ME Action: The EU committee on petition is preparing a resolution on ME

    "Hi everyone! Time for an update: We have super important news! The Committee on Petitions is preparing a resolution on ME! This is the...
    Thread by: ME/CFS Skeptic, Feb 9, 2020, 68 replies, in forum: Advocacy Projects and Campaigns
  3. ME/CFS Skeptic
    Thread

    2020: How to sign the EU-petition on a request for funding for biomedical research on Myalgic Encephalomyelitis (No0204/2019) - now closed

    How to sign the EU-petition on a request for funding for biomedical research on Myalgic Encephalomyelitis (No0204/2019) 1) Go to the EU website:...
    Thread by: ME/CFS Skeptic, Feb 1, 2020, 11 replies, in forum: Advocacy Projects and Campaigns
  4. Sly Saint
    Thread

    Wales (UK) - Govt petition P-05-926 To Provide a Chronic Fatigue Department in Wales

    07/01/2020 - Agenda item, Petitions Committee P-05-926 To Provide a Chronic Fatigue Department in Wales P-05-926 To Provide a Chronic Fatigue...
    Thread by: Sly Saint, Jan 3, 2020, 12 replies, in forum: General ME/CFS news
  5. Wits_End
    Thread

    UK petition - change the DWP benefits assessments system

    Petition to stop contracting out DWP health-related benefits assessments and make the system fairer:...
    Thread by: Wits_End, Nov 5, 2019, 2 replies, in forum: Petitions
  6. ahimsa
    Thread

    ME Activist Evelien Van Den Brink Testifies before EU Parliament

    News about Evelien's testimony to Parliament has already been posted on the thread about the EU Petition but I thought the testimony deserved its...
    Thread by: ahimsa, Oct 5, 2019, 1 replies, in forum: General Advocacy Discussions
  7. Peter Trewhitt
    Thread

    UK petition for teacher education

    A young woman with ME has started UK Parliamentary petition seeking training in relation to ME for teachers: Staff training and mandatory support...
    Thread by: Peter Trewhitt, Jul 25, 2019, 10 replies, in forum: Petitions
  8. FMMM1
    Thread

    EU Petition 2019 - opportunity to lobby for funding for ME research

    A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the...
    Thread by: FMMM1, Jul 12, 2019, 149 replies, in forum: Petitions
  9. Sly Saint
    Thread

    Scottish Parliament hearings and report on #MEAction Scotland petition - 2019/20

    Scottish Petitions Committee discussion on M.E./CFS [MEDIA]
    Thread by: Sly Saint, May 31, 2019, 23 replies, in forum: Advocacy Projects and Campaigns
  10. MeSci
    Thread

    Petition for Island M.E. service (Isle of Man) gains traction

    Station: Manx Radio and Aiir Date: April 18, 2019 WebRadio:...
    Thread by: MeSci, Apr 19, 2019, 5 replies, in forum: Petitions
  11. Sly Saint
    Thread

    Don't merge the assessments for PIP and ESA - April 2019

    UK Gov petition (ie at 10,000 Govt will respond) In a speech on 5/3/19, Work & Pensions Secretary Amber Rudd announced plans to merge assessments...
    Thread by: Sly Saint, Apr 11, 2019, 10 replies, in forum: Petitions
  12. John Mac
    Thread

    Petition, change.org: Define "Melvin Ramsay's Myalgic Encephalomyelitis (M.E.)" as own distinct disease from CFS

    I realise this may be controversial but it goes into it quite deeply, maybe too deeply. I believe that "Melvin Ramsay's Myalgic...
    Thread by: John Mac, Apr 10, 2019, 15 replies, in forum: Petitions
  13. Andy
    Thread

    Spanish petition: Retiren la Guía del INSS para Fibromialgia, SFCem, SQM y EHS

    Been asked to share this Spanish petition on social media but wondered if any of our Spanish speaking members could offer an opinion on the...
    Thread by: Andy, Apr 7, 2019, 11 replies, in forum: Petitions
  14. Jupiter
    Thread

    2019 Petition to Ministry of Health Germany

    Hi everyone, greetings from Germany the situation here in Germany is still pretty bad, even some MPs are now familiar or at least involved with...
    Thread by: Jupiter, Apr 6, 2019, 15 replies, in forum: Petitions
  15. RoseE
    Thread

    NZ Petition: Include ME/CFS in DSS (Disability Support Services) eligibility criteria

    A conversation in the 'News from New Zealand and the Pacific Islands' thread led to the idea that 'we'* work together on ensuring that people with...
    Thread by: RoseE, Apr 6, 2019, 8 replies, in forum: Advocacy Projects and Campaigns
  16. Sly Saint
    Thread

    Parliament of Australia - petitions and questions

    Parliament of Australia from the Minister for Families and Social Services, Mr Fletcher Thursday, 4 April 2019 Page: 87 Myalgic...
    Thread by: Sly Saint, Apr 5, 2019, 13 replies, in forum: General ME/CFS news
  17. Andy
    Thread

    US Petition: Funding dedicated to the research of Chronic Fatigue Syndrome 'ME/CFS' to develop a diagnostic test, treatment, and Cure

    Spotted this on social media. HMD has noted a “paucity of research” on ME/CFS and that “more research is essential”; only 1% of the needed funding...
    Thread by: Andy, Jan 17, 2019, 1 replies, in forum: Petitions
  18. MeSci
    Thread

    MPs debate fibromyalgia after Chesterfield woman's petition

    https://www.bbc.co.uk/news/uk-england-derbyshire-46880547 A debate has been held in parliament about a chronic pain condition after a petition...
    Thread by: MeSci, Jan 16, 2019, 10 replies, in forum: General ME/CFS news
  19. Sunshine3
    Thread

    NIH response to Mary Gelpi petition

    https://www.change.org/p/increase-research-funding-for-me-cfs/u/23686254?cs_tk=AUWl2Qz7NG-fLViGA1wAnBKDWTbxtNsAD1IAIo2cXA%3D%3D&utm_campaign=8ea457...
    Thread by: Sunshine3, Nov 29, 2018, 8 replies, in forum: Advocacy Projects and Campaigns
  20. Sly Saint
    Thread

    Woman's fight to stop disabled people having to travel for benefit assessments - UK petition

    " A disabled woman from Thamesmead has started a petition to stop people on benefits having to travel so far for assessments. Claudette Lawrence,...
    Thread by: Sly Saint, Nov 1, 2018, 10 replies, in forum: Petitions
Showing results 21 to 40 of 54
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