petition

" A disabled woman from Thamesmead has started a petition to stop people on benefits having to travel so far for assessments. Claudette Lawrence, 49, is an activist and campaigner who also suffers with myalgic encephalomyelitis (ME), which can cause extreme mental and physical exhaustion. She...

https://my.meaction.net/petitions/me-cfs-is-not-a-functional-disorder-we-call-for-appropriate-treatment

https://my.meaction.net/petitions/per-fink-should-not-speak-at-columbia-university

#MEAction: Full text: https://www.meaction.net/2018/08/26/stop-cdc-from-hiring-shoddy-contractor-for-me-treatment-guidelines/?mc_cid=20165100b3&mc_eid=926b73a95d Link to petition: https://my.meaction.net/petitions/demand-expert-input-community-consultation-on-new-me-guidelines-from-cdc

I have signed. https://www.change.org/p/the-us-department-of-health-and-human-services-cdc-adopt-the-distinct-disease-myalgic-encephalomyelitis-me-as-defined-by-icc-now?recruiter=2417656&utm_source=share_petition&utm_medium=facebook_link&utm_campaign=share_petition

This post and subsequent discussion have been moved from this thread. For no particular reason I am posting here a document that will be made public by the Scottish Parliament in support of @Emsho's petition.

The UK only petition has closed but the Global one is still ongoing. Currently at 4765. In addition to MAGENTA (Esther Crawleys PACE for children), FITNET-NHS (also EC costing c£1m) is going on, and who knows what else is in the pipeline. In addition to removing CBT/GET from the NICE...

Just found this on another forum : -------------------------------------- https://petition.parliament.uk/petitions/205106 Just found this petition on Facebook about imminent changes to the NHS... "If you live in the UK, for you and your family this could well end up being the single most...

NICE has promised to review its current guidelines on ME/CFS, which is not scheduled to be completed until 2020. Meanwhile it has left the current guidelines in place, despite the recommendations for treatments that are known to be harmful...

Not directly an ME petition but one certainly very relevant to those children with severe ME. https://www.change.org/p/secretary-for-education-create-a-virtual-learning-platform-for-children-too-unwell-to-attend-school ETA: I'm not the creator of the petition, I stumbled across it on social...

This was created to support @Graham 's open letter, which can be found here, https://www.s4me.info/threads/grahams-finalised-letter-to-nice-january-2018.1885/ https://www.change.org/p/sir-andrew-dillon-we-call-on-nice-to-ensure-the-guideline-committee-for-me-cfs-is-transparently-unbiased ETA...

For what it's worth. https://www.change.org/p/nhs-approve-the-use-of-iv-saline-for-treatment-in-pots-and-m-e-for-nhs-scotland-patients

Part of the 'Unrest' campaign. For US folks, a call to the NIH to fund ME/CFS research equally and fairly: https://www.unrest.film/nih-petition For everyone, 'We call on every government in the world to formally recognize ME and sufficiently fund research at the levels needed to treat and...

Emma Joy has started a petition for the ME Association to leave the CMRC. https://you.38degrees.org.uk/petitions/me-association-to-leave-the-cmrc