1. Click here to sign the "Publish the NICE ME/CFS Guideline Now" petition.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 13th September 2021 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Sign! Unrest' US & global petitions for more ME/CFS research funding

Discussion in 'Petitions' started by Sasha, Nov 3, 2017.

  1. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,497
    Location:
    UK
    Part of the 'Unrest' campaign.

    For US folks, a call to the NIH to fund ME/CFS research equally and fairly:

    https://www.unrest.film/nih-petition

    For everyone, 'We call on every government in the world to formally recognize ME and sufficiently fund research at the levels needed to treat and, ultimately, find a cure.'

    https://www.unrest.film/global-petition

    Pile on, folks! Both currently about 1200 signatures.
     
    petrichor, Webdog, Andy and 11 others like this.
  2. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    3,225
    Location:
    Cornwall, UK
    Done, and comment added.
     
    Andy, Sasha and Joh like this.
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    4,541
    Location:
    Norway
    Done. And will share, but could anyone please tell me if this is a brand new petition or has it been going on for a while? I don't recall having heard about it before..
     
    Andy and Sasha like this.
  4. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,497
    Location:
    UK
    It's a new one on me, which is why I posted it. And it has quite low numbers for a thing pushed out by the Unrest team, which suggests it hasn't been going long.

    ...just had a quick look on meaction.net and they seem to be the same ones as on there (I think they're linked because they're showing the same totals). They're both about a month old.
     
    Andy, Inara and Kalliope like this.
  5. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    4,541
    Location:
    Norway
    Thanks, @Sasha Let's get those numbers up! :thumbsup:
     
    Andy, Joh and Sasha like this.
  6. BruceInOz

    BruceInOz Senior Member (Voting Rights)

    Messages:
    397
    Location:
    Tasmania
    From the petition:
    This is far too low isn't it? If there are 1 million sufferers in the US that's only $20 each per year.
     
    Andy, Hutan, Kalliope and 1 other person like this.
  7. Hutan

    Hutan Moderator Staff Member

    Messages:
    16,044
    Location:
    New Zealand
    Good point. And that sentence appears in the Global petition in a context that suggests that it applies to the worldwide population. In which case it is of the order of $1 of annual medical costs and lost productivity per person with ME.

    ETA: Have signed
     
    Last edited: Nov 4, 2017
    BruceInOz, Andy and Trish like this.
  8. TiredSam

    TiredSam Moderator Staff Member

    Messages:
    9,593
    Location:
    Germany
    Signed.
     
    Andy likes this.
  9. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,497
    Location:
    UK
    I wonder if that should be 'billion'?

    Worth contacting #MEA with these good points? (Sorry I am unable.)
     
    Andy, Kalliope and Hutan like this.
  10. Hutan

    Hutan Moderator Staff Member

    Messages:
    16,044
    Location:
    New Zealand
    I've sent a message to the Unrest team about the estimated annual medical costs and lost productivity, using the Contact facility on the website.

    I don't think the MEA is the right organisation to contact.
     
    BruceInOz, Andy, Trish and 2 others like this.
  11. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,497
    Location:
    UK
    Good idea to contact the Unrest team! (I meant #MEAction rather than the ME Association, but either way, the Unrest team is the better choice. :))
     
    Andy and Hutan like this.
  12. Inara

    Inara Senior Member (Voting Rights)

    Messages:
    2,726
    Thanks for sharing, I signed it.
     
    Kalliope, Andy and Sasha like this.
  13. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    14,096
    Location:
    Hampshire, UK
    Signed and shared. :)
     
    Inara, Kalliope and Sasha like this.
  14. BruceInOz

    BruceInOz Senior Member (Voting Rights)

    Messages:
    397
    Location:
    Tasmania
    Done
     
    Inara and MeSci like this.
  15. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    6,682
    Location:
    UK
    petrichor, MeSci, Trish and 1 other person like this.
  16. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    14,096
    Location:
    Hampshire, UK

Share This Page