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Sign! Unrest' US & global petitions for more ME/CFS research funding

Discussion in 'Petitions' started by Sasha, Nov 3, 2017.

  1. Sasha

    Sasha Senior Member (Voting Rights)

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    Part of the 'Unrest' campaign.

    For US folks, a call to the NIH to fund ME/CFS research equally and fairly:

    https://www.unrest.film/nih-petition

    For everyone, 'We call on every government in the world to formally recognize ME and sufficiently fund research at the levels needed to treat and, ultimately, find a cure.'

    https://www.unrest.film/global-petition

    Pile on, folks! Both currently about 1200 signatures.
     
    petrichor, Webdog, Andy and 11 others like this.
  2. MeSci

    MeSci Senior Member (Voting Rights)

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    Done, and comment added.
     
    Andy, Sasha and Joh like this.
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Done. And will share, but could anyone please tell me if this is a brand new petition or has it been going on for a while? I don't recall having heard about it before..
     
    Andy and Sasha like this.
  4. Sasha

    Sasha Senior Member (Voting Rights)

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    It's a new one on me, which is why I posted it. And it has quite low numbers for a thing pushed out by the Unrest team, which suggests it hasn't been going long.

    ...just had a quick look on meaction.net and they seem to be the same ones as on there (I think they're linked because they're showing the same totals). They're both about a month old.
     
    Andy, Inara and Kalliope like this.
  5. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Thanks, @Sasha Let's get those numbers up! :thumbsup:
     
    Andy, Joh and Sasha like this.
  6. BruceInOz

    BruceInOz Senior Member (Voting Rights)

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    From the petition:
    This is far too low isn't it? If there are 1 million sufferers in the US that's only $20 each per year.
     
    Andy, Hutan, Kalliope and 1 other person like this.
  7. Hutan

    Hutan Moderator Staff Member

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    Good point. And that sentence appears in the Global petition in a context that suggests that it applies to the worldwide population. In which case it is of the order of $1 of annual medical costs and lost productivity per person with ME.

    ETA: Have signed
     
    Last edited: Nov 4, 2017
    BruceInOz, Andy and Trish like this.
  8. TiredSam

    TiredSam Moderator Staff Member

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    Signed.
     
    Andy likes this.
  9. Sasha

    Sasha Senior Member (Voting Rights)

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    I wonder if that should be 'billion'?

    Worth contacting #MEA with these good points? (Sorry I am unable.)
     
    Andy, Kalliope and Hutan like this.
  10. Hutan

    Hutan Moderator Staff Member

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    I've sent a message to the Unrest team about the estimated annual medical costs and lost productivity, using the Contact facility on the website.

    I don't think the MEA is the right organisation to contact.
     
    BruceInOz, Andy, Trish and 2 others like this.
  11. Sasha

    Sasha Senior Member (Voting Rights)

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    Good idea to contact the Unrest team! (I meant #MEAction rather than the ME Association, but either way, the Unrest team is the better choice. :))
     
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  12. Inara

    Inara Senior Member (Voting Rights)

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    Thanks for sharing, I signed it.
     
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  13. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Signed and shared. :)
     
    Inara, Kalliope and Sasha like this.
  14. BruceInOz

    BruceInOz Senior Member (Voting Rights)

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    Done
     
    Inara and MeSci like this.
  15. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    petrichor, MeSci, Trish and 1 other person like this.
  16. Andy

    Andy Committee Member (& Outreach when energy allows)

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