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European ME Coalition (EMEC)

Discussion in 'Advocacy Projects and Campaigns' started by ME/CFS Skeptic, Apr 19, 2020.

  1. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    The advocacy group of Evelien Van Den Brink and Francis Martin (of which I’m part) now has an official name and website.

    Check it out here: https://europeanmecoalition.wordpress.com/

    upload_2020-4-19_12-44-9.png

    For those who might not remember, this is the group that has submitted the successful European petition for more biomedical research into ME. Evelien subsequently gave a speech in the EU parliament. They now have the following message to share, which I will post in full:

    “Dear friends,

    Hopefully, this message finds you well. The COVID-19 outbreak has a deep impact on our societies. We hope you and your loved ones are safe.

    Despite the difficult circumstances, there are hopeful signs from our community. Many of us are still working tirelessly to improve the situation of ME patients worldwide. This is a reason to be hopeful.

    As you know, our group is working on a project to raise awareness of ME in the European Union. The COVID-19 measures have led to a pause in our advocacy work because all meetings had to be postponed.

    We are trying to use the available time to restructure and improve our internal communication so that our group will be stronger and more efficient when our projects can be resumed.

    We have some good news that we would like to share with you. We have adopted an official name: European ME Coalition (EMEC). And in addition, we are also launching our new website. You can find it here; https://europeanmecoalition.wordpress.com/

    We are very proud of it and hope you will enjoy it as much as we do.

    Best wishes on behalf of the whole team,

    Francis, Alice, Michiel, Joachim, Giada and Evelien

    PS: You can still support the petition if you haven’t done so already! EU-citizens can sign the petition online and non-EU-citizens can sign the petition on paper. Please find detailed instructions on how to sign here; https://europeanmecoalition.wordpress.com/2020/04/04/how-to-sign-the-petition/
     
    Last edited: Apr 20, 2020
    Milo, sebaaa, Midnattsol and 27 others like this.
  2. Andy

    Andy Committee Member

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    Last edited: Apr 19, 2020
  3. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    Thanks Andy!
     
    alktipping and Andy like this.
  4. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    As some might have noticed there was an issue that the link to our home page didn't display an image when sharing it on social media. Normally this should be resolved now.

    upload_2020-4-21_13-47-19.png
     
  5. Trish

    Trish Moderator Staff Member

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    Well done to all of you. I wish you lots of success getting good research funded.
     
    sebaaa, Dolphin, Sunshine3 and 11 others like this.
  6. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    The EMEC website has moved to its own webdomain at: https://europeanmecoalition.com/

    The old page was hosted by Wordpress. It's still there and will redirect you to our new web page.
     
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    I don't know if this has already been posted

    Evelien Van Den Brink's speech in the European Parliament

    https://www.youtube.com/watch?v=zcPmrIqK4hs




    On 3 Oktober 2019, Evelien Van Den Brink made a speech in the European Parliament on the need for more scientific research on the illness Myalgic Encephalomyelitis (ME).
     
  8. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    It's the video of Evelien Van Den Brinks speech from last year. Discussed here: https://www.s4me.info/threads/eu-pe...ding-for-me-research.10363/page-2#post-205868

    What I haven't posted yet is this cool video Broken Battery made for the European ME Coalition with highlights of the speech, ideal to share on social media. We've put it on the homepage of the EMEC website.

    https://www.youtube.com/watch?v=jq_bQ60-Jlk


     
    Last edited: May 25, 2020
    Joh, Sly Saint, ScottTriGuy and 5 others like this.
  9. sebaaa

    sebaaa Established Member (Voting Rights)

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    Good on you guys for fighting the good fight!

    I was testing your site and I noticed that the links on the home page at the bottom that go to your Wordpress site don't work. Maybe you guys are already aware of this. Also, I think you guys should auto-redirect the Wordpress domain to your new domain so you don't need to keep it up.
     
    Peter Trewhitt likes this.
  10. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    Thanks so much for pointing this out, some of the buttons still had the old links in them, should be fixed now.

    Yes, that would be great but haven't found an easy way to do this because the old Wordpress site was a free version that doesn't allow installation of plugins. Suggestions are always welcome.
     
    Peter Trewhitt, Andy and sebaaa like this.
  11. sebaaa

    sebaaa Established Member (Voting Rights)

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    I haven't used the free version of Wordpress so I'm not exactly sure how it works but if you have access to the hosting panel or .htaccess you should be able to change it. I can help with that if you want. Though, it might just be that you can't change it since you don't own the domain.
     
    Peter Trewhitt, MarcNotMark and Andy like this.
  12. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

    Messages:
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    Thanks very much for the offer. In the free version of Wordpress you have access to a dashboard but you can't install plugins or add CSS code so I'm not sure if this would work.
    I also think that the current solution works as well (although less elegantly): people who search for the old website will only find the homepage that redirects readers to our new webpage.
     
    sebaaa and Andy like this.

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