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Petition for Island M.E. service (Isle of Man) gains traction

Discussion in 'Petitions' started by MeSci, Apr 19, 2019.

  1. MeSci

    MeSci Senior Member (Voting Rights)

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    Location:
    Cornwall, UK
    Station: Manx Radio and Aiir
    Date: April 18, 2019
    WebRadio:
    https://www.manxradio.com/news/isle-of-man-news/petition-for-island-m-e-service-gains-traction/

    Petition for Island M.E. service gains traction
    -----------------------------------------------
    Craig Morris says sufferers are crying out for support

    A petition for the Island to have a dedication service for M.E. (myalgic encephalmyselitis) has gained more than a thousand signatures. It was started a week ago by Craig Morris who suffers from the illness, also known as Chronic Fatigue Syndrome. He wants Tynwald to establish a select committee to investigate and report on the adequacy of diagnosis, treatment and provision for those with M.E. An estimated 300 people on the Isle of Man have the long-term multi-system disease.

    Mr Morris says the petition is borne out of frustration.

    Petition is at https://www.change.org/p/tynwald-es...tigate-adequacy-of-provision-for-me-sufferers
     
  2. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Maybe a dumb question - do they want signatures from outside the Isle of Man, and Britain? I understand the Isle of Man governance is separate.
     
    Amw66 likes this.
  3. MeSci

    MeSci Senior Member (Voting Rights)

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    I have no idea - sorry. I assumed not, but if anyone can find out, that would be great!

    I have found his email address and will ask him.
     
    Last edited: Apr 21, 2019
    DokaGirl likes this.
  4. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Signed
     
    MeSci likes this.
  5. MeSci

    MeSci Senior Member (Voting Rights)

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    Well, I've had no reply, but the piece linked below refers to people from all over the world signing it, so I have joined them:

    Station: Manx Radio and Aiir

    Date: April 24, 2019

    WebRadio:
    https://www.manxradio.com/news/isle-of-man-news/m-e-service-to-be-implemented-this-year/

    Ref:
    https://www.manxradio.com/news/isle...fantastic-and-then-overnight-i-got-very-sick/

    https://www.manxradio.com/news/isle-of-man-news/petition-for-island-m-e-service-gains-traction/

    M.E. service to be implemented this year
    ----------------------------------------
    Health Minister confirms plans are in progress

    A dedicated service for those suffering with M.E. on the Isle of Man will be in place by the end of the current financial year. That's the promise from Health Minister David Ashford after more than 1,200 people signed a petition calling for more to be done to help those with the condition, also known as chronic fatigue syndrome.

    Around 350 Manx residents are known to have the illness, and Pound170,000 has been set aside in this year's budget to develop a pathway for those needing treatment.

    More at link.

    I wasn't very impressed by the minister's reference to treatment including Clinical Psychology!
     
    TiredSam, Snow Leopard and rvallee like this.
  6. Annaiom

    Annaiom Established Member

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    I have had a reply from Celia at the IOM ME Support group and anyone can sign.

    I live on the island and i hope we don't end up with GET and CBT but I fear the worst as we have the same NHS as the UK. I saw an OT over here who had 14 years experience with people with M.E and she wanted me to gradually increase my activity and exercise and reduce my rests
     

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