1. Guest, the two part 'News in Brief' for the week beginning 15th November 2021 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Press Release from the European ME coalition (EMEC): 'Scientists call for more European research on ME/CFS'

Discussion in 'Advocacy Projects and Campaigns' started by Michiel Tack, Jun 10, 2020.

  1. Michiel Tack

    Michiel Tack Senior Member (Voting Rights)

    Messages:
    2,751
    Location:
    Belgium
    Press Release from the European ME coalition (EMEC): 'Scientists call for more European research on ME/CFS'

    Brussels, 10 June 2020 More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). On 17 June, the European Parliament plans to vote on a resolution on ME/CFS research following a popular petition signed by thousands of patients and their loved ones.

    Read the full press release here: https://europeanmecoalition.com/press-release-scientists-call-for-more-european-research-on-me-cfs/

    Watch the open letter and list of signees here: https://europeanmecoalition.com/wp-...for-biomedical-research-into-ME-in-the-EU.pdf
     
    sebaaa, ahimsa, MSEsperanza and 22 others like this.
  2. Michiel Tack

    Michiel Tack Senior Member (Voting Rights)

    Messages:
    2,751
    Location:
    Belgium


    This press release has been translated into French, Italian, Spanish, Dutch and German and has been sent to various media outlets and patient organizations in Europe. If you have press contacts feel free to pass it on.

    Many thanks to ME Action (The #MEAction Network) and Open Medicine Foundation (Open Medicine Foundation) for their help with the petition and open letter. Also big thanks to the many European ME/CFS patient organizations that supported these initiatives.
     
    ahimsa, MSEsperanza, Frankie and 9 others like this.
  3. Snowdrop

    Snowdrop Senior Member (Voting Rights)

    Messages:
    1,967
    Maybe @Mike Harley might have some contacts, though not sure he'll see this while he's not running any marathons.
     
    MSEsperanza and rvallee like this.

Share This Page