Solve M.E. Patient and Caregiver Resource Guide: Post Exertional Malaise (PEM) and Rest
https://solvecfs.org/wp-content/uploads/2021/09/PEM-REST-Combined.pdf
A shorter version of this was in their latest e-newsletter...
Free fulltext:
https://www.cambridge.org/core/journals/epidemiology-and-infection/article/longterm-health-outcomes-of-qfever-fatigue-syndrome-patients/99B3D80E172A66619C216506E020BB02
Long-term health outcomes of Q-fever fatigue syndrome patients
Published online by Cambridge University...
Muscle Abnormalities Contribute to Post-Exertional Malaise in Long COVID
A poster presentation of the very soon to be published work by Rob Wüsts team has been uploaded to Twitter.
Paper now published, see post #8
Abstract
Essential elements of Myalgic Encephalomyelitis (ME) are muscle (weakness) and tenderness, cognitive deficits, neurological impairments, especially of cognitive, autonomic and sensory functions, but above all, post-exertional “malaise”: a prolonged increase of symptoms after a minor...
High proportions of post-exertional malaise and orthostatic intolerance in people living with post-COVID-19 condition: the PRIME post-COVID study
Demi ME Pagen; Maarten Van Herck; Celine JA van Bilsen; Stephanie Brinkhues; Kevin Konings; Casper DJ den Heijer; Martijn A Spruit; Christian JPA...
The other day I learned that exercise is a strong trigger of the release of various hormones and signalling factors that we might label as stress signals.
Some of the after effects of exercise that I experience feel exactly like my body continues to be stressed for hours afterwards, or even...
Posts moved from News from Aotearoa/New Zealand and the Pacific Islands
YouTube - Post-Exertional Malaise in ME/CFS - Management and Supports - Webinar for Health Professionals (24 mins)
Dr Cathy Stephenson for ME Awareness NZ on World ME Day.
I think this is a good resource for GPs and...
Full title:
Sex-Dependent Transcriptional Changes in Response to Stress in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Pilot Project
Abstract
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, multi-symptom illness characterized by debilitating...
New thread created by collecting posts from a number of other threads
If someone's in a listening mood, there's no transcript. 30 minutes with the NIH Recover initiative lead:
Direct link: https://www.nejm.org/action/showMediaPlayer?doi=10.1056/NEJMdo006435&aid=10.1056/NEJMe2201619&area=.
2023 World ME Day campaign announced
"The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people begin to understand this disease more accurately. That’s why our tagline this year is “ME...
LongCovidPhysio - Jessica "Breathing Pattern Disorders", video 2021
The Management of Breathing Pattern Disorders
https://www.physio-pedia.com/The_Management_of_Breathing_Pattern_Disorders
Yet another Long Covid Physio podcast
https://youtu.be/Avr9Ys4eJ-8
Post Exertional Malaise is the hallmark symptom of #MECFS and is also common in #LongCovid.
Video explains the abnormal response to exertion, triggers, symptoms and management.
BACKGROUND:
Existing instruments often are inappropriate to measure the effects of post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE) on activities of daily living (ADLs). A validated questionnaire to measure self-reported ability with ADLs would advance research and...
This description in a paper on sarcoidosis sounds like PEM (although not much detail is given so it's not clear).
In this study they also performed repeated CPET and found "no impairment of maximal exercise testing" on the second test...
I'm new to an ME diagnosis (got it Dec 27, 2022, although I'd had ME symptoms since 1994 if not before) but not new to cardiac issues. I've had lots of testing as a result of chest pain while exercising (nothing wrong with my heart; in retrospect an ME symptom related to pushing myself too hard)...
Kujawski, Julia Newton et al
Abstract
Post-exertional malaise (PEM) is regarded as the hallmark symptom in chronic fatigue syndrome (CFS). The aim of the current study is to explore differences in CFS patients with and without PEM in indicators of aortic stiffness, autonomic nervous system...
Podcast episode about PEM, well worth a listen :thumbsup:
https://natashalipman.substack.com/p/post-exertional-malaise
Transcript here:
http://natashalipman.com/post-exertional-malaise-podcast-transcript
ME/CFS and Post-Exertional Malaise among Patients with Long COVID
by Leonard A. Jason and Joseph A. Dorri
Abstract
This study sought to ascertain the prevalence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) among a sample of 465 patients with Long COVID. The participants...
Full title: Fatigue, post-exertional malaise and orthostatic intolerance: a map of Cochrane evidence relevant to rehabilitation for people with post COVID-19 condition
INTRODUCTION: Rehabilitation focuses on impairments, activity limitations and participation restrictions being informed by the...
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