Full title: Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort with the post-COVID-19 syndrome
Background
Post Exertional Symptom Exacerbation (PESE) is a characteristic symptom of Post-COVID Syndrome (PCS)...
From OMF news email
Post Exertion Malaise (PEM): Dr. David Systrom Aims to Fill in Gaps
Today we are pleased to highlight one of the studies included in our 2022 OMF supported research initiatives! Remember, when you give this November, your gift will be TRIPLED by generous donors. Hurry before...
Unravelling the nature of postexertional malaise in myalgic encephalomyelitis/chronic fatigue syndrome: the role of elastase, complement C4a and interleukin-1β
Abstract
Abstract. Nijs J, Van Oosterwijck J, Meeus M, Lambrecht L, Metzger K, Frémont M, Paul L (Vrije Universiteit Brussel...
About: Graded exercise is commonly prescribed after illness to improve symptoms and functional tolerance. Protracted and limited courses of recovery may be associated with post-exertional symptom exacerbation (PESE), which is common after many other forms of viral and bacterial infection...
Hi All,
It's be really interested in what people's thoughts are for the most accurate fatigue scales that can be used in research studies?
Ones that also give representation to PEM over time.
The CFQ (chalder fatigue scale/ questionnaire) is often used but has serious limitations.
The DePaul...
This idea has come up before and I thought it would be interesting to write down some of my thoughts on this. Housekeeing processes have a role in keeping cells healthy by doing things such as maintaining structural integrity and degrading and recycling intracellular components (like...
Abstract
Background People with Long Covid (Post-Acute Sequelae of Covid-19) describe multiple symptoms which vary between and within individuals over relatively short time intervals. We aimed to describe the real-time associations between different symptoms and between symptoms and physical...
JCI Insight
Plasma metabolomics reveals disrupted response and recovery following maximal exercise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Abstract
Post-exertional malaise (PEM) is a hallmark symptom of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
We monitored...
Thread split from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion
For those who want to share personal experiences on this topic less publicly there is a thread in the members only area here.
______________
I used to think it was unique. But I am starting...
Just one of these things I have tumbling around in the back of my head for a while now, and I was curious about your opinion.
One of the key characteristics of ME/CFS is that you are limited in what you can do, there is an "energy envelope" that is markedly smaller than pre-illness. You can...
Bateman Horne Center
· RELEASED: "ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS" https://bit.ly/34nh5yX
The guidebook is designed for the patient, their support network, and medical providers to:
- Understand ME/CFS and its defining characteristic of post-exertional malaise...
Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID: Postexertional Symptom Exacerbations is an Abnormal Response to Exercise/Activity
Authors: Todd E. Davenport, Staci R. Stevens, Jared Stevens, Christopher R. Snell, J. Mark Van Ness
Quote:
Prolonged symptoms after...
Abstract
Objectives
People living with long COVID describe a high symptom burden, and a more detailed assessment is needed to inform rehabilitation recommendations. The objectives were to use validated questionnaires to measure the severity of fatigue and compare this with normative data and...
Review of the Midbrain Ascending Arousal Network Nuclei and Implications for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Gulf War Illness (GWI) and Postexertional Malaise (PEM)
Abstract
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS and Gulf War Illness (GWI) share...
Original title: Submaximal Exercise Provokes Increased Activation of the Anterior Default Mode Network During the Resting State as a Biomarker of Postexertional Malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Rakib U. Rayhan et al
Abstract
Background: Myalgic...
I put this post here as I couldn't see a section for Primary Mitochondrial Disease in Missed/Alternative Diagnosis section...
Given the advice that if 3 or more systems are involved that it could possibly be a genetic/primary mitochondrial disease it would seem that anyone that meets ICC/CCC...
Brain fog, and now post exertional malaise, terms that were until fairly recently only used to describe ME/CFS symptoms have been hijacked and become generic terms.
Maybe we should learn from the Fibromyalgia community?
They use fibro fog, there are many article on this (even the NHS recognise...
Abstract
This review summarizes the symptoms and signs seen in patients with chronic fatigue syndrome (CFS). It is based on the authors' experience with two cohorts of approximately 510 patients with chronic debilitating fatigue and on the reported experience of other investigators with similar...
Differential Effects of Exercise on fMRI of the Midbrain Ascending Arousal Network Nuclei in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Gulf War Illness (GWI) in a Model of Postexertional Malaise (PEM)
preprint
Abstract
Background: Myalgic Encephalomyelitis / Chronic...
"You are invited to participate in a research study. The purpose of this study is to determine how well we can measure self-rated function in people with post-exertional malaise/post-exertional symptom exacerbation (PEM/PESE)."
https://www.surveymonkey.com/r/PEMPESESurveyStudy
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.