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pem

Page 7 of 8
  1. Kalliope
    Thread

    Solve ME/CFS Initiative - Editorial: PEM. It's time to Retire the Term

    [MEDIA] PEM: It's Time to Retire the Term by Pete Hanauer It is long past time to retire the term PEM and replace it with somethingthat...
    Thread by: Kalliope, Jul 30, 2018, 63 replies, in forum: General ME/CFS news
  2. JaimeS
    Thread

    PEM discussion thread

    Posts on PEM moved from this thread as they had gone off topic. Only rarely it sets in on the same day; my experience is it starts the next day,...
    Thread by: JaimeS, Jul 28, 2018, 100 replies, in forum: Post-Exertional malaise and fatigue
  3. Tom Kindlon
    Thread

    Patient perceptions of post exertional malaise, 2018, Jason et al

    I was surprised that there doesn't seem to be a thread on this paper given it discusses a few times the survey that was run here. In this case, I...
    Thread by: Tom Kindlon, Jul 25, 2018, 28 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Dechi
    Thread

    What is happening ?

    I’ve been preparing to move now for 4 months. And I’ve been doing renos for 10 days. I don’t do any physical work, or very little, but I go to...
    Thread by: Dechi, Jul 15, 2018, 9 replies, in forum: Post-Exertional malaise and fatigue
  5. Sly Saint
    Thread

    Meta-analysis investigating post-exertional malaise between patients and controls, 2018, Jason and Brown

    Meta-analysis investigating post-exertional malaise between patients and controls First Published July 5, 2018 Abstract Post-exertional...
    Thread by: Sly Saint, Jul 6, 2018, 7 replies, in forum: ME/CFS research news
  6. rvallee
    Thread

    David Systrom, researcher, Brigham and Women's Hospital, USA

    Dr. David M. Systrom of Brigham and Women’s Hospital (Boston) is confident that his team has objective evidence of small-fiber polyneuropathy...
    Thread by: rvallee, Jul 3, 2018, 94 replies, in forum: ME/CFS research news
  7. Indigophoton
    Thread

    Deconstructing post-exertional malaise in myalgic encephalomyelitis/ CFS: A patient-centered, cross-sectional survey, Chu et al, 2018

    Background Post-exertional malaise (PEM) is considered to be the hallmark characteristic of myalgic encephalomyelitis/ chronic fatigue syndrome...
    Thread by: Indigophoton, Jun 2, 2018, 30 replies, in forum: ME/CFS research
  8. Indigophoton
    Thread

    Comparing Post-Exertional Symptoms Following Serial Exercise Tests, Mateo et al, 2018

    Mark VanNess, PhD presented at the annual meeting of the American College of Sports Medicine. Lariel Mateo presented at the University of the...
    Thread by: Indigophoton, May 31, 2018, 3 replies, in forum: ME/CFS research
  9. Webdog
    Thread

    Leonard Jason wants ME/CFS patients to do a PEM survey

    For those interested in participating in ME/CFS research. https://redcap.is.depaul.edu/surveys/?s=YJNCDPHXTH We are conducting a research study...
    Thread by: Webdog, Apr 10, 2018, 59 replies, in forum: ME/CFS research
  10. Sly Saint
    Thread

    Neural consequences of post-exertion malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Cook, Light +

    May 2017 Neural consequences of post-exertion malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Dane B.CookabAlan R.LightcKathleen...
    Thread by: Sly Saint, Mar 9, 2018, 4 replies, in forum: ME/CFS research
  11. Jenny TipsforME
    Thread

    What does your crash feel like?

    I’m currently crashing and I’m just curious about how you would describe your crashes/flares/PEM/bust phases? What does it feel like? (Bearing in...
    Thread by: Jenny TipsforME, Feb 17, 2018, 25 replies, in forum: Post-Exertional malaise and fatigue
  12. Dolphin
    Thread

    Recruiting study: (Stony Brook University, USA) Exercise-related Post-exertional Malaise (CFS/ME)

    via https://cfsme-registry.info Brief Summary: This pilot study is intended to identify sex differences in myalgic encephalomyelitis/ chronic...
    Thread by: Dolphin, Feb 13, 2018, 9 replies, in forum: ME/CFS research news
  13. Simone
    Thread

    Post-Exertional Malaise & Graded Exercise Therapy in ME/CFS - a Primer

    I wrote this primer last year, outlining the flaws in the GET research and explaining why GET is likely to be harmful for people with ME/CFS. It...
    Thread by: Simone, Feb 13, 2018, 6 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  14. Sly Saint
    Thread

    Mount Sinai Medical Center NY (and Dr Derek Enlander)

    I came across a number of interesting Youtube videos which featured Dr Derek Enlander (who I had not heard of). One of the good guys and very...
    Thread by: Sly Saint, Feb 5, 2018, 12 replies, in forum: General ME/CFS news
  15. Simon M
    Thread

    Results of the poll to inform the NIH/CDC’s definition of PEM in all their future ME/CFS research

    Huge thanks to everyone who took part in the poll and shared it on social media. In January, our small group of research-oriented ME/CFS patients...
    Thread by: Simon M, Feb 2, 2018, 7 replies, in forum: General ME/CFS news
  16. Science For ME
    Thread

    S4ME: Submission to the public review on Common Data Elements for ME/CFS: Concerns with the proposed measure of post-exertional malaise

    Science for ME are pleased to announce that we have today submitted another critique to the NIH/CDC review (following our earlier submission on...
    Thread by: Science For ME, Feb 2, 2018, 26 replies, in forum: Open Letters and Replies
  17. Andy
    Thread

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    From a Facebook post of theirs Check out this toolkit on how to avoid Post Exertional Malaise (aka PEM/crashes)! It was created by Dr. Montoya and...
    Thread by: Andy, Jan 23, 2018, 61 replies, in forum: Post-Exertional malaise and fatigue
  18. Sasha
    Thread

    Do the poll! Are the NIH/CDC going to use the right definition of PEM in all their future research? Deadline 24 January

    A small group of ME/CFS patients with an interest in research, including Simon McGrath, Graham McPhee, Carly Maryhew and others, are asking for...
    Thread by: Sasha, Jan 18, 2018, 48 replies, in forum: General ME/CFS news
  19. Chris
    Thread

    Crash course in progress

    Hello everyone and congratulations on a terrific website with great forums! It is my first day here and though this is not the standard way to...
    Thread by: Chris, Dec 31, 2017, 5 replies, in forum: Post-Exertional malaise and fatigue
  20. Tom Kindlon
    Thread

    Post-exertional malaise as an outcome measure in any ME/CFS trials?

    A researcher has asked me: does anyone know of any ME/CFS trials that have used a measure of post-exertional malaise as an outcome measure apart...
    Thread by: Tom Kindlon, Dec 26, 2017, 10 replies, in forum: General ME/CFS news
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