pem

From a Facebook post of theirs https://drive.google.com/file/d/1kr_OU3IHdBwl2VSgyfYNjJ4W5ltxNGok/view They have just recently created a Facebook page - https://www.facebook.com/StanfordCFSInitiative/

A small group of ME/CFS patients with an interest in research, including Simon McGrath, Graham McPhee, Carly Maryhew and others, are asking for the help of fellow ME/CFS patients with an important issue that will affect biomedical research in the US and elsewhere for years to come. The NIH/CDC...

Hello everyone and congratulations on a terrific website with great forums! It is my first day here and though this is not the standard way to introduce oneself I would like to do so by introducing what has been my single most pressing question for years and years: Getting at the heart of...

A researcher has asked me: does anyone know of any ME/CFS trials that have used a measure of post-exertional malaise as an outcome measure apart from the PACE Trial* *Aside: which published a yes/no measure (they had used a Likert scale but published a yes/no result) Edited to Add: The...

Just came across this study that looks at the relationship between exercise and inflammation. Interesting for our purposes was that there is an increase in the levels of a whole host of inflammatory cytokines immediately after strenuous exercise. It occurred to me that in PwMEs, these...

It's time to remove the word malaise from post exertional problems in mecfs. Malaise doesn't come close at all to describing what that actually is. It's not malaise. It's a full-on mental and physical crash. It's like a living death. There is no way malaise should be used to describe this.

It seems more and more treatment recommandations are being updated! http://www.mydr.com.au/first-aid-self-care/chronic-fatigue-syndrome

Part 1 - What is PEM? Post-Exertional Malaise “has given rise to a lot of puzzlement and in some cases suspicion among family members, physicians who hear about the report and especially among the disability insurance companies. They don't understand how you can be in the stands watching the...

Hello I'm trying to figure out how my ME/CFS affects me, it is so complex. I noticed that each time when I fall into a trap of staying home 2 days in a row, my fatigue gets worse. 3rd or 4th day even worse. When I manage to snap out of it, then it gets better. Of course this would be ideal -...

Anomalous microbiome and metabolic profiling in ME/CFS-patients Prof Maureen Hanson, Cornell University, USA From 1:10:47 ME/CFS and the immune system. Where are we now? Geraldine (Jo) Cambridge, PhD, Dep. Medicine, University College, London From 5:33