pem

  1. Sasha

    Do the poll! Are the NIH/CDC going to use the right definition of PEM in all their future research? Deadline 24 January

    A small group of ME/CFS patients with an interest in research, including Simon McGrath, Graham McPhee, Carly Maryhew and others, are asking for the help of fellow ME/CFS patients with an important issue that will affect biomedical research in the US and elsewhere for years to come. The NIH/CDC...
  2. Chris

    Crash course in progress

    Hello everyone and congratulations on a terrific website with great forums! It is my first day here and though this is not the standard way to introduce oneself I would like to do so by introducing what has been my single most pressing question for years and years: Getting at the heart of...
  3. T

    Post-exertional malaise as an outcome measure in any ME/CFS trials?

    A researcher has asked me: does anyone know of any ME/CFS trials that have used a measure of post-exertional malaise as an outcome measure apart from the PACE Trial* *Aside: which published a yes/no measure (they had used a Likert scale but published a yes/no result) Edited to Add: The...
  4. Woolie

    Is this the mechanism underlying PEM?

    Just came across this study that looks at the relationship between exercise and inflammation. Interesting for our purposes was that there is an increase in the levels of a whole host of inflammatory cytokines immediately after strenuous exercise. It occurred to me that in PwMEs, these...
  5. Sue Klaus

    It's not malaise!!!

    It's time to remove the word malaise from post exertional problems in mecfs. Malaise doesn't come close at all to describing what that actually is. It's not malaise. It's a full-on mental and physical crash. It's like a living death. There is no way malaise should be used to describe this.
  6. Cheshire

    MyDr: Chronic fatigue syndrome

    It seems more and more treatment recommandations are being updated! http://www.mydr.com.au/first-aid-self-care/chronic-fatigue-syndrome
  7. Cheshire

    Post Exertional Malaise (PEM)

    Part 1 - What is PEM? Post-Exertional Malaise “has given rise to a lot of puzzlement and in some cases suspicion among family members, physicians who hear about the report and especially among the disability insurance companies. They don't understand how you can be in the stands watching the...
  8. P

    PEM from too little activity?

    Hello I'm trying to figure out how my ME/CFS affects me, it is so complex. I noticed that each time when I fall into a trap of staying home 2 days in a row, my fatigue gets worse. 3rd or 4th day even worse. When I manage to snap out of it, then it gets better. Of course this would be ideal -...
  9. H

    Videos from RME Sweden conference, Malmo, 19 Oct 2017 - Maureen Hanson, Jo Cambridge

    Anomalous microbiome and metabolic profiling in ME/CFS-patients Prof Maureen Hanson, Cornell University, USA From 1:10:47 ME/CFS and the immune system. Where are we now? Geraldine (Jo) Cambridge, PhD, Dep. Medicine, University College, London From 5:33
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