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pem

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  1. ahimsa
    Thread

    Action CIND Webinar: "Why Working out Doesn’t Work" by Workwell Foundation

    The video from the Action CIND webinar on Dec. 11th, featuring speakers from Workwell Foundation, is now available on vimeo (about 1 1/2 hours...
    Thread by: ahimsa, Dec 19, 2019, 43 replies, in forum: General ME/CFS News
  2. rvallee
    Thread

    PENE crash and muscle pain

    I have seen some discussions here and there around the puzzling fact of muscle pain being a consequence of neural exhaustion, whatever that...
    Thread by: rvallee, Jun 19, 2019, 12 replies, in forum: Post-Exertional Malaise, Fatigue, and Crashes
  3. Subtropical Island
    Thread

    Can POTS come and go? Variability of POTS degree with PEM

    I’ve previously considered myself to be unlikely to have POTS. I can be almost normally active on very good days (paid for later). But a recent...
    Thread by: Subtropical Island, Jun 19, 2019, 6 replies, in forum: Cardiovascular and Respiratory
  4. strategist
    Thread

    Symptom fluctuations and daily physical activity in patients with chronic fatigue syndrome: a case-control study, Nijs et al (2011)

    A study that is of interest because it measured activity levels with an accelerometer. OBJECTIVES: To compare the activity pattern of patients...
    Thread by: strategist, Apr 11, 2019, 6 replies, in forum: BioMedical ME/CFS Research
  5. Trish
    Thread

    MEA summary review: Assessing PEM (Post-exertional malaise) by Charlotte Stephens March 2019

    https://www.meassociation.org.uk/wp-content/uploads/MEA-Research-Review-Assessing-PEM-in-MECFS-25.03.19.pdf 14 page pdf document that covers...
    Thread by: Trish, Mar 31, 2019, 0 replies, in forum: Post-Exertional Malaise, Fatigue, and Crashes
  6. Kalliope
    Thread

    Literature search on PEM from The Norwegian Institute of Public Health by Lillebeth Larun et al

    The Norwegian Institute of Public Health has today published a literature search about PEM. The Norwegian ME Association asked them to make an...
    Thread by: Kalliope, Feb 27, 2019, 20 replies, in forum: General ME/CFS News
  7. Andy
    Thread

    Open NIH Focus Group on PEM

    Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used to learn more about PEM in...
    Thread by: Andy, Jan 7, 2019, 11 replies, in forum: Recruitment into current ME/CFS research studies
  8. Cheshire
    Thread

    The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and CFS (2018) Jason et al.

    Post-exertional malaise, or a variation of this term, is a key symptom of myalgic encephalomyelitis and chronic fatigue syndrome, as this symptom...
    Thread by: Cheshire, Oct 24, 2018, 5 replies, in forum: BioMedical ME/CFS Research
  9. JaimeS
    Thread

    Issues w/nausea in PEM

    Once I get truly exhausted, my throat starts to hurt (whether or not I've been talking a lot). It starts to feel dry and my speaking grows...
    Thread by: JaimeS, Sep 16, 2018, 19 replies, in forum: Other Symptoms
  10. Sly Saint
    Thread

    Cardiopulmonary Exercise Test Methodology for Assessing Exertion Intolerance in ME/CFS, 2018, Stevens et al

    Provisionally accepted. Cardiopulmonary Exercise Test Methodology for Assessing Exertion Intolerance in Myalgic Encephalomyelitis/Chronic Fatigue...
    Thread by: Sly Saint, Aug 18, 2018, 20 replies, in forum: BioMedical ME/CFS Research
  11. leokitten
    Thread

    Is PEM a crash? Is a crash PEM? Semantically distinct? Or distinct phenomena?

    My question really is about the semantics of 'crash' and 'PEM'. I guess I used to use both these words somewhat interchangeably and wanted to ask...
    Thread by: leokitten, Aug 2, 2018, 2 replies, in forum: Post-Exertional Malaise, Fatigue, and Crashes
  12. Tom Kindlon
    Thread

    Patient perceptions of post exertional malaise, 2018, Jason et al

    I was surprised that there doesn't seem to be a thread on this paper given it discusses a few times the survey that was run here. In this case, I...
    Thread by: Tom Kindlon, Jul 25, 2018, 28 replies, in forum: PsychoSocial ME/CFS Research
  13. Sly Saint
    Thread

    Meta-analysis investigating post-exertional malaise between patients and controls, 2018, Jason and Brown

    Meta-analysis investigating post-exertional malaise between patients and controls First Published July 5, 2018 Abstract Post-exertional...
    Thread by: Sly Saint, Jul 6, 2018, 7 replies, in forum: BioMedical ME/CFS News
  14. rvallee
    Thread

    Dr David M. Systrom at BWH has evidence of SFPN in some patients

    Dr. David M. Systrom of Brigham and Women’s Hospital (Boston) is confident that his team has objective evidence of small-fiber polyneuropathy...
    Thread by: rvallee, Jul 3, 2018, 71 replies, in forum: BioMedical ME/CFS Research
  15. Indigophoton
    Thread

    Deconstructing post-exertional malaise in myalgic encephalomyelitis/ CFS: A patient-centered, cross-sectional survey, Chu et al, 2018

    Background Post-exertional malaise (PEM) is considered to be the hallmark characteristic of myalgic encephalomyelitis/ chronic fatigue syndrome...
    Thread by: Indigophoton, Jun 2, 2018, 29 replies, in forum: BioMedical ME/CFS Research
  16. Indigophoton
    Thread

    Comparing Post-Exertional Symptoms Following Serial Exercise Tests, Mateo et al, 2018

    Mark VanNess, PhD presented at the annual meeting of the American College of Sports Medicine. Lariel Mateo presented at the University of the...
    Thread by: Indigophoton, May 31, 2018, 3 replies, in forum: BioMedical ME/CFS Research
  17. Webdog
    Thread

    Leonard Jason wants ME/CFS patients to do a PEM survey

    For those interested in participating in ME/CFS research. https://redcap.is.depaul.edu/surveys/?s=YJNCDPHXTH We are conducting a research study...
    Thread by: Webdog, Apr 10, 2018, 59 replies, in forum: BioMedical ME/CFS Research
  18. Sly Saint
    Thread

    Neural consequences of post-exertion malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Cook, Light +

    May 2017 Neural consequences of post-exertion malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Dane B.CookabAlan R.LightcKathleen...
    Thread by: Sly Saint, Mar 9, 2018, 4 replies, in forum: BioMedical ME/CFS Research
  19. Jenny TipsforME
    Thread

    What does your crash feel like?

    I’m currently crashing and I’m just curious about how you would describe your crashes/flares/PEM/bust phases? What does it feel like? (Bearing in...
    Thread by: Jenny TipsforME, Feb 17, 2018, 23 replies, in forum: Post-Exertional Malaise, Fatigue, and Crashes
  20. Simone
    Thread

    Post-Exertional Malaise & Graded Exercise Therapy in ME/CFS - a Primer

    I wrote this primer last year, outlining the flaws in the GET research and explaining why GET is likely to be harmful for people with ME/CFS. It...
    Thread by: Simone, Feb 13, 2018, 6 replies, in forum: PsychoSocial ME/CFS News
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